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Can i claim DLA i have FIBROMYALGIA

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  • sunnyone
    sunnyone Posts: 4,716 Forumite
    Tenth Anniversary 1,000 Posts Combo Breaker
    I was diagnosed with fibro about 10 months ago after 4 years of tests and stupid nonsense..i applied for DLA on the advice of my doctor and am still going through it all,its so exhausting. I had a medical,i had to go to them even though i had just had an operation and to be honest it was the biggest insult,i got a copy of the medical and the 'doctor' had just put none for every question,i was very upset and it sent me further into depression..its a horrible thing to deal with i too have two children and just wanting to go to the park is enough to exhaust me let alone doing it..iam now awaiting a reply from my complaint about the medical 10 months down the line,i found out today that the DWP now recognise fibro as an actual illness but i doubt this will make much difference .

    You dont get DLA for any illness/disability, be it cancer or ME or CP but for the care and mobility needs that arise from any even none diagnosed illness/disability.
  • Anubis_2
    Anubis_2 Posts: 4,077 Forumite
    HI I HAVE JUST GOT MY DECISION, after all the wait , i got a letter the other day ,i have been awarded the higher rate mobility, i would like to say a big thankyou to every one who gave me there kind words of advice and support, i am very happy with the deciosion as this will make a big differance to my day to day life, and the back pay has cleared a lot of debt, and made my children very happy, again thankyou everyone you have been brill:beer::T:j

    Did you get any award for care?

    I have to say to anyone that is suffering do not wait for a diagnosis before you claim, it is not what the diagnosis is, is it how your disabilities affect you - the actual diagnosis means very little.
    How people treat you becomes their karma; how you react becomes yours.
  • lazyfox
    lazyfox Posts: 47 Forumite
    Hi guys i need some advice please.I have just been diagnosed with fibro, plus i have bulging disks,arthritis and rheumitism. I was refused d l a 3 years ago but things are now worse than they were then. I have been on incapacity benefit for 7 years now and it is because of the fibro and stuff but no help no diagnoses so no d l a .I am under a specialist now and go to pain clinic etc all the time. I have been on gabapentin and pregab but niether worked as i have side effects.
    My recent doctors visit has forced me to ask to see specialist again as i don know where to turn. The pain is unbearable most days and i get so i dont want to get up to another day like this.
    D.L.A is only extra money but a least i can pay for help i need rather than expect my 17 yr old daughter to put her life on hold for me. Can you help me and my question is ....Is it worth me claiming d l a again ? Thanks x
  • rogerblack
    rogerblack Posts: 9,446 Forumite
    lazyfox wrote: »
    Hi guys i need some advice please.I have just been diagnosed with fibro, plus i have bulging disks,arthritis and rheumitism. I was refused d l a 3 years ago but things are now worse than they were then. I have been on incapacity benefit for 7 years now and it is because of the fibro and stuff but no help no diagnoses so no d l a .I

    DLA does not require a diagnosis. It can help - sure.
    Of course apply - if you stand a good chance of qualifying and you need the money.
  • Muttleythefrog
    Muttleythefrog Posts: 20,398 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    edited 30 August 2011 at 6:40PM
    lazyfox wrote: »
    Hi guys i need some advice please.I have just been diagnosed with fibro, plus i have bulging disks,arthritis and rheumitism. I was refused d l a 3 years ago but things are now worse than they were then. I have been on incapacity benefit for 7 years now and it is because of the fibro and stuff but no help no diagnoses so no d l a .I am under a specialist now and go to pain clinic etc all the time. I have been on gabapentin and pregab but niether worked as i have side effects.
    My recent doctors visit has forced me to ask to see specialist again as i don know where to turn. The pain is unbearable most days and i get so i dont want to get up to another day like this.
    D.L.A is only extra money but a least i can pay for help i need rather than expect my 17 yr old daughter to put her life on hold for me. Can you help me and my question is ....Is it worth me claiming d l a again ? Thanks x

    Yeah as above... diagnosis not necessary as sickness benefits are based on effects day to day.. diagnosis helps because then it gives some backing for claim of expected effects. (i.e. I need encouragement to get out of bed because I feel depressed... versus I need encouragement to get out of bed due to diagnosed clinical depression.) Might be worth you seeing if specialist can help in terms of evidential support for a claim. If you complete a claim and jot down the problems you have that give rise to the care/mobility needs relevant then perhaps you can supply those details to the specialist and GP in case they're contacted for evidence... or even better get them to confirm your problems. Sadly it is hit and miss as to whether they'll be of any help for claim... and indeed regarding getting awards of DLA.

    Good luck. And if you need advice it might be worth looking for 3rd party legal advice... CAB/welfare rights. And it might be worth seeing if there are any online sites for fibro sufferers... if there is I would take a calculated guess disability benefits claims will be an issue they discuss.
    "Do not attribute to conspiracy what can adequately be explained by incompetence" - rogerblack
  • lazyfox
    lazyfox Posts: 47 Forumite
    Thank you for your quick replies.I know its not just about the diagnoses but about what problems i have.I am in constant pain day in day out.My daughter has to come anywhere with me for support so if shes not here i dont even go to local shops. I cannot use the bath at all, i have applied to council for help with a shower, they need a letter from physio or the like so awaiting that letter now.I have many burns on my arms where i have had accidents trying to cook and preparing a meal is almost impossible as i get serious backache cannot stand or sit for too long and the pain in my arms hands and fingers is bad.For 8 yrs i have struggled and it is getting worse. I dont want to go on about it but i really need help so as my daughter has not got this burden.Otherwise i would just get on with it. With a little as low rate i can get outside help at least a couple of days a week :)
  • Morglin
    Morglin Posts: 15,922 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    hi i would like to say thanks to everyone for their advice , i have recieved my dla form and i will be seeing a welfare adviser.I will be looking at some of the websites, some of you have told me about and hopefully learn and understand more about fms, i think everyone has been great and it has helped me a lot , i never knew these were there,i will let you know what happens, and any more advice would be great thankyou:A


    This site gives a lot of info on DLA:

    http://www.benefitsnow.co.uk/

    Lin :)
    You can tell a lot about a woman by her hands..........for instance, if they are placed around your throat, she's probably slightly upset. ;)
  • I have fibro and just been refused despite my GP supporting my claim.

    Obviously I do not have fibro and will run up the stairs I have not been able to climb for over 2 years. Also not sure why I have slept on sofa in living room for 2.5 years due to not being able to access my bedroom.

    :(

    Seeing GP tomorrow.

    Also job of 5 years ending next week as employer will not renew contract as I am not well enough to work there :(

    Its pants all around and people are surprised we get depressed!
  • rogerblack
    rogerblack Posts: 9,446 Forumite
    I have fibro and just been refused despite my GP supporting my claim.

    Obviously I do not have fibro and will run up the stairs I have not been able to climb for over 2 years. Also not sure why I have slept on sofa in living room for 2.5 years due to not being able to access my bedroom.

    The DWP doctors are simply magic!

    On a more serious note - you do know you can appeal?
    I'm awaiting my tribunal, and getting somewhat nervous, as it's in about 9 hours...
  • hi just found your forum. i am new to this and after 18 months of suffering I have been diagnosed with fibro. I'm gutted, I am self employed as a child minder and have had to give up. I am a single Mum and get working tax credits, which now will stop. Does anyone know please if there are any benefits I can get. I am behind on my mortgage, have 3 kids, one 16 year old at college, which I.ve just used up my money on uniform and materials for her college. I have no income coming in. Please what can I do. endlos
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