Fibromyalgia

sharon59

well youve all been busy chatting since l looked in yesterday!
welcome Kevin!
No snow yet here in wales but plenty of rain-not unusual!
DH and DD1 are busy putting up some of the xmas decs in the garden-he loves xmas and has got the 3 kids-now adults just as excited!I sit back and let them get on with it!
Been on the Pregablin for 10 days now and suddenly realised that some of the electric shock tingles down my arms and legs seem less which is nice.
hello to all-sharonx

raeh

well i have been trying to get on here and check in for hours :rotfl: but every time i was about to sit down dh has asked me to hold a screw :cool: [hes converting our loft to a proper playroom] i was feeling quite withdrawn!
iv been getting the roast ready in stages as usual and seeing as no one is shouting me for anything i took my chance

unity thank you for the link i will take a look last night i must have woken twice an hour and because i was tired, lay in a while longer this morning and regretted it as i was so stiff!

CwtA i am going to ring the gp in the morning as i want to up the pregabalin dose anyway and i will ask her about these extra aches and pains but i always feel like such a whinge?
did you ask your friend which version of princess fiona?? the ogre or not :rotfl: i wouldnt dare ask who my friends thought i looked like .. thats why there are very few photos of me even on facebook i have a photo of the dog instead

i looked out first thing, expecting maybe a white world up here in t'north, but im afraid as usual its just cold and wet! typical

i think i will sit this afternoon and make a list of the things iv already bought for xmas and what i still need to get and who for i love xmas but not the stress of shopping, thanks goodness for t'internet :rotfl:
sharon you are quite early with your decs?? quite a few around here go up on the 1st but we dont do ours until about 10 days before ... scrooge - sorry dh - would wait til xmas eve :eek:

keep warm everyone xx

bigzippy

Unity wrote: »

BZ I would be interested in your OH's list - I currently take a multi-vit/mineral, B complex, CoQ10, Gingko Biloba and Aloe Vera capsules, plus Glucosamine/chondroitin and a fish oil capsule. To be honest I've found this particular cocktail seems to help me and the only reason I know this is because I ran out of just about everything at the same time a few weeks back. Perhaps it is the Gucosamine and fish oils that make the biggest difference as it's my joints where I feel the increased pain without them - but that will be down to the osteo-arthritis.

It's not my OH's list - tis the ex's list (who works in/runs the local health food shop)...I've scanned back through our cyber conversations and found this:

if i were you i would go on q10-200mg, l-carnitine 500mg, rhodiola roscea 500mg, and maybe siberian ginseng in a liquid, plus a multivit and mineral and ephedrine on training days, bet you would feel much better

He told me he could get them me for about £1.70 a day (:eek:) which is why I ain't on them... just not that flush I suspect that maybe mates rates so if you were considering it perhaps it may be more for you..?

I hope you've recovered from your grim dreams Cwta
We've got no snow here... just lots and lots of sideways rain. As per.

Cwta wrote:

Dontcha love how I am so brief and succinct in my postings! I just can't do it - I have to write a novel!?

I'm the same... esp when I start with the multiquotes... but I forget what I'm replying to without em

Sharon59 wrote:

Been on the Pregablin for 10 days now and suddenly realised that some of the electric shock tingles down my arms and legs seem less which is nice.

I had the same when I started on the Amitriptyline. It's great to be without them isn't it? I've started on the pregabalin a few days ago and now I'm tired and sleepy all the time...more than usual! Sleepier than usual.

bigzippy

raeh wrote: »

i love xmas but not the stress of shopping, thanks goodness for t'internet

I know what you mean. I've vowed not to deliberately set foot in a shop to Christmas shop. Internet, regifting or bits I pick up along the way, that's all I'm prepared to do. Doing quite well so far.

I've even (non-xmas related) managed to rope my big bro into doing car shopping for me/us to take some pressure off. Phewf. He's a salesman (among other things) so he's got the spiel to get us a good deal (worked last time too )... there's a possibility that we may be able to get the mobility car lease extended for, say, another month which would take some pressure off. That reminds me, I want a car with a good ride height, decent boot space (for MIL2Bs wheelchair), hopefully automatic, easy to get in and out of etc. Any thoughts peeps?

somebody_else

bigzippy wrote: »

That reminds me, I want a car with a good ride height, decent boot space (for MIL2Bs wheelchair), hopefully automatic, easy to get in and out of etc. Any thoughts peeps?

Honda Jazz. I've got one, and it's got all that and more. You wouldn't even need to give up boot space for MiL2B's wheelchair (is there something you want to tell us about this? Are you thinking about getting married?) as it has what is called 'magic' seats -which means that not only to the back seats fold in the usual way, the 'bench' part of the seat can be lifted up and locked so the wheelchair could go in the back behind the front passenger and still have room for Mil2B behind the driver. Then you've still got plenty of room left in the boot for luggage/cargo.

