Fibromyalgia

suep

Careful_with_that_Axe wrote: »

suep(t), *grin* you mean you don't say "OK, yah"? I'm disappointed. My Sis lives in Buckinghamshire and tries so hard to be all "Henley".

'fraid not, Im too common for that , but one of the ladies who goes to the same Hydro session as me talks like the queen, I get the giggles every time I hear her talk

bigzippy

somebody_else wrote: »

The thing is, ME, CFS, Fibro, etc were (and in some places still are) seen as psychosomatic problems - ie, you're not physically ill, you're actually mentally ill. (Now I don't have a problem with being mentally ill, if I am mentally ill.) So Cognitive Behavioural Therapy became the 'treatment' of choice for a lot of doctors, for patients who had been diagnosed with these conditions. And it's sort of stuck - it's about the only treatment that's ever offered to those patients. If it works, then chances are the patient didn't have one of those conditions in the first place. Or they would have recovered from whatever it was that ailed them, anyway.

To be fair to her she was suggesting that it was a nueropathy problem. When I asked about the diff between ME and Fibro (under "the same umbrella", a diff condition, or a symptom of ME :rolleyes:) she launched into a WhiteBoarded(!) explaination of the HPA axis... if that doesn't mean anything to you I will explain. I tried to write you lot about it the other day after she'd twined on about it, but fog descended :rolleyes:
I think the CBT is the only one that the government can "measure", so is the therapy of choice. I think the assumption is that it suggests methods of dealing with it... :rolleyes:
I do agree with you to a certain extent though s/e.

S/e wrote:

Sounds like your therapist is a touch on the defensive side with this. You asked a perfectly valid question, and she's effective dismissed your query.

Again, a somewhat defensive attitude, which isn't good in someone who's supposed to be providing therapy. It suggests to me that she's the one who has a problem with what she's doing. In your case at least.

You're not wrong. She's been difficult to gel with from the beginning. The first session (you have to go up a level from the receptionist/waiting bit to her office) she asked me on the way whether I'd rather take the stairs or the lift...guess which one I chose, and guess which one she pushed? :rolleyes: Kind of set the whole thingoff to a bad start. Add to the fact that I've told her I'm half deaf and she still talks quietly with roadworks in the background and you get the picture.

[quote-S/e]Well, you've given it a fair trial - there's another problem, if you've got a diagnosis of certain problems, if you refuse a 'treatment' you're effectively accused of not wanting to get better. Which is why I eventually gave in a few years ago and let my then doc put me on anti-depressants. I suspect the fact that I wasn't actually depressed might have some bearing on why, not only did they not work, but they actually made some of my symptoms a lot worse.[/quote]
They can be dangerous if you don't actually have depression (and even, in some cases, if you have) - one of the sideeffects is depression! Suicidal tendencies. The list goes on.
I do think I've given it a go. The truth is I'd quite like to see a (good) therapist. I'm sure there's some stuff I'm harbouring Still think it's time to move on though. And bringing it closer to home will enable me to go allow if/when I want/need to.

S/e wrote:

Oh yes, had that one as well - my parents saying that my B-i-L had been diagnosed with ME and he could do x, y and z. Well, bully for him, perhaps he doesn't have it as severely as I've got it (except it's since been established that I didn't have it). Plus, the fact that he recovered after 6 months suggests to me that he had post viral fatigue, not ME.

Oh they drive me mad. Then of course there's the added thing of - well don't ruleout a miracle. :rolleyes:

Careful_with_that_Axe

s/e, thanks. Beef steak mince and a bargain for a huge load for £2 odd. I'll give that a try. I haven't made a proper one for somany years, my mind went blank.

sue, I get the giggles with posh accents and pronounciations as well. It seems terribly, terribly old fashioned *grin*.

Raeh was it you who mentioned paper cuts as a bug bear? I've got about 5 or 6 scratches and cuts on my right hand and forearm and I'm as aware of them as I am the pain in my back!

Wonder where the Zippy one is tonight.

peachespeaches

somebody_else wrote: »

Dunno about being the master - just had more experience than I would have wished for.

I honestly can't answer your second question. I now get HRM and LRC, but for my first 2 claim I only got HRM. I do know people who've been awarded the Higher Rate of Care and Mobility, but not many of them, to be honest.

As I understand it, in order to get the Higher Rate Care, you'd need to be in a positon that would require almost 24 hour supervision, and an inability to more or less do anything for yourself without assistance. So those of us who do pretty much fend for ourselves (mainly through bluddy mined determination, or a total lack of interest from the caring services) seem to get penalised. Having said that, I'd rather not be in a position whereby I've got someone watching over me all the time. I had a 'friend' who took it upon herself to decide that I was virtually incapable of fending for myself, and who used to almost hover over me waiting for her chance to call the ambulance and it was positively smothering.

