Fibromyalgia

Careful_with_that_Axe

#14 LittleTinker vbmenu_register("postmenu_17965265", true);
Fantastically Fervent MoneySaving Super Fan





I really do think that the alcoholism, the depression, the Fibromyalgia and all such sites should be removed then.....because they are all full of medical advice.


LittleTinker

suep

LameWolf wrote: »

I did a quick Google and found this
http://www.smith-western.co.uk/
Would they be the people? Can't see a "contact us" button though.

Thanks LW yes thats them, its the Chichester branch, I couldnt see a contact us button either but the address is there so I will write to the manager.

suep

Careful_with_that_Axe wrote: »

suep, there are 3 bags. One for £5 with £15 pounds worth of stuff in, one for £10 with £35 and one for £15 with £50 worth in. Just contain a variety of stuff and I was given the choice of either bath stuff or shower stuff.

Have a look on the website - www.lush.co.uk
to see if you fancy one or more! They're available til 1st, so can easily get you whatever you want. The shop is only 5 mins away.

Needless to say, I got a £15 one *grin*.

I've got about 3 parcels to send to various people this week, so will be at Post Office too, so it's absolutely no trouble at all.

.

Well if your sure thats ok I'll have whatever you can afford, I wont be able to get a cheque to you quick enough and dont want to leave you skint, I'll pm my address to you but dont send it until you can tell me the postage and wait until you have cashed the cheque, I know Im honest and Unity will vouch for me but you dont know that Ill pm you my address now
sue

suep

Welcome CrystalGecko and Nephasu

Crystalgecko I've been worried about losing incapacity benefit too, Im not sure if its correct but I read recently in a Fibro magazine I get from my local support group that its only new clainments that have to go through the new application process, people on permenent IC will go on as normal, I will try and find the mag tomorrow then I can let you know for sure what it said, It stopped me worrying anyway. Nephasu is right, get the citizins advice people to help you fill the DLA form in, they have people trained to do it, they helped me get it. Also dont give in, just keep appealing and re-applying until you get something, my friend did this and finally got it after applying 5 times.
I hope your rash clears up soon,
sue

LittleTinker

Careful_with_that_Axe wrote: »

#14 LittleTinker vbmenu_register("postmenu_17965265", true);
Fantastically Fervent MoneySaving Super Fan





I really do think that the alcoholism, the depression, the Fibromyalgia and all such sites should be removed then.....because they are all full of medical advice.


LittleTinker

Which looks like a reply to something......and I have resigned to the argument that medical advice isnt allowed.

That Post looks as though it is a continuation of me trying to say that all these threads NEED medical advice within them as that is the nature of the subject.

Edit....I have found that thread.....this is what I say next

"Surely though, to have such a stringent rule on a board that deals with health, someone should read it all.

You cant rely on other people to do the work for you.....(not you personally) ....because its not really abuse, is it?

It really does boil down to the fact that there is a big difference in medical advice and medical discussion.....and noone is bothered to read the threads to see the difference."

I am saying that you cannot have proper discussion without saying certain things.....and MSE BG's are removing posts that are not even medical advise....how can the thread exist at all without saying anything medical!??

sharon59

Welcome to our 3 newcomers-really tired and have got to go to bed so will say proper hellos to you tomorrow!
hugs to all.

raeh

hi all and hello new people

im not posting today, one because its been a horrendously long day and my head isnt working. I went to lush after work got a bag each for me and my sis then both kids had friends over for tea then i had a meeting at ds1 school about his gcse options [scary!! :eek: ] so now im totally wacked and cant think of anything but bed
and 2 because i dont want to post when things might turn picky like other threads all seem to be now i only post in threads that directly affect me and i wish other people would do the same!

i hope everyone is as well as can be and that you all have a peaceful night xx

Careful_with_that_Axe

sharon, I hope your leg is doing better. When's your docs appointment? Sleep safe and well.

Careful_with_that_Axe

Raeh, I was beginning to think you were still looking for a parking space!
Have a good and restful night.
x

Ditzy_2

Hi all - I've lurked (albeit badly!) with this thread but feel I should say hi my name is Ditzy and I am a fellow FM'er!

Diagnosed 9 years ago and was really tough in the beginning as most of the GP's I came across accused me of being a hypochondriac and 'it all being in my head' all true. Therefore I was very reluctant to get help and got on with things until a couple of years ago severe symptoms attacked me and took me a further year to seek help. Finally convinced another doctor to reassess me - but that was after in near tears stating that i was giving my daughter cereal for her dinners as I had absolutely no energy in cooking a meal. Cor what have you got to do to get help! This last 'attack' has lasted now 2 years (brought on by stress - long story)

I am still currently working and have had to go and get reassessed so to speak as other symptoms had freaked me out and needed further investigation. luckily I have recently come across a fab Rhumey and Physio. These were (get ready!) -
Dexterity problems clumsy as anything! Waiting for ultrasound to check things out.
Memory and disorientation - overwhelming feeling of not knowing where I am in familiar places - bloomin scary!
Walking problems (unsteady)
Spelling (as other comments has been made - now feel better that it is not just me!)
Panic attacks - don't do queues!!
Just used to get pains in legs - but now has emerged as severe neck pain to a point where I can't turn my head. (had a fab physio lady taught me some exercises - just got to grit my teeth and get to do them!)
Severe fatigue - on the point of being narcoleptic! Sit down and lights out.

Anyway boring myself but is just the tip of it - just wanna share as me mates go 'o dear!' but not much else. Been tested for everything else under the sun - MS, MN, Hughes, Thyroid, everything! Thankfully all clear on that score.

As I said - still working and have got meeting with HR this week - question - does anybody know if Fibro covered by the DDA (disability act)? Fighting for over 8 mths for a flippin' wrist support for my keyboard work and now I am gonna get tough! (if we are not already eh!?)

Just started on Amitriptyline and I know others have tried - seemed to feel like a miracle cure the first week now I am getting sluggish again and other symptoms are creeping in - currently 10mg do I need to up? Is it worth it? May be too early to know only on them for 3 weeks.

Better stop there or I will hog the whole page (moi? no!)

As you may have noticed I have humour - and to be honest the only thing that has me through it all (other than me little gurl)

Thanks for getting this far!

Gentle hugs

:A