Fibromyalgia

bigzippy

raeh wrote: »

what i find worse is when they call to you from the kitchen cupboard 'eaaaaaaat meeeeeeee' and iv always been told its rude to ignore someone

You hear it too??! Phewf. Thought I was on my own there...

Raeh wrote:

i just cant lose that feeling of maybe its in my head and there isnt really anything wrong? daft i know but it lingers there tapping away. I know what you mean though, i really need to take it easy as today iv found everything twice as hard as it usually is to prepare [ veg and roast] iv been at it since about half ten this morning and we will be eating at about 6pm :rotfl:

anyway i will be back later for my 'fix'

Umm... Raeh you are a contradiction in terms! You've just said you feel maybe it's all in your head - but then say you're struggling to prepare dinner. Teacher says BEHAVE! (for your own good) ...Just think of it this way, if it helps, if it's all in your head then it must also all be in our heads (and I think we may have something to say about that)

sharon59

just come for a bit of TLC -last few hours developed cystitis and dont know where to put myself!Mostly been in toilet and all the up and down has really set my back off again as well.Have got to go to emergancy out of hours place for 7.40 pm to be seen.Fed up as keep getting it but worse this time-specimin is pure blood-sorry to be so graphic!have got bladder prolapse so dont know if its this or the fibro causing it.anyway feel better for good moan-will report back later or tomorrow.

Unity

raeh wrote: »

i have one and its a life saver i throw meat and veg in and leave it all day

Hi Raeh,

I bought a Tefal rice cooker/slow cooker/steamer, but so far I've only ever cooked rice in it. I was just wondering whether they used much electricity? I've been thinking for a while of trying it out in it's slow-cooking capacity - so if you've got any particular favourite recipes that I could try I'd be really grateful :T.

Ta,
Unity

Careful_with_that_Axe

Raeh, I totally understand what you mean. With me it takes a slightly different slant in that I don't trust my own judgement when things medical happen to me.

Three years ago I started getting what can only descibe as heart cramps - like someone was taking my heart in both their hands and wringing it out. Just though "that's a bit wierd". mentioned it to Nurse after about 6 months and she said it was heartburn. I don't think so, the pain was so strong that if you had asked me my name I wouldn't have been able to answer. Only found out last week that I had had a heart attack at some time.
I tend to see the big things from an intellectual pov rather than go off half-cocked thinking it's something dire. Do you understand what I'm trying to say even if I'm putting it badly? That even though they can appear in the grand scheme of things as little niggles, you mustn't just grin and bear it. Oh gawd am I making any sense at all?

My situation isn't helped by the fact that my Dad (only family geographically close) doesn't actually believe I am ill. When I told him about the heart thing, stressing that I was the same person as I was before I knew about it so he didn't need to worry, that it was just information. His response was "Well, when I went to the doc, he said to me ....." :mad: :rolleyes:

OK, post badly written and interrupted by a phone call, but, I think I am the oldest person on this thread and I think you need to do as you're told raeh :grouphug: .
Have a dodgy hug

Careful_with_that_Axe

sharon59 wrote: »

just come for a bit of TLC -last few hours developed cystitis and dont know where to put myself!Mostly been in toilet and all the up and down has really set my back off again as well.Have got to go to emergancy out of hours place for 7.40 pm to be seen.Fed up as keep getting it but worse this time-specimin is pure blood-sorry to be so graphic!have got bladder prolapse so dont know if its this or the fibro causing it.anyway feel better for good moan-will report back later or tomorrow.

Oh poor babe! Sit on hot water bottle, one for your back, hot baths, cranberry juice. Horrible for you - wouldn't wish this on worst enemy.
Hugs

Unity

athensgeorgia wrote: »

Hello everyone, I'm writing with regards to my mum she was diagnosed with FM around 10 years ago. I just happened to be clicking through different threads and spotted this one and decided to to have a closer look and gave her a ring to tell her what i had found. Shes not very technical and wouldn't be able to navigate this website thats why i'm posting for her

She asked me to ask about painkillers when she was first diagnosed she used to take painkillers to help out but has since stopped taking them because she feels the longer she takes something the less it'll work in the long run iyswim. But she feels the pains getting worse she takes drugs for her underactive thyroid and takes an antidepressant at night to help her relax so she can get a little sleep, but shes recently been diagnosed with arthiritis too and the pains becoming unbearable she wants to know what drugs some of you take and if someones been taking something a while and does it still work to the max effect?

When i was reading some of the posts to her i could tell she was getting choked up she said it was like these had been written about her. Any advise or feedback is greatly received and i'll try and encourage her to sign up and 'join in'. Shes called Frances and shes 61.

Hi Frances and Athensgeorgia, I'm one of those using Fentanyl Durogesic Patches (morphine) for the pain. I used to be on 150 microgrammes at one stage, but I have managed over a period of time to get this down to 87 mcg and I feel better for it. It is the only thing that has given me a little respite from the pain and believe me I've tried: Amitriptyline, Tramadol, Lyrica, Carbamazepine, Keral, Gabapentin, Co-Proxamol and Meptid and they're just the ones I can remember off the top of my head. I have been using the patches for some years now and haven't noticed any decrease in effectiveness. If I notice an increase in pain, I take paracetamol every four hours and this boosts the effectiveness of the patches.

In terms of diagnosis. I had a bad accident which damaged my spine but didn't get dxd with arthritis until 1993, including cervical and lumbar spondylosis, plus scoliosis and osteophytosis. Then in 1994 I got the fibro and chronic fatigue dx from the rheumatologist. I think I probably had the fibro from much earlier though - as I was hit with a brick at age 12, knocked unconscious and concussed and as others on here will know (oh no not her again :rolleyes:) I ain't been the same since - terrible sleep disorder and subsequent tiredness.

Sorry to those who have read it all before - but you will keep making this thread longer :D:D.

Gotta go - dinner's waiting.

Unity
X

Careful_with_that_Axe

Unity
http://www.my-crockpot-recipes.com/
Look out for recipe books in the sales after Xmas.

Unity

Careful_with_that_Axe wrote: »

OK, post badly written and interrupted by a phone call, but, I think I am the oldest person on this thread and I think you need to do as you're told raeh :grouphug: .
Have a dodgy hug

Why - how old are you? :D:D I thought I was Methuselah's sister :rotfl:.
PM me if you want - I won't say a dickybird!

bigzippy

sharon59 wrote: »

just come for a bit of TLC -last few hours developed cystitis and dont know where to put myself!Mostly been in toilet and all the up and down has really set my back off again as well.Have got to go to emergancy out of hours place for 7.40 pm to be seen.Fed up as keep getting it but worse this time-specimin is pure blood-sorry to be so graphic!have got bladder prolapse so dont know if its this or the fibro causing it.anyway feel better for good moan-will report back later or tomorrow.

Sorry Sharon I know nothing about this condition so can't help you! But hope you feel better soon Hope they're helpful at the OOH place

bigzippy

Unity wrote: »

Why - how old are you? :D:D I thought I was Methuselah's sister :rotfl:.
PM me if you want - I won't say a dickybird!

I think she may've whispered it a day or two ago...? :shhh: