Fibromyalgia

Careful_with_that_Axe

I finally cooked today. Did it in bits over the afternoon, making what is normally a fave dish of mine. Just eaten it and it's done absolutely nothing for me at all.
I am so off food at the moment that I struggle to eat enough to stave of the hunger pains that you get with steroids. Yes, I'm overweight and struggle to exercise, but today I've eaten half a chicken sarnie and a small amount of cheese, ham and egg pudding.
I get very tired of nothing appealing to me.

somebody_else

Careful_with_that_Axe wrote: »

I get very tired of nothing appealing to me.

CwtA, you sound like another one who could benefit from some Ensure. I also went through a phase a couple of years ago, when I struggled to eat enough and (you're gonna hate me for this) I went down to 7 1/2 stone.

I'm not sure that you'd be able to get it on prescription*, but it would be a way of getting some beneficial calories inside you without having to fight to cook and not enjoying what you're eating.

Do you like milkshakes? Although they don't contain any dairy, that is what they look and taste like. Or they do savoury ones as well, but I always worked on the theory that if I could stomach a chicken flavoured one (to be honest the savoury ones sounded gross) I could stomach some soup instead.

*The criteria for getting it on a script was if the patient was in danger of developing disease related mal-nutrition.

somebody_else

Careful_with_that_Axe wrote: »

I finally cooked today.

I meant to say well done for this. I think it's far harder to cook when you're feeling sh1te when you've only got yourself to cook for, so I consider that a major achievement.

Sorry if that sounds patronising, it's not meant to.

sharon59

Gosh been away 24 hrs and how you lot chatter!
dry mouth -sherbert lemons good.and dry mouth spray from boots-l keep it by bed as wake up in night and mouth horribly dry and this helps.
I too love Holby and Casualty!
have a good night everyone
sharonx

somebody_else

sharon59 wrote: »

Gosh been away 24 hrs and how you lot chatter!
dry mouth -sherbert lemons good.and dry mouth spray from boots-l keep it by bed as wake up in night and mouth horribly dry and this helps.
I too love Holby and Casualty!
have a good night everyone
sharonx

'Fraid it's mostly my fault today. I've been awake since 3.00 am and I need to stay awake for another half hour or so, or I'll be awake at 3.00 again tomorrow.

That's my story and I'm sticking to it, so there.

Have a good evening as well Sharon.

Careful_with_that_Axe

I don't take that as patronising at all s/e and thank you.
The supplement is probably a good idea as I have lost about 2.5 stone in the last year. Bu then again, the weight needed to be lost.
I have been made aware that you can be malnourished even if you are overweight.
I may get in some smoothies. I do love soup and even used to love cooking it, but I've yet to find one I can buy that I like, so at lest smoothies would get some goodness into me.
Someone, somewhere suggested using gelatine to make fave smoothies into a jelly which appealed as I prefer to have at least some solid-type food in my stomach.
Part of the reason I try to go out for lunch every so often if so I can eat something that I haven't had to prepare myself as, for me, by the time I've cooked it the last thing I feel like doing is eating it!

Hope those of you that have headed up the wooden hill to bedfordshire have a peaceful night and only sweet dreams allowed.
x

Careful_with_that_Axe

Goodness me what a quite thread tonight! it must be the absence of bz.
Shall I re-arrange the chairs?
x

andypandy08

hi yes I suffer with FMS AND HAVE A HEART CONDITION AND AM DEAF IN BOTH EARS AND DONT GET A PENNY. how fair can this be even writing this is a struggle.

life is painful and the the exhaustion is unbearable, I believe that this system is totally flawed most of the decision makers are not medically trained !!!

bigzippy

Careful_with_that_Axe wrote: »

Goodness me what a quite thread tonight! it must be the absence of bz.
Shall I re-arrange the chairs?

Cheeky. :rolleyes:
Well, what a day!

I've got a new combine-harvester and I gave OH the key! I did indeed have a successful car-hunt and have come home with a Renault Scenic automatic :T The brief to my brother was (obviously budget), high seat position (so as to make it as easy as poss to get in and out and have a decent line of sight), be automatic (cut down on those pesky leg/arm-movement pains), be big enough to be comfortable enough for us to go on journeys round the country to see various and for the dogs to have enough room in the boot. Job well done all round I feel Brother was brill and the guy (who we bought from in the end) said to me "you're a very lucky girl [lol @ "girl"!] to have a brother like that, willing to do this for you, and not from just down the road either!" - I agreed profusely....and then hugged and thanked brother profusely :j

Now that we have at least one car between us we can send the mobility car back, as arranged, on Tuesday and not pay further monthly payments to keep it in lieu of any other car :j The payment for one month alone would be about half of what we'd've spent on OH's "new" car anyway! :eek:

OH managed not to lose his current job, but there will (apparently) be disciplinary action taken He then got offered the job in the afternoon that the 2nd interview was for... so now the decision is whether to go for it, cutting and running from the current charlatans that call themselves his superiors (and the disciplinary action they want to bring), going to another work place til 12th Jan (which would actually be a travelling sales job, not something he's used to), or not faff about or be seen as cowardly or risk his rep....??

Oh, and I also contacted insurance company this morning about the written off car... to find out if I'll see some money before this liability malarky gets settled and she said yes! Once the paperwork etc is sorted out (they have to receive my log book and last MOT etc) then I'll get a cheque sent out for the amount agreed on the car mius 70% of the excess (cos they're currently saying OH is 70% liable for the accident...have you ever heard of anything so ridiculous?) and then if the liability thing goes in our favour then I'll get another cheque and if not then I wont. So yay! :j Was worried I wouldn't see *any* of it til it was all squabbled out. Phewf.

What else can I tell ya? I'm now at BIL's house (am I ever at home atm??) as I'm sitting on my niece and nephew tomorrow whilst sister is away with work and BIL is away on a course tomorrow. Luckily they're both of the age where they're at school all day so other than getting up at the unearthly hour required to get them to school on time and making sure that I'm up again (;)) in time to pick them up from school at the required time it shouldn't be too much of a struggle. I'll have to be entertaining til potentially bedtime, if their parentals aren't back before that, but I've brought Kung-fu Panda over on DVD to watch with them if things get hairy Planning to go to the local supermarket and get some more pasta bake sauce so I can just tip it over some pasta and plonk it in the oven - bish bash bosh stylee Wonder if I'll stay awake during the day long enough for that to happen..? :rolleyes:

I might think about responding to your drivell (sp?) from today in a bit...

bigzippy

Having been praised for the brilliantly simple solution of having meds in the car... guess what I don't have? :rolleyes: Of course the excuse of it being a new car bought today may float for a while... but in the meantime I now somehow (how it's not in my handbag I have *no* idea!) got any pregabalin with me at BIL's house. I thought to myself that perhaps I could/should go home tomorrow while the kids are at school (bearing in mind I'm about 40 miles from home) and take the dose I've missed... but then I remembered that I'm supposed to take it twice daily, so I'll have missed two doses by then.... then I realised that I actually don't remember taking it at all this morning (which now of course makes me wonder if I've remembered to take it any morning but the first morning!), so I'll've missed 3 doses (at least:rolleyes:) by then...

Oops. Suggestions ppl? Bear in mind that I have only been on the damn thing since perhaps thur last week, so I'm thinking/hoping that the chance of any withdrawal sideeffects would be pretty slim..?