Fibromyalgia (part 2)

somebody_else

Rae wrote:

... its amazing how one finger can make things so hard?

I cannot believe that no-one picked up on that comment Rae. I was drinking a cup of tea at the time and nearly snorted it all over my keyboard.

Careful_with_that_Axe wrote: »

raeh, I echo what the others have said - no harm in asking and finding out, particularly since it's a simple blood test.

What Auntie Axe said, with knobs on! I have read (on the lupus site) that Lupus is actually far more common that Rheumatoid Arthritis - but it's diagnosed much less frequently, because of the myriad symptoms. In case your doc doesn't know what blood tests need doing, it's ESR, CrP, those anti-bodies Auntie Axe said, Renal and Liver function tests and (&ugger, &ugger, &ugger) there's another one but I can't bring it to mind at the moment. I regularly have raised ESR and CrP, but fortunately my liver and kidneys are functioning normally. Something else to look out for - how are you with sunlight? I have a low tolerance for it, and can end up incredibly unwell (blinding headache, raging temperature, joints and muscles in agony and skin feeling like it's been sandpapered, oh and repeat bouts of nausea) with as little as 20 minutes exposure.

Careful_with_that_Axe wrote: »

[I took amy properly last night (thanks s/e) and slept right through - I didn'ty even wet the bed *grin*

I daren't wet the bed now. Thanks for that.

Just one thing though - don't expect to sleep through the night every night. I do double up occasionally, generally if I've got a good idea that I'm going to experience more pain than usual during the night, but I wouldn't do it all the time, because although I know I'll sleep through a couple of nights doing that, I very quickly get used to it and it stops being that effective.

seaside wrote:

sharon says she is ok more tests today i have printed out all the messages for her will send them today.

Thanks for that seaside - we will continue to send positive thoughts Sharon's way, and hope that she's back with us soon.

unity wrote:

Just thought I'd mention - seeing as how a certain person usually corners the market on the wedding stuff.

Wow, Unity! That's brilliant news. Congratulations on your anniversary. Although I'm not sure what you mean about someone else cornering the market on wedding stuff - is someone from here getting married? :rolleyes:

raeh

Quote:
Originally Posted by Rae
... its amazing how one finger can make things so hard?

s/e wrote:

I cannot believe that no-one picked up on that comment Rae. I was drinking a cup of tea at the time and nearly snorted it all over my keyboard.

maybe not all of us have the same minds


Quote:
Originally Posted by Careful with that Axe
raeh, I echo what the others have said - no harm in asking and finding out, particularly since it's a simple blood test.

s/e wrote:

What Auntie Axe said, with knobs on! I have read (on the lupus site) that Lupus is actually far more common that Rheumatoid Arthritis - but it's diagnosed much less frequently, because of the myriad symptoms. In case your doc doesn't know what blood tests need doing, it's ESR, CrP, those anti-bodies Auntie Axe said, Renal and Liver function tests and (&ugger, &ugger, &ugger) there's another one but I can't bring it to mind at the moment. I regularly have raised ESR and CrP, but fortunately my liver and kidneys are functioning normally. Something else to look out for - how are you with sunlight? I have a low tolerance for it, and can end up incredibly unwell (blinding headache, raging temperature, joints and muscles in agony and skin feeling like it's been sandpapered, oh and repeat bouts of nausea) with as little as 20 minutes exposure.

i was oringinally dx with R A then they said my levels of whatever it was were not high enough and then after months they said fibro but i remember lupus being mentioned but nothing else said after fibro was talked about. I have no tolerance AT ALL for sunshine, i was only talking to a friend the other day when we were wishing for summer about the fact that i used to be able to sit out in the summer for hours but for years now iv had to sit in the shade or else i feel like i have sunstroke really quickly

CwtA glad you had a good nights sleep makes all the difference doesnt it

I have been sat here for ages now staring at the screen as i cant remember what else i wanted to say ... i know there was something but .... nope its gone :rolleyes:

ahh well back to the comps then

hope everyone is ok? its snowing again out there and i REALLY wanted to drive to home bargains after finishing at school tomorrow but darent go that far if the weathers bad

raeh

*tuts* remembered what the other thing was :rolleyes:

kass i hope you enjoyed going to the supprt group

somebody_else

raeh wrote: »

maybe not all of us have the same minds

Are you trying to suggest that I have a dirty mind?

raeh wrote:

i was oringinally dx with R A then they said my levels of whatever it was were not high enough and then after months they said fibro but i remember lupus being mentioned but nothing else said after fibro was talked about. I have no tolerance AT ALL for sunshine, i was only talking to a friend the other day when we were wishing for summer about the fact that i used to be able to sit out in the summer for hours but for years now iv had to sit in the shade or else i feel like i have sunstroke really quickly

Interesting... Do you do much photocopying? And if you do, have you ever noticed that you feel more unwell than usual later that day/the following day? I would have sworn that I was imagining that particular symptom - until I was handed the lupus 'handbook' and discovered advice there to limit the amount of time spent at the copier.

I know that the reason I was sent to a Rheumatologist was because my blood tests indicated (more than once, several years apart) that I had RA - it's only because there's no evidence of joint damage on x-Rays that lupus was seriously considered as a possibility. I also have raised leucosite (not sure that's the correct spelling) levels which baffles 'em. I suspect that my body is trying to reject the metal in me brain, but I'm only a patient, so what do I know?

raeh wrote:

hope everyone is ok? its snowing again out there and i REALLY wanted to drive to home bargains after finishing at school tomorrow but darent go that far if the weathers bad

I want snow! I feel seriously deprived 'cos we've not had more than a couple of inches each time it snowed round yere and I want a decent snowfall so I can have an excuse to bundle myself up with plenty of hot drink. Oh, the fact that it does a brilliant job on hiding the mess in the garden could be another reason for wanting 2 feet instead of 2 inches.

meemee75

Hi All

I've only quickly read all threads since last here, sorry to her about Sharon59 and hope she's ok and my thoughts are with her and everyone else who's been having trouble.

