Fibromyalgia

somebody_else

purplecatlover wrote: »

can i slap them? if anything makes you feel that unwell it is much better to avoid it (even if its just in case) than end up feeling unwell.

i wish people had more understanding, tolerance, cant think of the word i want.

I just tend to avoid socialising with them these days. It's easier than going through the whole 'no, I don't want a alcoholic drink thanks; yes 1 drink will hurt; look can I just have a black coffee?' routine with them.

purplecatlover wrote:

im sick of chewing gum, any ideas for dealing with dry mouth? drinks only work for so long as the are in my mouth....

Um... the only thing that worked for me was a reduction in the dosage of amintryptiline (I'm fairly sure that I haven't got all the Is and Ys in the right place there) I was taking. If you're on an anti-depressant/muscle relaxant then once you get over a certain dose, the dry mouth is one of the side-effects.

purplecatlover

much easier to not socialise with them, yeah.

oh no, i was hoping it would wear off after a couple of weeks, and thats before the dose goes up (its lofepramine causing it). guess i will just have to make myself get used to eating chewing gum all the time.......thats deff prefarable to the continuos leg pains the other was causing, i really really dont know how you guys cope with chronic pain all the time.

somebody_else

purplecatlover wrote: »

i really really dont know how you guys cope with chronic pain all the time.

To a degree you get used to it. If anything goes on for long enough it becomes 'normal'. It's a bit like my headache - it's there all the time, I only really notice it these days when something exacerbates it.

That's not to say we don't notice the the pain - it's just that you do find a way to learn to live with it.

poohbear59

Careful with that Axe re storing meds, I keep everything in a kitchen drawer, sometimes they don't all fit!! The every morning I sort out meds for the day into a little tine that will fit in my bag/pocket.

This usually works but yesterday I took gabapentin 600mg at 3.30 pm then again at 5pm. :eek: :eek: I am still here! :rotfl:

I have my mobile phone set up with reminders that tel me when to take meds. It only works if I actually read what it says and concentrate. yesterday wasn't the first time I have taken wrong things.:rotfl: :rotfl:

I took codydramol twice in an hour once too. :eek:

I thought my system was foolproof! But not when you figure in fibrofog:rotfl: :rotfl:

somebody_else

poohbear59 wrote: »

I thought my system was foolproof! But not when you figure in fibrofog:rotfl: :rotfl:

No system that requires a degree of memory and a spot of concentration is foolproof when you've got the attention span of a gnat and the memory capacity of a goldfish.

I was on morphine for a while and one of the (many) reasons I came off it was because I frequently couldn't remember if I'd taken it or not, and was at risk of a fatal overdose. It's not so bad with things like paracetamol, codeine and amit. I've got a fair bit of leeway on maximum safe dose with them.

purplecatlover

somebody_else wrote: »

To a degree you get used to it. If anything goes on for long enough it becomes 'normal'. It's a bit like my headache - it's there all the time, I only really notice it these days when something exacerbates it.

That's not to say we don't notice the the pain - it's just that you do find a way to learn to live with it.

i guess that makes sense, it took the guts of a year complaining at my gp every month before he ran tests and then decided it was my pills when nothing showed up. an di did sort of get used to grinning and bearing it.

somebody_else

purplecatlover wrote: »

and i did sort of get used to grinning and bearing it.

The thing is, when the pain never goes away, what choice do you have but to learn to live with it?

purplecatlover

thats true s/e

poohbear59

somebody_else wrote: »

The thing is, when the pain never goes away, what choice do you have but to learn to live with it?

So true, we have to laugh otherwise we will ... I am not going to say it as today I am thinking and saying positive from now on, forgot earlier:rotfl:

bigzippy

purplecatlover wrote: »

you were up late zippy, hope your sleeping peacefully now.

my sister laughs at me, i am the only person she knows who brings a teddy bear on holiday, has spare teddy bears in case of accident (like when his head came off) and insists on a teddy bear keyring so i have a teddy bear it is acceptable to carry around outside.

hope the car hunting goes/went ok.

Ta dude.I was up late, but that's not really surprising with me. It's actually more surprising if I'm asleep before 4am these days :rolleyes: I bet I get to sleep just as you wake up most days! Ah well, I suppose it's only fair that we take it in shifts to keep the board going...?
I've now got OH hooked on said favourite teddy. He doesn't like it when "he"'s not there at night anymore
Awaiting the arrival of bro as we [STRIKE]speak[/STRIKE] type. OH is on his way home from the meeting with his area manager to get his hands slapped. He's not lost his job but I fear there will be formal repercusions... unless of course he gets this jobhe's got a 2nd interview for this arvo

Pcl wrote:

when im sleeping alarm clocks dont disturb me, or only rarely do they. and i have been known to crawl under the bed to get at the plugs and turn the clock off, somehow its easier done in my sleep and almost impossible awake.

Ditto. I don't often even register alarms (unless OH has so many set, on snooze for so long, or I'm sleeping poorly anyway). I'm notoriously bad for being anywhere in the morning, so where possible I don't make appointments for the mornings (it does *really* pish me off that my CBT therapist doesn't seem to be able to get on board with that though :mad:). I can have full conversations and still be asleep, and then completely have no recollection that they happened.

Somebody_else wrote:

Quote:
Originally Posted by purplecatlover
it is amazing, i get met with shock and exclamations of what on earth do you do, dont you get bored. i onyl hear about whats going on in the world though if someone mentions it on a forum or lj, or if i remember to go read news pages.

If you want to hear real shock and horror - tell someone you can't drink alcohol.

They have got no idea how it's possible to manage without.

I didn't have a tele when I was at uni and I was looked at with almost digust, but definitely awe and wonderence. I've was never a real drinker anyway, before I was dxed with ME. I'll have the odd one now and then but it's certainly not habit. The people that I would bother to make the effort to go for a drink with know I'm not a big drinker and would be less than likely to bother trying to pile on the pressure....
I remember on my 18th birthday my sisters gave me a bottle of Moet & Chandon... it's still in the gift back they gave it me in, with the fluted glasses still wrapped up that they gave me with it! They were a little crest-fallen but understanding when I said I couldn't drink it as it clashed with the meds I was on at the time.