I get lower rate care because I dont pass the making a meal from scratch test. The doctor who visited me regarding my claim was not interested at all in the fibromyalgia but just in the back problem I have. The back problem prevents me bending (or straightening up), so I have trouble taking stuff out of the oven, also difficulty standing for any length of time at a worktop/cooker. A perching stool would make matters worse as I would have to bend forward even more. Its strange that they acknowledge that I have a back problem for lower rate care, but they are quite happy for me to drag myself along and do without mobility.

Im booked in to my docs at the end of the week, and Im going to keep going every few weeks and telling her what Im having trouble with, what sort of pain I have and reminding her I have fibro. That way she will document it all. Then after a while I will ask again about support for a mobility claim.

I become paranoid around the time I put my renewal claim in. If I go out Im convinced I am being filmed or observed to see if I walk further than the garage!

bigzippy

Careful_with_that_Axe wrote: »

Bit fed up here as when taking sticky things (technical term) for leads for heart monitor off, I tore the skin on my chest. That's chest, not chesticles. Sore!
Also on inspecting car tyre that looked a little deflated, I have a bleedin great nail in it. Will have to replace it before I do any long journeys.
My fave saying is "what doesn't kill you makes you stronger". Just how blinkin, blimey, boogerin strong am I suppose to get?:mad:

My mum quoted that one at me as they were moving out, leaving me a la todd at 16, halfway through college. I do think it's true, but I don't think it was appropriate timing or person! :rolleyes:

Hi Peaches :wave: I think between em these lot have pretty much answered your question. I did however blag a points guide (shows what points DWP give for the various things on the assessment of the form - you have to get at least 15 for such a livel of benefit etc) from CAB adviser when I was there last if anyone's interested. She did explain that it's an old copy and they're in the process/just have changed the system/forms but I figured it was worth a nosey

Can't remember what else I was going to say now... I'd fibro fog but it's actually cos I started this ages ago and then the battery on the puter died so I went off somewhere else for a bit

bigzippy

Careful_with_that_Axe wrote: »

s/e, thanks. Beef steak mince and a bargain for a huge load for £2 odd. I'll give that a try. I haven't made a proper one for somany years, my mind went blank.

I was gonna suggest onion, mushroom, in a pan, maybe with some boiled carrots, then chuck in a casserole dish with water and a couple of oxo cubes and perhaps a bit of steak seasoning. Whack on the mash and a sprinkling of cheese and it's bish bash bosh, real good nosh

Careful_with_that_Axe wrote:

Wonder where the Zippy one is tonight.

Cheers dude, as above really, started to reply but puter battery died and I was too lady to plug it in before I moved house (from mine to OH's) so only just restarted. Took pity on OH's best[STRIKE]man[/STRIKE] friend and took him for a McFlurry with us. He's well skint and lives alone so I take pity every so often and allow his presence

sharon59

Here l am at ungodly hour again!Laid in bed awake for an hour then decided to get up for cuppa.Its pouring with rain-luckily its not snow as they thought or we would be in trouble!wonder what its like elsewhere in the country.
Really stiff -the sciatica problem seems to have set off a flare up-how kind of it!!!
Welcome to you Peaches and anyone else lve missed in past few days.
sharon x

purplecatlover

morning everyone

careful, i make sheppards/cottage pie same as s/e pretty much, onions and mince browned off, add some herbs and garlic, tomato puree/tinned tomatoes, carrots and either stock/bisto. once its reduced down and carrots are cooked into oven with mash on top.

its horribly wet here too sharon, my cat should have learnt after all these years i cannot make the rain stop, nor can i make it not rain out the front if its raining out the back. so i am getting shouted at.

Careful_with_that_Axe

Morning all
Sorry I missed you last night Zippydeedoodah
Suddenly realised very early this morning whils re-arranging myself in bed that I have quite a lot of chores etc to do today, so couldn't get back to sleep. Will have to have a snooze later to make up for early morning.

pcl, Lita won't deign to step outside if it's wet. It's the only time she poohs in the litter tray.
If I've been out, when she hears my car and me walking to the front door, she sticks just her head out of the cat flap and meows to welcome me home :rolleyes:
I'm convinced she's a special needs cat.

It's persisting down today and very cold again.

I can't carry a brolly when using my crutch(es), so have a rain hat (oh the glamour). I think I may get a motor for it so it rotates and parasol lights for underneath it for when it's dark. Should I go on Dragon's Den?

purplecatlover

bbrrrrr its not rain out there its slush. at least on the ground.

my cats will go out if its only drizzling, one to hide under the bush where it is dry, otherwise she only sticks her hea dout before coming back in. the other to find grass or something when her ibs is playing up. otherwise she wants the door open to prove its raining everywhere, and repeats ad infinitum.

that sounds like a very good idea, might well be worth going on dragons den. hope you do manage to nap later and catch up.