Can i claim DLA i have FIBROMYALGIA

debbiedolittle_2

my_two_cents wrote: »

With orthostatic hypotension, you get a different blood pressure reading standing up compared to lying down, so if the person doing the reading is not aware of your condition, they just ask you to roll up your sleeve :cool: . . .

hi thank you , i have suffered low blood pressure for years and i never thought that it could do so many things, i will see my doctor and ask about this, and get him to take my boold pressure in differant ways again many thanks

debbiedolittle_2

LindsayO wrote: »

debbie,
I've just read your thread, sorry to hear you are having such a hard time
I have an undiagnosed neuro condition and get dla (higher mobility, lower care)
The neuro thinks I have something like MS and something like ME/fibro I just don't have the right set of symptoms to get either diagnosis

One thing that occured to me reading your symptoms (panic attacks, feelings of dread, blackouts) is that you might have a blood pressure problem. Both my dad and me have chronic low blood pressure and we also suffer from sudden extreme drops in blood pressure. This causes a terrible feeling like you are going to die, really awful like everything is just sinking away from you.

The difficulty is that it often goes undiagnosed for years, since people's blood pressure often shoots up at the doctors, so if its normally low it appears normal whenever its checked

hi thank you for your kind advice,i really appriciate it, i will see my doctor and check this out

Pink_Eyes

LindsayO wrote: »

The neuro thinks I have something like MS and something like ME/fibro I just don't have the right set of symptoms to get either diagnosis

It's possible to have a disability/illness and not have all the symptons. I appear to have and do know many peple who do as well.

debbiedolittle_2

hi i must say that over the years the doctor has sent me to hospitals for tests, every type of blood test, xrays , diferant medication etc adn it has taken many tears to diagnose my condtion, i have seen consultants, rhumy, phsyiotherpy, conselling this has been going on for 10 to 15 years so my dianoses was very through and my condition has got worse i also have many other factors like asma etc so all of this has taken it toll on me and now i feel worn out in pain and still no better only worse, i would give anything not to have and feel like this,

my_two_cents

debbiedolittle wrote: »

hi i must say that over the years the doctor has sent me to hospitals for tests, every type of blood test, xrays , diferant medication etc adn it has taken many tears to diagnose my condtion, i have seen consultants, rhumy, phsyiotherpy, conselling this has been going on for 10 to 15 years so my dianoses was very through and my condition has got worse i also have many other factors like asma etc so all of this has taken it toll on me and now i feel worn out in pain and still no better only worse, i would give anything not to have and feel like this,

Here's a few more website for you to google for help with coping, benefits, etc You would find that you are not alone. Took me over six years to get a diagnosis, I know some people that waited 20 years . . .

http://www.fibromyalgia-associationuk.org
www.painsupport.co.uk
Brainfog (ME) similar to FMS
www.foggyfriends.org.uk
www.youareable.com
www.investinme.org/index.htm
www.ahummingbirdsguide.com/hummingbirds.htm
www.lift-depression.com

debbiedolittle_2

HI I HAVE JUST GOT MY DECISION, after all the wait , i got a letter the other day ,i have been awarded the higher rate mobility, i would like to say a big thankyou to every one who gave me there kind words of advice and support, i am very happy with the deciosion as this will make a big differance to my day to day life, and the back pay has cleared a lot of debt, and made my children very happy, again thankyou everyone you have been brill:beer::T:j

foxxymynx

sorry I didn't read the whole thread.

Congratulations

joe1963

Hi I was also wondering if I would D L A I have fibromyalgia I have been told after years of pain and all the I have tried before when I had cancer of the thyroid and never got it I also now have peripheral neuropathy and faibromagia and get pains all over from the soles of my feet right through my body tired all the time I don’t think need to go on as you all know the way it is forget things and so on any help would be great thanks I will put my sons e mail address incase I cant find this site again pls right thanks

Joe

joe1963

sorry forgot to put the e mail address in it is [EMAIL="oddball672003@yahoo.co.uk"]oddball672003@yahoo.co.uk[/EMAIL]

mary_poppin

I was diagnosed with fibro about 10 months ago after 4 years of tests and stupid nonsense..i applied for DLA on the advice of my doctor and am still going through it all,its so exhausting. I had a medical,i had to go to them even though i had just had an operation and to be honest it was the biggest insult,i got a copy of the medical and the 'doctor' had just put none for every question,i was very upset and it sent me further into depression..its a horrible thing to deal with i too have two children and just wanting to go to the park is enough to exhaust me let alone doing it..iam now awaiting a reply from my complaint about the medical 10 months down the line,i found out today that the DWP now recognise fibro as an actual illness but i doubt this will make much difference .