Fibromyalgia

Careful_with_that_Axe

sharon, you do seem a little blue. It happens to us - life can be tough sometimes and particularly so at this time of year. Do you, perhaps, suffer from SAD at all?
Even if you don't, do try to spend sometime outside - wrapping up against the cold of course - and take in as much daytime light as possible. It can't do any harm and may make you feel a little better.
Unity, we women invented guilt. I'm convinced of it! This and the frustration at the limitations placed on us feed each other unfortunately.
But what's the fun in just laying down and accepting our lot? If the price of fighting is some frustration, I would rather have that.
Gawd - someone stop me! I've found one of my soapboxes and was clambering up on it!

I didn't even get out of house today until 5.30pm. The upside of this was that I got some lovely whoopsied items of food. It would have been rude not to buy the Raspberry Royal with cream on it - it's one of the 5 a day, right?! I did get two in the end though

suep

I couldn't believe it today when I woke up with a severe sore throat, I only started to get over the flu a few days ago, I went to the chemist and stocked up with lozengers and got some echinacea too, up until last month I've rarely had a cold the last few years, I must be really run down I've ardly left the house all week so I cant think where I've caught it from.

I did get to visit my Dad yesterday, I hope I havn't passed any germs onto him, if he gets ill he cant have the chemo. He's doing really well, although he's had a few side effects, nothing he cant handle, he is so positive his cancer nurse said she wishes she could bottle it for the other patients.

CWTA - I'll ask him what type he's taking next time I speak to him, he said he has a few side effects, fatigue, constipation and kidney pain for the first 5 days after the chemo, then he's ok for a couple of days until it starts again, he swears by a can of guinness a night lol.

Unity - When I got back from Dads oH had fixed the carpet cleaner, it was something to do with a filter, however he then let the dog walk in over it all muddy after her walk in the afternoon and now it needs doing again, Ive said he can do it at the weekend, Ive done my bit lol.

Sharon - I know how you feel about not being able to manage getting around the shops, since being laid up with the flu Im weaker than ever and havn't been near the town since before xmas, I still cant stand for more than a few mins and I wish so much I could get to the sales. At least it's saving me some money though.

BZ - Im so sorry about the house, it sounds like you tried everything and I cant understand why the owners turned you down. I hope something even better comes along very soon, or that the owner changes her mind.

Krystal - D - Im sorry you are having to go through all this, believe me most of us here know what its like trying to get a dx. I might well be wrong but Fibro is usually constant pain although it can change in severity. I think the best thing is to ask your gp for a referal to a Rheumatologist, they are better at getting to the bottom of these things, good luck.
I hope everyones ok
sue

bigzippy

Thanks everyone for your thoughts etc....and I have GREAT NEWS!

After some masterful smoothtalking (and the offer of a 3months-worth of rent deposit, plus guarantor) the owner has agreed to have just me on the tenancy agreement for the first 6 months, then we'll put OH on the lease and get our extra 2 months-worth back, just in time for the wedding

so WOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!! :T :beer: :j

I have til the end of the month to pack up now...oh and get over my cold/infection/thing first :rolleyes:

WOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!

Magenta

bigzippy wrote: »

Thanks everyone for your thoughts etc....and I have GREAT NEWS!

After some masterful smoothtalking (and the offer of a 3months-worth of rent deposit, plus guarantor) the owner has agreed to have just me on the tenancy agreement for the first 6 months, then we'll put OH on the lease and get our extra 2 months-worth back, just in time for the wedding

so WOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!! :T :beer: :j

I have til the end of the month to pack up now...oh and get over my cold/infection/thing fir

WOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!

WELL DONE, I am so pleased for you both.
When are you getting married?

Careful_with_that_Axe

BZ, I am so, so chuffed for you!! How wonderful.
You can now get excited about packing as you are looking forward to living somewhere better. Fabulous news!
Time to call on your friends and have a "moving out" and "moving in" party

Anything I was going to say has gone right out of my head now!
x

krystal-divination

poohbear59 wrote: »

Hi Torbruk, The fibro group I belong to has decided that we are all princesses (sorry men, you must be princes) like the princess and the pea. Our beds are always uncomfortable no matter which mattresses we buy. I can find discomfort from a grain of sand in the bed, DH is a builder and although he showers after work each day, bits do still migrate into the bed!!

My chiro and physio have said not to buy memory foam as they tend to encourage you to stay stuck in one position and that makes you sieze up even more in the morning.

I hope all you princesss ans princes have a good Sunday.

