Fibromyalgia

somebody_else

bigzippy wrote: »

OH is on his way home from the meeting with his area manager to get his hands slapped. He's not lost his job but I fear there will be formal repercusions... unless of course he gets this jobhe's got a 2nd interview for this arvo

Fingers crossed the 'wrist slapping' is no more than a gentle tap, and that he gets offered the job at interview this afternoon.

bigzippy wrote:

I'm notoriously bad for being anywhere in the morning, so where possible I don't make appointments for the mornings (it does *really* pish me off that my CBT therapist doesn't seem to be able to get on board with that though :mad:).

I also have problems with morning appointments - not so much from the point of view of waking up in time, more from the getting mobile pov.

bigzippy wrote:

I didn't have a tele when I was at uni and I was looked at with almost digust, but definitely awe and wonderence.

And of course, the most difficult ones to convince that you really, truly don't have a TV are the Licencing bods - but that's a whole other rant.

bigzippy wrote:

I've was never a real drinker anyway, before I was dxed with ME. I'll have the odd one now and then but it's certainly not habit. The people that I would bother to make the effort to go for a drink with know I'm not a big drinker and would be less than likely to bother trying to pile on the pressure...

Fortunately, most of my friends are similarly understanding. And no-one's tried to spike my drink since I was in my 20s. What the pillocks didn't realise was that I drank so little alcohol even then, that I picked up on it with the first mouthful. The rest of the drink remained on the table. I'm afraid if anyone tried that now, they wouldn't be a friend any more - and if I happened to be the 'designated driver' they'd be walking home.

purplecatlover

hope he gets the job, and doesnt get anything formal at this job.

surprisingly the tv liscene people have left me alone, they sent a reminder after i cancelled it, i rang them and told them to send someone round to check and see that my tv did not recieve any channels and they have left me alone since. (said tv has now broken alltogether, i really should get rid rather than leave it collecting dust). and now ive said that they will come knocking on my door.

i used to have a super loud alarm clock, marketed as for the hearing impaired.....it woke my neighbours up when it had been going for long enough, not me. it switched itself off after 90minutes. i remember one day i got round lunch time, to find my burglar alarm going off. when i went outside my neighbours two doors away nabbed me to ask if it had been mine going off since 1am. i always wonder if my smoke alarms would even wake me. the testing of them in uni halls never did, but they only went of for 10mins or so.

aye i guess it is fair to take shifts gives everyone else something to catch up on.

Careful_with_that_Axe

Hey BZ, Good luck with finding a suitable car and fingers and everything crossed that your OH gets the work situations sorted so that he is happy with it. Such a simple and excellent idea of yours to keep tabs in the car! I can't tell you how many times I've had to say no to something as I have to go home to take my pills.
I did inherit a very pretty little pill box for my handbag, but only remember to use it when I'm going out for something special. Even then, i forget my glasses!
I would be dangerous if I had a brain.

I love radio, current affairs, audio boks etc and am currently addicted to Radio 4 and BBC 7. I have a 90 min sleep function on radio in bedroom and use BBC 7 to soothe myself to sleep as if I use worldservice, it interests me too much and keeps me awake.
I think I use the Tv in the evening as just something to go on in front of my eyes. Vary rarely is there a programme that really engages me. But my eyes get too tired to read in the evenings. Books are reserved for daytime.
anyone who hs digital radio - I've recently been directed to a music channel called absolute (I think?!) which plays a lt of 80's type music. Great and much less frantic that Radio1. I am a bit of a music loved but taste are quite eclectic.
was it Woolfie that went to the Opera? My Mum was a brilliant musician and an Opera Singer, but I never inherited the gene. My Sis immerses herself deeply in it though. Just something else genetically that passed me by!
For those who don't have TV, I was once told that people who get bored are obviously intellectually challenged as, if you are intellectual, there is always something you can be thinking of and doing!
I did sign uo for an OU course on Criminology about 2 years ago to keep mind challenged, but have been unable to concentrate enough on it. I never intended to take the exams anyway.
Strange dream last night about being at some kind of fair/playground with various people. Not a bad dream, but woken up by postie delivering sheet grippers that I finally sourced. If anyone wants to know the website for ordering, let me know.
All these people who criticise lack of TV, lack of tolerance to ETOH and coming up with various "cures"; thank the lord we have some people around us who just quietly understand. Worth their weight in gold.

Raeh, hope you get medication sorted out today.

Beautiful clear sky here today, sunny, crips and cold. Just the sort of day I love and that raises my spirits. Remembered days of walking through the woods in the early mornings kicking up leaves.

Laters
x

p.s. I'm not even going near the subject of teddybears! *grin*

raeh

good afternoon all

im going to be really sad and say i would miss my tv even though i dont watch a great deal at all, i would desperately miss casualty and holby i only watch those and merlin at the moment as im on here the rest of the time

purplecatlover wrote:

im sick of chewing gum, any ideas for dealing with dry mouth? drinks only work for so long as the are in my mouth

i just cant chew gum at all as its affects my tmj and it aches terribly but i always have some sort of mints with me, usually fox's glacier mints as they seem to help. Since i have started the pregabalin i have an awful dry mouth all the time

BZ good luck to your OH this afternoon, fingers crossed for him

Quote:
Originally Posted by purplecatlover
i really really dont know how you guys cope with chronic pain all the time.



Quote:
Originally Posted by somebody_else
To a degree you get used to it. If anything goes on for long enough it becomes 'normal'. It's a bit like my headache - it's there all the time, I only really notice it these days when something exacerbates it.

That's not to say we don't notice the the pain - it's just that you do find a way to learn to live with it


i have said before i seem to be able to ignore the pain a lot of the time as its something thats just there now but when i get a papercut or something the pain from that seems extreme? and it just doesnt heal

somebody_else wrote:

If you want to hear real shock and horror - tell someone you can't drink alcohol.

