Fibromyalgia

suep

[quote=Careful with that Axe;1638875

suep I always think of your name as Soup! I have given up on mutli-quoting too. I read the instructions and they just don't make sense to my poor addled brain.[/quote]

So do I :rotfl: It's better than my maiden name which started with T

It used to go well when I was on the old style forum with all the soup making :rolleyes:
sue

Careful_with_that_Axe

Sorry to hear that Sharon. It's difficult to know what to do in these situations isn't it. I hope you manage to find some relief.

somebody_else

suep wrote: »

So do I :rotfl: It's better than my maiden name which started with T

Oh dear. That nearly made me choke on my drink.

somebody_else

Careful_with_that_Axe wrote: »

p.s. Did see a CBT type person once and he told me he couldn't help me! At the time he said he wasn't suprised that I was depressed and it was a totally plausible reaction to what was in my life at the time.

I actually refused to go for CBT on the grounds that I was physically ill and no amount of telling me that it was all in my mind and all I had to do was ignore the symptoms was going to make me better. I'd tried the 'ignore it and it'll go away' more than once. I've actually lost 3 jobs over the years because I've ignored my symptoms and run myself into the ground. [You'd think she'd have learned after the second one, wouldn't you? Ed.]

Strangely, the CBT nurse I was talking to agreed that it probably wouldn't help me, but I had known her for quite some time before we had the conversation.

Careful_with_that_Axe

Really, really pees me off when people think "Oh, she'll get over it". I think they totally overlook the fact that we've all had to come to terms with the fact that some of our problems are for life. Then they suggest that you put a certain crystal in your left shoe for 10 minutes out of every hour and, hey, probem solved.
Sorry, am a bit blank tonight, so can't focus on positive stuff. It's so much easier to see the bad side sometimes, however you try not to.

suep

sharon59 wrote: »

just found by accident a really informative site detailing fibro symptoms better than l have seen before.Its american annd advertises cures adverts but well worth a look.my cystitis is back and was why l was looking on net to see if it was fibro symptom.
www.fibromyalgiasymptoms.com

Thanks for the link Sharon, I've saved it in my faves and will have a proper look in a bit.

Have you tried drinking a glass of water with 1/2 tsp bicarb soda in a couple of times a day ? it helps with the burning pain a bit, also drink loads of water to flush the infection out. I was getting it so often at one point my dr gave me a/b on repeat, that was great until she left. Then when I first saw Uro he put me on 1 a/b every day which I took for about a year when it stopped working, but it might work better for you, I seem to be intolerant to most meds.
sue

raeh

Havent got the brain capacity tonight to answer anyone as the fog has completely eaten my brain!! the brain fog got me so badly i have forgotten til now to take my tablets so they wont work quickly enough for me to get to sleep easily :rolleyes:

sharon i hope the cystitis clears quickly

and just wanted to say to everyone, i hope you all get a restful night xxx

Careful_with_that_Axe

You too raeh.
x

bigzippy

somebody_else wrote: »

I actually refused to go for CBT on the grounds that I was physically ill and no amount of telling me that it was all in my mind and all I had to do was ignore the symptoms was going to make me better. I'd tried the 'ignore it and it'll go away' more than once.

By no means am I advocating CBT, so don't get me wrong, but I've not been told anything - yet - that would suggest the "all in my mind" or "ignore it and it'll go away" was the route they're going down. Having said that, I find it somewhat intriguing that before going for CBT (as the only recommended treatment) I could find no information as to exactly how CBT is supposed to help and having been for a good 6 sessions I'm still none the wiser! Surely there's something wrong there. Plus, my impression of CBT was that it was to basically give people coping mechanisms for specific things (like phobias for eg.) - and therefore don't get how it's supposed to help people with long term chronic conditions like ME. (Incidently, my SIL's psychotherapist also raised this concern, so it's not just a non-psychobabbler then) Funnily enough, when I asked this of my CBT therapist - basically the very same wording - she said I was taking a reductionist view!
She also wasn't impressed when I told her that my GP had, at one point, said that for a dx of ME they may as well call it Mystery Illness X - as it is essentially a name given to a collection of unexplained symptoms with no known cause or cure. She said he had a reductionist view too. :rolleyes: She then asked me if he was helpful. I said yes, he is actually - if I ask him for something he'll either oblidge or explain why he can't do so. She was less than impressed with that answer also.
Funnily enough I think me and this particular CBT therapist will be parting ways in the not to distant future. I did tell GP a couple of weeks ago I didn't gel or particularly like her and questioned whether I'd be able to get someone else on that basis. The answer was a pretty expected no, but funnily enough I can get someone else on the basis that my current woman is 14miles away and I don't want to be required to go that far on a day I'm not doing well on when OH is working.

Cwta wrote:

Really, really pees me off when people think "Oh, she'll get over it". I think they totally overlook the fact that we've all had to come to terms with the fact that some of our problems are for life. Then they suggest that you put a certain crystal in your left shoe for 10 minutes out of every hour and, hey, probem solved.

My parents we trying to tell me that I'd be well again and this wouldn't last forever the other day. You can imagine how well I reacted to that. Mum went on to say that she knew someone with fibro who'd recovered and was doing well, that she works with her. After further pressing and questions, it turns out that this person works as a sessional teacher... ie part time. :rolleyes:
Another woman extolled the virtues of Bvits to mother-dearest. You can guess what the content of the next phone call was. :cool:

bigzippy

Careful_with_that_Axe wrote: »

You too raeh.
x

What she said.

Hope all your fogs and brainmushes clear quickly and you feel reasonably functionable tomorrow guys.