Not been on internet for a few days not been feelin wonderfull, had migraine Sunday and Monday, meant no work monday so everything has built up and now i'm trying to do so much to get back on top that I'm getting more and more tired and pain is increasing. I have been feeling quite low for last few weeks now, normally bring myself out of it but having trouble this time, last time it happened went to doc's and wanted to put me on anti despressents didn't want that at the time, didn't think I was that bad, but seriuosly thinking off going back and talking to her about it

Got tickets yesterday for Chigaco (touring) at Liverpool in April so that did cheer me up abit, then started thinking about sitting all that time and the pain and discomfort so back down I went.

Sorry to whinge on at the mo but shouldn't last to long, hopefully.

:EasterBun

suep

Hi all, Happy anniversary Unity I hope you've had a lovely day.

I had a mad day and its left me in a lot of pain, I can feel a flare starting Im sure. I had to go to the hospital at 9.30 for my last bladder instill and on the way home called into the chemist for my repeat script as I ran out of my pain killers last night, it was put in at the drs on Monday and they said they'd fast track it,after queuing for ages with a sore hip the assistant couldnt find my script and said it must still be back at the drs, so I drove to the drs and had to queue for a while again, by this point my legs felt like they were going to collapse, the receptionist hunted everywhere but couldnt find it either, she said shed ring the chemist so I said I had to sit down as my legs were hurting, she got no luck with the phone call and said they must have a black hole for scripts as it happens quite alot, so she re-printed me another one out and I then had to go and stand in a long queue at the chemists again. By the time I got home it was nearly lunchtime and my 21 month old g/d was coming round at 1.30 while her mum was at work, so Ive had no rest all day.
I did kep going while she was here, but the minute she left Ive collapsed on the sofa with my tens machine and heat pad.
I think OH will have to carry me to bed tonight :rotfl: I cant even rest tomorrow as Ive got my final session at the pain managment programme between 12-3.
Sorry about the winge, I hope everyone else had a better day. Kass I hope you had a good time at your support group.

raeh

somebody_else wrote: »

Interesting... Do you do much photocopying? And if you do, have you ever noticed that you feel more unwell than usual later that day/the following day? I would have sworn that I was imagining that particular symptom - until I was handed the lupus 'handbook' and discovered advice there to limit the amount of time spent at the copier.

as a TA i spend hours photocopying each week, iv never thought about if i feel worse after doing it as i always feel really tired at work but i do get a bit wheezy ... well not wheezy but my breathing is odd if i do lots of copying at once but i just thought that was tiredness? il have to go and have another read about the symptoms. My blood test are never 'normal' but then never quite wrong enough to indicate anything for certain?? does that make sense. I was told for years it must RA because of blood tests,but then didnt have the other symptoms i should have. makes you wonder how many people are wrongly diagnosed doesnt it?

and i never mentioned a dirty mind

sue i hope you managed a relaxing evening and are feeling better could the chemist not have delivered for you? they must know not to mess people about like that. I hope tomorrow is a better day

meemee i hope you feel better soon x

a warm and peaceful night to everyone xx

helibee

hi i was just wondering if i could join your thread. I've had FM for 8 years now (that we know of ) My husband is utterly amazing and he keeps me grounded, sane and loved and my wee baby son too!:heartsmil I had to give up my nurse training in 2003 as i was just getting too ill and the patients were offering me thier beds:rotfl: . I take tramadol daily which helps and occaisionally need dihydrocodeine or morpheine too. I LOVE my TENS machine.

I'm in the process of finally applying for DLA now that i have a fantastically suportive doctor.

Anyway i hope everyone is ok and not sufering too much atm, i had a really bad flare up a few weeks ago and was in bed for 2 weeks

suep

Thanks Raeh I am in a lot of pain today and have cancelled visiting my husbands nan, I got up at 7.30 had a cup of tea, breakfast and my meds , got my clothes out ready for a shower and I felt so tired I couldnt face it so I went back to bed and slept until 11. I dont feel much better now so will probably have to go back to bed again soon.

Welcome helibee, you dont need to ask just pop in whenever you can. Its great your husband is so supportive and loving, any chronic illness can put a huge strain on relationships. How old is your baby son ? My kids are all grown up now but I look after my toddler grandchildren sometimes and it knocks me for 6 every time, so I am in awe of anyone who has Fibro and a baby or very young child.
Hope everyone is having a good day

LameWolf

Afternoon all, I hope everyone’s having as good a day as possible.

Meemee sorry to hear that your Black Dog is bothering you – we’d better round up the Black Dog Eviction Squad, I think.

Raeh yes, I’m the same with sun exposure. I used to be able to sit out in the sun for ages, nowadays, if I just go to put the washing out without a hat on, I feel ‘orribly sick within 5 minutes.

S/e you can have our snow. I’m sick and tired of it. I get a headache just looking at it.

Suep Flippin’ doctors, I’ve had that sort of trouble. Either they didn’t do a script for everything I asked for, or they forgot to sign it, all sorts of things like that. I always re-order my meds well to time, so that I don’t ever run out, as I’ve had occasions when the pharmacy has been out of stock, and of course I can only get into town when Mr LW is around to come with me.
Take it easy til you feel better, OK?

Helibee Hello and welcome! I'm also blessed with a very supportive husband - makes all the difference!

I'm having a bit of a rough day today - had a beastly 'orrible nightmare last night, and it's left me a bit shaken up and jittery. Still, Mr LW has volunteered to cook dinner tonight (his speciality - egg'n'chips) so that'll be nice.