Fibromyalgia

RoxsiScotland

oh and axe if you want to pm me some details about the surveys ect that would be fab

natashasprite

Mystery shopping work is great as you are in control...the only huge problem I have is I have no memory with the fibro BRAIN FOG!

Careful_with_that_Axe

Natasha, you fill in the questionnaire almost immediately, which is the only reason I manage to do it!

Sharon, I hope you feel an improvement soon.

Roxsi, PM on it's way to you as soon as I've copied links etc.

natashasprite

Careful_with_that_Axe wrote: »

Natasha, you fill in the questionnaire almost immediately, which is the only reason I manage to do it!

This doesnt help me , I like simple mystery shops where your scenario matches your life as much as possible...I'm ok remembering names but numbers I will forget almost instantly

suep

Unity wrote: »

Oh Pamaris - did no one mention - chocolate is one of the worst things you can have when you've got fibro :eek::eek::eek:.

That goes for you as well Suep and frankly you should know better :rolleyes:.

Love,
Unity







Only joking of course :rotfl::rotfl::rotfl:.

You had me going there for a minute Unity, although even if it was true Id ignore the advice, Ive had to give up too many pleasures in life already, I wont give up my chocolate :rotfl:
sue

purplecatlover

i feel like iv ebeen rushing around like mad all day, i havent been really, just packed and spent afternoon at hairdressers then remembered all the stuff i forgot to pack, bit by bit every time i have sat down. glad i remembered the passport though, if id gotten half way to london then remembered i would have been very cross.

mummy sorry cab were useless, glad you found the other place though and they are going to be helpful. cab i think depends on how lucky you are in your area, some are great, many are not.

roxi, sorry about your partner, good luck with the appointment tomorrow.

im so behind the times it took me a while to work out who GB was lol, i keep forgetting tony blair is no more and if you asked me to name the current prime minister out of the blue i couldnt do it.

Unity

mummyof3boys wrote: »

Just a quick question for you all , O/H went to pain clinic the other night for the first time they have decided that because he has tried most treatments for the FMS ( they either dont work or have terrible side effects) the next course of treatment they want to try is a Lignocaine IV infusion , has anybody had one of these? do they work and are there any side affects, the other thing they are going to try is accupuncture!! well you can but hope that one of these is going to help.

Hi,

I had Procaine Infusions, every three months for around 12 years, then they were stopped because the rheumatology professor who promoted them retired. Unfortunately I had already had to give them up as I had anaphylactic shock after an infusion. The doctors think it wasn't so much the Procaine I was allergic to, as some additive in the mix.

Procaine is similar to Lignacaine, they are both used as local anaesthetics but there was only one person in the group who had this, because he had done his own research and (from what I heard) insisted. The professor wasn't an advocate of Lignacaine, I did ask him once and he said that there were more problems with it (I think) to do with blood pressure.

The way the Procaine was administered was by an IV drip in a very diluted solution 4% mixed with saline in a 500ml bottle. I used to attend a day unit for three consecutive days and and have a bottle infusion each day. It was very popular, due to the lack of side-effects and there was a great hue and cry when it was discontinued, as most people thought it was probably down to cost cutting although of course the PCT denied this:rolleyes:.

If there's anything else you need to know - just ask and if I can answer - I will.

Careful_with_that_Axe

You off on hols already then pcl? If so, have a wonderful time and I hope you come back refreshed.

purplecatlover

heading to my sisters tomorrow, fly on sunday afternoon some time, i think. less traffic on a friday morning than a sat hence im going down tomorrow, but will be around til sunday morning.

its snuck up on me, i wasnt paying attention last weekend when i was reminded it was only a week.

bigzippy

Careful_with_that_Axe wrote: »

bz has talked a lot of sense (:eek: ). Even I may take a little of her advice as it's bluddy sound

Good golly! I was nearly bowled over then guys!