Morning everyone,

i popped on yesterday read some of the thread and left a message about my problems.

i am interested to see the bed time sleep problems, for years i have had painfull wakefull sleeps and the doctor doesn't know why.

most nights are dreadfull, waking in pain turning.
i am lucky if i get 2 good night sleeps a week, and we changed to memory foam it was brill but im sad to say im back to the pain again now, maybe like you say im staying in same position all night ?

hope you dont mind me chipping in as docs have not diagnosed me but my symptons seems to match this condition so time will tell.

bigzippy

Magenta wrote: »

WELL DONE, I am so pleased for you both.
When are you getting married?

Thanks Magenta 13th September this year :j:T:j:T WOOOOOOO!!

Thanks Auntie Axe :beer: I've already roped in bro & SIL, and shockingly enough, old landlady has offered to help! :eek: I think it's just an excuse to have a nosey, but hey A few other friends have offered too (although, funnily enough, not the one whining about wanting to be my MOH! :rolleyes:). Am VERY excited!!

raeh

bz thats WONDERFUL !! :T :j :T :j :T i found myself sat thinking about you this morning and trying to think of suggestions dont tire yourself out now though with the packing [yeah right i know...] it really is excellent to come on and read that onward to the wedding of the year now

sue thats great news about your dad, it must help him to be positive as well?? shame you cant bottle people like that

unity i have a masters degree in guilt :rolleyes: and im sure its tattooed somewhere on me :rotfl: the second i have time when i dont feel too bad i convince myself the diagnosis must have been wrong [ yeah after 8 years!!] i then go and do too much and am laid up for a couple of of days! i do try and pace myself most of the time but recently iv had this terrible anger at myself that i CANT do everything i want to and its made me feel really low iv been grumpy at work and grumpy at home, thank goodness for mse to take my mind of it! I think its just the first week back to work and i have the terrible burning pain all over and bad sleeping because of the pain.

sharon i hope you are feeling a little brighter xxx i think we are all in need of a little sunshine to make us feel better? somehow things never feel as bad for me when the suns out

we have just been out shopping for a blind for ds1 's room as i think he may be able to actually manage that as curtains appear to be too difficult for a 14 year old to master!! :cool: and i talked dh to taking me to the next clearance shop and i got some fab bargains but now [and we were only out a couple of hours and in the car for quite a bit of it] im so tired my eyes ar eburning and im falling asleep sat here so i think i may have a nap as dh gone to the match and both boys are on their consoles so the house is peaceful the dog is asleep at the side of me the cat asleep above my shoulder on the back of the sofa and the kitten is curled up under my arm i will now join them

krystal check out the pressure points on the site as sharon said as thats the main thing the gp was interested in when she first mentioned fibro to me [i had never heard of it before that but the literature she gave me to read was like reading about myself, i sat and cried when i read it as i thought i was just going mad] but i dont remember the pain coming and going for me it was there all the time , the severity changes but i have to say i now cant really remember a time when i dont have pain in my body

i hope everyone else i havent said anything to is ok and not too cold today, its freezing and we have a white frosty cover on everything here still!

ok time for a nap before my eyes give up on me see you later x

bigzippy

Hi Krystal-D :wave:
I'm very cautious about the whole internet diagnosis thing, although I do understand why so many resort to it. I wouldn't like to comment one way or the other about whether I did/didn't think you might have it, but if you're concerned or intrigued you should make an appointment with your GP and ask to see a specialist with an interest in Fibro - a Rhuematologist, or Endocrinologist for example...? I can more than understand the desperation to get a diagnosis - I was haning around for 18months (having lost my job and social life to my conditions with no real medical explaination) before they got close to one...well you could argue it had been 10 years actually...:rolleyes:

YorkiePud_3

Hi fellow copers ... *S* ...

Just wanted to tell you about a cream my new doctor (doesn't it always take a new one to want to at least TRY something to help you?!) prescribed for me to try ...

It apparently contains the active ingredient that is in chilli peppers so you need to put it on with gloves or, as I have done, by putting the cream on toilet paper and rubbing it on that way.

After about an hour, you don't think it is doing anything, then all of a sudden you get this really warming sensation, then it gets hot but not so's it hurts.

I've been having those dreadful back spasms/hip spasms this last week and it has been wonderful (on top of my meds) to put this cream on. Just that warming has really eased things and to be honest with you, the spasms are hardly noticeable today. They've lasted about 4 days whereas usually they last for a few weeks before bating and going, so I am sure the cream has done something.

You put it on 4 times a day, but it says even a week or two later, you might get a warming sensation - weird eh?! ... oh, and at first, I was getting a hot sensation in my mouth (only lasted a few minutes though) so it proved it was really sinking in!
That sounds daft, having re read that, but you know what I mean!

Anyway, if you fancy asking your doc for some to try, it is called CAPSAICIN cream and it is 0.075%, the manufacturer is Cephalon and it is 45g tube.

I can definitely say that while it didn't take it off completely, it did help, so it's worth a shot!