Fibromyalgia

Careful_with_that_Axe

I can't keep up!!!

I have a smallish sewing machine that I've never taken out of the box and would love to make simple things like a bedcover and curtains for two huge windows in living room.
I would use my mobile for appointments, but its a miracle if I can find it and even more so if I remember to charge it.
I don't think I have outlook on the puter, but I will investigate as I always used to use that for reminders at work.
My hair has been doing a wonderful medusa impression today, so I must straighten in so I don't scare children and horses.
BZ, have you thought of suggesting your OH gets in touch with ACAS? I am sure they would be able to help and advise.
Got a pack of cooling Migrane soother packs in pound shop today, so may try these out on headache. I think they are the cooling type you use for kids.
Later dudes
Jo
x

bigzippy

somebody_else wrote: »

Oh, are you getting married zippy? I didn't realise - you should have said.

Seriously for a second - what kind of thing did you have in mind?

It must keep slipping my mind
Well, we've booked the venue, the church, been offered a florist, cake makers, musician(s), bridesmaids and groomsmen will be paying for their own (or at least their parentals will ) outfits, I've bought the jewellry... the caterer comes with the venue and are both council owned so although lovely are in budget :T, I have the colour scheme, the bridesmaids (colour co-ordinated) fake flowers, confetti maker (butterfly themed, if you hadn't guessed), made little wire flowers... Where would you like me to start s/e?

bigzippy

Careful_with_that_Axe wrote: »

I can't keep up!!!

I have a smallish sewing machine that I've never taken out of the box and would love to make simple things like a bedcover and curtains for two huge windows in living room.
I would use my mobile for appointments, but its a miracle if I can find it and even more so if I remember to charge it.
I don't think I have outlook on the puter, but I will investigate as I always used to use that for reminders at work.
My hair has been doing a wonderful medusa impression today, so I must straighten in so I don't scare children and horses.
BZ, have you thought of suggesting your OH gets in touch with ACAS? I am sure they would be able to help and advise.
Got a pack of cooling Migrane soother packs in pound shop today, so may try these out on headache. I think they are the cooling type you use for kids.
Later dudes
Jo
x

Getting busier lately, isn't it!
I'm sure once you get over the initial terror of starting the task the curtains would come along quite nicely... I have faith
Mobile phone is my lifeline and wouldn't be without it, I do forget that it's not the same for everyone :rolleyes:
My hair is the same. Didn't have enough time to straighten it on monday before I went out so just put it up in a french plait, that hasn't been taken out since :eek: I haev no shame.
I will suggest ACAS tomorrow but tbh he has no time to contact them really (stupid pub hours)
Those cooler packs you got - do they also go in the mic?

somebody_else

bigzippy wrote: »

It must keep slipping my mind
Well, we've booked the venue, the church, been offered a florist, cake makers, musician(s), bridesmaids and groomsmen will be paying for their own (or at least their parentals will ) outfits, I've bought the jewellry... the caterer comes with the venue and are both council owned so although lovely are in budget :T, I have the colour scheme, the bridesmaids (colour co-ordinated) fake flowers, confetti maker (butterfly themed, if you hadn't guessed), made little wire flowers... Where would you like me to start s/e?

But you haven't got the bolero sorted. How long 'til the big day? Just wondering if I've got a pattern that would suit...

suep

I had an appointment with my Rheumi this morning. Most app are taken up with him talking about his family and saying carry on with what your doing type things :rolleyes: but today I saw his lovely registrar who informed me he had been to a conference in America and heard a talk by a specialist on Fibromyalgia! Apparently the specialist said a cocktail of Amitriptiline,Lyrica and Tramadol is the best for Fibro pain, Im on the first 2 but not the last one so Im going to ask my gp to put me on it instead of co-codomol which is useless. He also gave me a steriod jab into my sacroilliac joint, Id told him Id had one before which hadnt helped but he said he wanted to try so I had one and this time it has eased the pain a bit, it's still a bit sore, but better than it was. He said the joint is hard to find and the physio who did the jab last time could have easily missed it.

So I might not have come away with a cure, but it was so nice to talk to someone who was interested in what I had to say and wanted to help, its made all the difference and I feel much more positive than I usually do after an app.
Hope everyone else has had a good day
sue

bigzippy

somebody_else wrote: »

But you haven't got the bolero sorted. How long 'til the big day? Just wondering if I've got a pattern that would suit...

Haven't got any of the actual outfits sorted. I need a local dressmaker. I've read (on here) that it's cheaper to get a dressmaker to make up the dress of your dreams than to buy it from the bridal shops. I know what kind of thing I want but haven't been shopping yet

bigzippy

suep wrote: »

I had an appointment with my Rheumi this morning. Most app are taken up with him talking about his family and saying carry on with what your doing type things :rolleyes: but today I saw his lovely registrar who informed me he had been to a conference in America and heard a talk by a specialist on Fibromyalgia! Apparently the specialist said a cocktail of Amitriptiline,Lyrica and Tramadol is the best for Fibro pain, Im on the first 2 but not the last one so Im going to ask my gp to put me on it instead of co-codomol which is useless. He also gave me a steriod jab into my sacroilliac joint, Id told him Id had one before which hadnt helped but he said he wanted to try so I had one and this time it has eased the pain a bit, it's still a bit sore, but better than it was. He said the joint is hard to find and the physio who did the jab last time could have easily missed it.