They have got no idea how it's possible to manage without.

tell me about it :rolleyes: i went on a works night out a while ago and when i ordered orange juice a was met with gasps of horror and no one could understand how you could possibly have a night out without drinking!! the bloody fact i was out of the house for an evening was good enough for me :rotfl: but i had the constant 'go on just one wont hurt you' :rolleyes:

ok i must drag myself away and think about feeding the kids when they come back from school, an hour should be long enough to peel some spuds

see you all later x

LameWolf

Drinks: A friend of mine had her drink spiked once, and she ended up in hospital, on life support! She wasn't on any meds or anything, she's just incredibly intolerant of alcohol. I really do think spiking someone's drink is incredibly stupid and dangerous.:mad:

Television: We do have one, but rarely watch it. I think there are currently two programmes a week that we bother with - and that's a lot for us! It gets used mainly for PlayStation2 games!:p

somebody_else

Careful_with_that_Axe wrote: »

I love radio, current affairs, audio boks etc and am currently addicted to Radio 4 and BBC 7.

I tend to listen mainly to R4, but having said that, I've just had to turn this afternoon's play off - I know it's a subject that needs more 'publicity' (sorry, that's not the word I want, but right now I can't think what the right word is), but I can't cope with 45 minutes of of loud music and shouting.

Careful_with_that_Axe wrote:

Books are reserved for daytime.

For me books are reserved for bedtime - they're what I use to help me relax enough to get to sleep. Sometime I can read for, ooh, a whole 15 minutes before my hands get too painful and I have to give up.

Careful_with_that_Axe wrote:

Strange dream last night about being at some kind of fair/playground with various people. Not a bad dream, but woken up by postie delivering sheet grippers that I finally sourced.

You were having weird dreams as well? Bet you weren't on your way to Helsinki when you woke up.

Careful_with_that_Axe wrote:

...thank the lord we have some people around us who just quietly understand. Worth their weight in gold.

Oh yes!

Careful_with_that_Axe

s/e it wasn't my trip to see Northern Lights that got you thinking about Helsinki was it? Bit of a tenuous connection but all I could think of. What on earth do our brains get up to when we give them freedom?!

People who spike drinks should be publicly flogged. It's such an incredibly stupid and irresponsible thing to do.

Have just turned the radio off here as sound is starting to get on my nerves, but I normally have some kind of noise going on (even if it's just the neighbours!) as I feel less alone with some background activity.
.
Raeh with me, the pain I cannot tolerate is itching when I get Urticaria - on top of everything else it's just too much. You have to scratch somewhere - it's impossible not to, so I scratch my scalp so scars don't show. Then you worry about getting infections. There's just no hope is there *grin*.

Have caught up on some phone calls which have been on to-do list for weeks. Now just deciding whether to go out and get papers or stay in dressing gown all day.
Hmm, decisions, decisions.

somebody_else

Careful_with_that_Axe wrote: »

s/e it wasn't my trip to see Northern Lights that got you thinking about Helsinki was it? Bit of a tenuous connection but all I could think of. What on earth do our brains get up to when we give them freedom?!

I dunno what set it off. It wasn't exactly a scary dream - certainly not one of those where I wake up petrified, so I don't understand why I couldn't get back to sleep again afterwards.

Careful_with_that_Axe wrote:

People who spike drinks should be publicly flogged. It's such an incredibly stupid and irresponsible thing to do.

It is, indeed, a very stupid thing to do - I would hope that in this day and age people are a bit more sensible about the whole thing. What made it even more stupid (bearing in mind that at that time I hadn't developed such a violent intolerance to alcohol) was the fact that I was driving them as well, so if I'd drunk the lot, got rat@rsed and crashed the car, they'd have been involved in the accident as well. Oh the stupidity of youth.

CwtA wrote:

Have just turned the radio off here as sound is starting to get on my nerves, but I normally have some kind of noise going on (even if it's just the neighbours!) as I feel less alone with some background activity.

It was a bit much, wasn't it?

CwtA wrote:

Raeh with me, the pain I cannot tolerate is itching when I get Urticaria - on top of everything else it's just too much. You have to scratch somewhere - it's impossible not to, so I scratch my scalp so scars don't show. Then you worry about getting infections. There's just no hope is there *grin*.

The one I find most difficult to tolerate (and it can't really be described as a pain) is when I start 'throbbing'. It's something that started happening after the SAH, and it sort of starts in my spine and radiates out in my arms and legs as well. Sort of like a whole body tooth-ache.

CwtA wrote:

Now just deciding whether to go out and get papers or stay in dressing gown all day.
Hmm, decisions, decisions.

I had intended to go out today, but I'm now waiting in for the dairy to call me back as I didn't get any milk delivered this morning. Trouble is, I know if I stay in they won't call me, but if I nip out (for a given value of 'nip') to pick up a couple of things, they'll call while I'm out.

LameWolf

somebody_else wrote: »

I had intended to go out today, but I'm now waiting in for the dairy to call me back as I didn't get any milk delivered this morning. Trouble is, I know if I stay in they won't call me, but if I nip out (for a given value of 'nip') to pick up a couple of things, they'll call while I'm out.

I don't particularly want to go out today, but I have no choice. The fridge is frighteningly empty, and if I don't do something about it, I shall have one very hungry hubby, and that'd never do! :eek:

somebody_else

LameWolf wrote: »

I don't particularly want to go out today, but I have no choice. The fridge is frighteningly empty, and if I don't do something about it, I shall have one very hungry hubby, and that'd never do! :eek:

You couldn't pick me up a pint of milk while you're at it, could you?