Driver seat is height adjustable, and there's plenty of headroom, and the door is shaped in such a way that getting in and out is very easy as well - certainly a lot easier that the average 5 door hatch back.

raeh

BZ i have a golf diesel and i love it [ well at the moment i have a horrible peugeot which i HATE!] the seats are high and getting out im not pulling myself up to get upwards. The boot was big enough for mums wheelchair when she broke her leg in the summer and i could also fit a good amount of shopping around it the golf feels strong and chunky, the peugeot at the moment feels all tinny and light i cant wait to get mine backl or a new one if they cant repair it. The seats support me well in the golf and i was so uncomfy driving the peugeot yesterday i couldnt drive far at all.

Do you get the idea i hate peugeots :rotfl:

we had an A class merc a few years ago and even though the space was amazing, they are so high up i had no trouble getting in and out and the kids could almost stand up in the back, it was a nightmare to drive! really uncomfy

im not much use on cars though im afraid ... if someone tells me they have a new car im a typical woman and ask what colour it is

athensgeorgia

Hello everyone, I'm writing with regards to my mum she was diagnosed with FM around 10 years ago. I just happened to be clicking through different threads and spotted this one and decided to to have a closer look and gave her a ring to tell her what i had found. Shes not very technical and wouldn't be able to navigate this website thats why i'm posting for her

She asked me to ask about painkillers when she was first diagnosed she used to take painkillers to help out but has since stopped taking them because she feels the longer she takes something the less it'll work in the long run iyswim. But she feels the pains getting worse she takes drugs for her underactive thyroid and takes an antidepressant at night to help her relax so she can get a little sleep, but shes recently been diagnosed with arthiritis too and the pains becoming unbearable she wants to know what drugs some of you take and if someones been taking something a while and does it still work to the max effect?

When i was reading some of the posts to her i could tell she was getting choked up she said it was like these had been written about her. Any advise or feedback is greatly received and i'll try and encourage her to sign up and 'join in'. Shes called Frances and shes 61.

bigzippy

Thanks guys, for your suggestions. I've been in my brothers golf and it's a bit small and low for me. The Honda Jazz, I suspect, will be out of my league as I don't think they're old enough to be in my end of the used car market :rolleyes:

And s/e... I don't know what you're talking about? Who mentioned the M word??

bigzippy

athensgeorgia wrote: »

Hello everyone, I'm writing with regards to my mum she was diagnosed with FM around 10 years ago. I just happened to be clicking through different threads and spotted this one and decided to to have a closer look and gave her a ring to tell her what i had found. Shes not very technical and wouldn't be able to navigate this website thats why i'm posting for her

She asked me to ask about painkillers when she was first diagnosed she used to take painkillers to help out but has since stopped taking them because she feels the longer she takes something the less it'll work in the long run iyswim. But she feels the pains getting worse she takes drugs for her underactive thyroid and takes an antidepressant at night to help her relax so she can get a little sleep, but shes recently been diagnosed with arthiritis too and the pains becoming unbearable she wants to know what drugs some of you take and if someones been taking something a while and does it still work to the max effect?

When i was reading some of the posts to her i could tell she was getting choked up she said it was like these had been written about her. Any advise or feedback is greatly received and i'll try and encourage her to sign up and 'join in'. Shes called Frances and shes 61.

Hi Athensgeorgia & mum. :wave:
We seem to have agreed that the longer we take something the less effective it becomes. The drugs I've been are: paracetamol, cocodamol 30/500, codrydamol (can't remember mg but it's very often used for arthritis sufferers), ibruprofen, diclofenac (anti-inflammatory), tramadol (closest thing to morphine without being morphine). I have been known to take a combination of these, giving various results, as you may've read :rolleyes: Some of the posters on here are on morphine patches. The antidepressant your mother's on at night, to help with the sleeping, do you know what that is? We seem to either be on Amitriptyline or Pregabalin/Lyrica or Gabapentin. They do seem to dull the FM symptoms but can have side effects that are niggly. If you or your mum have any other questions, or you want to know, please feel free to ask

athensgeorgia

bigzippy wrote: »

Hi Athensgeorgia & mum. :wave:
We seem to have agreed that the longer we take something the less effective it becomes. The drugs I've been are: paracetamol, cocodamol 30/500, codrydamol (can't remember mg but it's very often used for arthritis sufferers), ibruprofen, diclofenac (anti-inflammatory), tramadol (closest thing to morphine without being morphine). I have been known to take a combination of these, giving various results, as you may've read :rolleyes: Some of the posters on here are on morphine patches. The antidepressant your mother's on at night, to help with the sleeping, do you know what that is? We seem to either be on Amitriptyline or Pregabalin/Lyrica or Gabapentin. They do seem to dull the FM symptoms but can have side effects that are niggly. If you or your mum have any other questions, or you want to know, please feel free to ask

Thanks for the reply. She has Amitriptyline but avoids taking it cause of how it affects her the next day and its the 10mg dose. She wants to know if Tramadol has side effects? Her arthiritis is in her back but sometimes she wonders if the FM is causing the pain too, she hasn't been given any painkillers for the arthiritis and wants to know if anyone else was diagnosed with it after they were diagnosed with FM or if its just one of those things to have both of these problems?

Again many thanks