I've found that (since my vice-like headache) cocodamol and tramadol works wonders - you feel really spacey but completely numb! :rolleyes:
Well, as of friday I will be on Ami and pregabalin (lyrica) and I have tramadol so I could always test it out

Suep wrote:

So I might not have come away with a cure, but it was so nice to talk to someone who was interested in what I had to say and wanted to help, its made all the difference and I feel much more positive than I usually do after an app.
Hope everyone else has had a good day
sue

I'll bet! It's so frustrating when you go out of your way to go to a long awaited appointment and come away feeling it was a complete waste of time.. which unfortunately is more often than not :mad:

raeh

hello everyone i think i may have to think about giving up work .... not because of the fms but because i cant keep up with the chat in here if im not in til late actually i wasnt at work at all today but i havent been functioning properly all day so didnt even try to find the on button on the laptop :rotfl:

suep thats really interesting as my gp always just keeps trying all those meds in ones and never mentions trying combinations of them. I think its time to request to see the gp that first recognised the fms rather than all the other things they blamed the symptoms on.

bigzippy you seem very organised for the wedding my friend did an online diary of photos on photobucket so we could see all the things she had bought and made have you ordered your dress?

CwtA i have been out in my slippers so many times you wouldnt believe it its because they are so comfy and i just forget.

im forgetting who to reply to now and it takes ages to scroll back and check

i used to knit, crochet and cross stitch but then my arms and hands were very bad i gave up and really when im feeling ok now i should start again. i could do with a bolero cardi for work for when its chilly :cool:
i have the sewing machine and the other day i made a dog bed as when i looked they were a disgusting amount of money [some nearly £100] so i used an old double quilt folded into 3 and made a simple envelope opening cover for it i was very pleased with myself except the great lump hasnt been near it and its the teeny kitten laid on it most of the time with the other cat [bernard :rolleyes: ] iv also made curtains and quite a few dressing up outfits for ds2 and outfits for plays at school. Im not arty in the way you are though bz thats a talent

well i took the pregabalin [is that right???] for the first time last night and decided that when i felt tired id go to bed, it totally knocked me out , evensuch a low dose but then im really small and all meds seem to affect me much more than we expect!! i dont think it stopped any pain but i think i was so comatose i didnt notice and i didnt evn wake to go to the loo!! this morning though i felt all dizzy and when i moved my head my eyes and balance didnt keep up and i kept knocking into walls, it didnt last too long though so il see how it goes tonight

i apologise if iv forgotten anything important and also if there have been another 3 pages of posts whilst i took ages to type this out

raeh

Quote:
Originally Posted by Suep
So I might not have come away with a cure, but it was so nice to talk to someone who was interested in what I had to say and wanted to help, its made all the difference and I feel much more positive than I usually do after an app.
Hope everyone else has had a good day
sue

bigzippy wrote:

I'll bet! It's so frustrating when you go out of your way to go to a long awaited appointment and come away feeling it was a complete waste of time.. which unfortunately is more often than not :mad:

i totally agree as thats just how i felt on monday it was just as if she didnt want to hear any of my complaints again and just said lets try this, gave me a script and sent me on my way

bigzippy

raeh wrote: »

hello everyone i think i may have to think about giving up work .... not because of the fms but because i cant keep up with the chat in here if im not in til late actually i wasnt at work at all today but i havent been functioning properly all day so didnt even try to find the on button on the laptop :rotfl:

:rotfl: Understandable

raeh wrote: »

bigzippy you seem very organised for the wedding my friend did an online diary of photos on photobucket so we could see all the things she had bought and made have you ordered your dress?

Lol, I don't know about that. At the moment I'm really worried that we're going to have to take money out of the (already tight) wedding budget to cope with the car dramas (esp as OHs work are trying to get out of paying him the money he's owed :mad:) so I don't really want to do any of the major spends... which I really should get onto I spose.
As for the photos - is that a hint?

raeh wrote: »

CwtA i have been out in my slippers so many times you wouldnt believe it its because they are so comfy and i just forget.

My faux uggs are usually my slippers and my shoes... so I dont' have to worry about what I'm wearing them for

raeh wrote: »

i used to knit, crochet and cross stitch but then my arms and hands were very bad i gave up and really when im feeling ok now i should start again. i could do with a bolero cardi for work for when its chilly :cool:

I spent ages looking for warm that was "nice enough" to go out in etc
I don't know why I'm so bothered, as it's so rare I go anywhere I need to look "nice enough" for! :rotfl:

raeh wrote: »

i was very pleased with myself except the great lump hasnt been near it and its the teeny kitten laid on it most of the time with the other cat [bernard :rolleyes: ] iv also made curtains and quite a few dressing up outfits for ds2 and outfits for plays at school. Im not arty in the way you are though bz thats a talent

Ha, that's cats for you! :rotfl:
Thanks for the compliment. I dunno about that though, it doesn't seem to be particularly useful or making me any money! :rolleyes:

raeh wrote: »

well i took the pregabalin [is that right???] for the first time last night and decided that when i felt tired id go to bed, it totally knocked me out , evensuch a low dose but then im really small and all meds seem to affect me much more than we expect!! i dont think it stopped any pain but i think i was so comatose i didnt notice and i didnt evn wake to go to the loo!! this morning though i felt all dizzy and when i moved my head my eyes and balance didnt keep up and i kept knocking into walls, it didnt last too long though so il see how it goes tonight

I kinda hope it has that effect on me when I get to take it on Friday...:o