Fibromyalgia

Careful_with_that_Axe

Unity wrote: »

I had been sleepwalking again and taken a tumble but hadn't really woken up.

:eek: Blimey, Unity! Your DH will have to start tying you to the bed soon Have you always done this?!

As with the pain etc, it's somehow comforting to know that you're not alone with the dreams about a relative who has passed on. Horrible isn't it.

s/e, I use any combination of Tramadol, Diclofenac, Co-Codamol, Co-Dydramol and Paracetamol. Oh and the amy.
Yes, I am careful about what I combine with what. I've also got the steroids, which help.
I'm Ok with these - I'm never completely pain free, but I don't think any of us are.
I think I've tried all that's going by now and have been offered Morphine, but I like to think that there's something else available as a last port of call iykwim. I can't bear the thought of being on Morphine and still having pain, knowing that there's nothing stronger available.

I get along OK most of the time - the one thing that really gets to me is the constant headaches at the end of the day, but they're a combination of muscle tenseness, arthritis in neck and the meds, I'm sure.
OK, I haven't even moved from the sofa yet, so I must get going.
Later my lovelies.

LameWolf

Unity many thanks for the URL for Skara Brae. I have also forwarded it to Mr LW for him to look at during his coffee break at work.

S/e daft though it may seem, I'd never have thought of trying chewing gum for dry mouth. Mr LW always has some as he says it helps him concentrate on the 30 mile drive to work, so I'll have to see if I can filch some of it.

I'm another one that has unpleasant dreams about relatives who have passed on. I keep having this nightmare that my father is still alive (I know that sounds bad, but believe me, it does constitute a nightmare) and wake up convinced that he's going to find out where I live and come and get me.

Careful_with_that_Axe

Here was me thinking I had sorted out a nice dinner for the next few days with some mince from the freezer and using a whoopsied macaroni cheese for the topping - a strange twist in Cottage pie.
Have taken it out of the oven and the oily slick on the top would do the Exxon Valdize proud.
I'm now going to have to let it all cool, scrape the fat and pasta off and try to find some potatoes from somewhere *sigh*

sharon59

you made me laugh-and reminded me of the time l took "stewed plums" out made the crumble mixture -then discovered ld defrost ratatouille!!!does not really go with sweet crumble topping!hope you found some potatoes!

bigzippy

Hi guys :wave:

Been out looking at a couple of houses today and generally pandering to MIL2B so not had time to post (but have been keeping an eye on you!).

OH just sent me this link, it's about CFS/ME and a possible link between childhood trauma, cortisol levels and the illness. Thought it might be interesting to those of you who have it (like me). I have to say that there are (to me) gaping holes in the research and they conclusions they draw, but you might find it interesting...? Only click if you're not easily insensed by inconclusive studies

Going looking at another house tomorrow and then making up our minds about the house we've seen today (and managed to barter them down £50pcm on! :T Yay me! ) that we're quietly (yeah right) excited about. I should be on tomorrow night after all the excitement though

somebody_else

Morning folks (just)

I've just had my letter back from DLA (they haven't hung about). I've been awarded HRM and LRC for an indefinite period. Thanks to all that have been supportive during this rather stressful time.

Sorry to post and dash, but I've got bread under the grill and something's burning.

Careful_with_that_Axe

s/e, that's fabulous news. Do you feel that the care component is OK for you?
The relief at being awarded for an indefinite period must be immense - no more form filling for a while. I strongly suspect that your diary will have had a major impact on the award. You can't give any more evidence on how you are affected that you did with this.
Well done.

BZ, fingers crossed that you come back all excited having decided somewhere is right for you.

Dammit - can't get my brain to put words properly.

somebody_else

Careful_with_that_Axe wrote: »

s/e, that's fabulous news. Do you feel that the care component is OK for you?
The relief at being awarded for an indefinite period must be immense - no more form filling for a while. I strongly suspect that your diary will have had a major impact on the award. You can't give any more evidence on how you are affected that you did with this.
Well done.

In all honesty Jo, I was fully expecting to lose the care component this time round as I can cook a meal a couple of times a week, and since I got the dishwasher I've had a bit more energy for other things.

The new award letters explain in more detail why the decisions have been made, and I can't argue with their reasoning.

Relief? I was shaking as I opened the letter (I'd had the sense to sit down first) and nearly burst into tears when I'd read it. Huges relief, but also a bit of a shock - indefinite award implies they don't think I'm going to get better any time soon... But it also means I can stop keeping that bluddy diary for a while. I hated typing it up each day - it could also have contributed to my low mood, it's not fun seeing in writing how little you've managed to do, how much pain you're in, etc.

Now, how's your claim going?

somebody_else

bigzippy wrote: »

Hi guys :wave:
Going looking at another house tomorrow and then making up our minds about the house we've seen today (and managed to barter them down £50pcm on! :T Yay me! ) that we're quietly (yeah right) excited about. I should be on tomorrow night after all the excitement though

Good luck, zippy - I'll keep me fingers crossed for you.

Careful_with_that_Axe

somebody_else wrote: »

Relief? I was shaking as I opened the letter (I'd had the sense to sit down first) and nearly burst into tears when I'd read it. Huges relief, but also a bit of a shock - indefinite award implies they don't think I'm going to get better any time soon... But it also means I can stop keeping that bluddy diary for a while. I hated typing it up each day - it could also have contributed to my low mood, it's not fun seeing in writing how little you've managed to do, how much pain you're in, etc.


Totally understand. We've spoken before about how filling in the form gives you the stark reality of the situation. I still like to believe that we may not get totally "well", but we may be better - small difference that helps my mindset. I sort of came to terms with this a few years ago when my GP signed me off as not being fit enough for work for "the foreseeable future", also when I got my blue badge. It's also difficult as it mirrors my Mum's experience, as she had the same medical probs. I think low moods have a homing instinct and immediately grasp on something that will feed them. Nastly little beggers, eh. At least this is something that you can tick off the worry list and let your shoulders relax a bit from being up round your ears.
Now, how's your claim going?
Errrr, next question?
You've nudged me at just the right time and I've put a call into Dial this morning for some help.

Big hugs to you.
x