Superpap's positive mutterings about debt/savings...

rog2

Hi PaP - You know that many of us follow your threads, and we don't like it when you are so 'down'.
I, obviously, can not appreciate the effects that living with pcos can have on a person. I have been reading up on it, and am amazed to see that there is no actual 'cure' and that most treatments seem to focus on treating the individual sympoms. It looks as though they are a long way from finding a lasting cure to what must be a very debilitating syndrome - certainly not helped by the attitude of people who know nothing about what you, and up to one in every ten women in the UK, have to endure.
I did find a few support sites, such as http://verity-pcos.org.uk/ but you probably have already looked at these.
It certainly looks as though your local GP's practice should be referring you to a specialist - at the very least.
In the meantime, PaP, we, at least, can understand the reasons for your mood swings, and whilst we may not be able to offer much help, we can certainly wish you luck in not letting this thing beat you.

barnaby-bear

postingalwaysposting wrote: »

Thanks bb, the problem is I cant get to a support group because I work felxi shifts and also my confidence isnt there to go. I just tend to bottle it all up now and just get into a pattern of work, sleep, pc only when I have a day off I feel like I am worth better than this. To be honset I have given up with doctors, sad but true, they arnt worth bothering with now as I get the same thing everytime I go 'you need to lose weight', so I dont go and just tell myself that saves the hassle. My biggest problem at the momment is my 'face' is dropping, ie the one I put on everytime I go to work so no one susspects anything. Trying to hide everything is very hard and its getting to a stage now that I cant do it any more.

Thanks for your kind words

People don't hide it when they have a cold or cancer or chicken pox or even stress - you have a genuine medical condition and no-one can battle on regardless or hide the problems associated with a serious condition. You shouldn't have to cope with so little support and everyone here is taking it very seriously. Are there any online forums

barnaby-bear

rog2 wrote: »

It certainly looks as though your local GP's practice should be referring you to a specialist - at the very least.

I have to say I thought this as well - that this is a specialist area and not really appropriate for a GP to manage long term.

Gemmzie

PAP, have you tried alternative medicine? It'll cost but it might just work, gotta be worth a go right?

daphne_descends

Hi Pap :hello:

Rog and BB are right. It's disgusting that that you are being treated like this. What's sad is that it's made you lose faith in doctors altogether - some of them are really great and it's a shame that the standard of care out there varies so much. Everyone should receive the same level of 'service', regardless. Telling you to lose weight before addressing a condition that CAUSES you to gain weight is really not acceptable. I would really urge you to contact your local Primary Care Trust and complain - there are good NHS staff out there and someone will really care about what has happened to you and want to put it right. Please don't give up like this. You are worth so much more.


As for people in 'real life', well !!!!!! anyone who is going to judge you - it is just a way for people to highlight how insecure they are about themselves if they need to laugh at others to feel good. Honest genuine people aren't like that. People who are rude/horrible etc just do us a favour by showing us they are not worth the effort of getting to know in the first place

daphne_descends

Actually that's a great idea from Gemmzie - you will probably find that people working in alternative medicine/therapies care FAR more about the individual person than anything else and their goal will be trying to help you, not sticking to their budgets or anything else.

postingalwaysposting

rog ~ yep have loads of books here that I am in the process of ebaying. I love that site you posted and its forum however unlike here its something I cant really speak about. Dont know if that makes sence? but I can and will openly speak about money/crafts/spaorts etc but when it comes to me I cant just waffle on to strangers. Yes the moodswings people (mainly my mother) think its juyst me being akward where in fact I cant remmber a day where my mind has been stable since I was about 7ish. there is a semi cure but its taboo because it invoules removing the patients overies/womb ie a hystorectomy and unless you can get them to do it privately they will in no way attempt it, not on someone so young. I beleive however getting rid of the things regulating (or not so in my case) my hormones will sort me out. The doctors care to disagree.

bb ~ I hid from everything/everyone. Only now have my work collegues been notified what my condition is (after being there 3 years) and that was purely because I couldnt take it any more. The person I go to work as and to a degree the person I went to the meet ion jan was wasnt the usuall pap, I cant be me I cant be myself I have to hide/cover/make out I am someone/something else. This takes time/energy none of which I have when I am so low. You explain that to a doctor and they look at you as if you are something from outer space and then they fob you off with excuses. Now I know docs do a lot for a lot of people I am not knocking them but when they cant even offer someone help when there is someone not to far away from me who gets 5 months off work payed because shes is depressed yet she can go to party's/out nearly everyday she then gets councelling and disabilty. I work fulltime in a job I hate to pay into this governments great system and when you ask for help you are knocked back, time and time again. There comes a point where you just want to give up and I guess thats what 'they' all want.

gem ~ There is no alternitive medicine. Basically everyones body is controlled by hormones. If your hormone balance is wrong tehn your body messes up, there is no way of getting that back inline. I have tryed the diets and none of it work. To treat the symptoms there are loads but I have tryed a handfull and had no sucess. I have tryed herbal stuff to stop you getting depressed and I have tryed lotions and potions but there is no sucess with any of them. Now I just deal with the outward signs (ie my hair) and just try and switch of all emaotions/my brain to stop gettig depressed. It doesnt work however but hey I try. I did go for a consultation for laser treatment for my face but the person said it wouldnt work so there will be no point spending my money on it. But there are things I can never change about myself anyways, such as broad sholders, boobs that cant even fill an A cup, hairy cheast/stomach, hairy feet, thinning/hair loss on my head. I dont care that I am overwirght I like myself the weight I am however acording to the docs losing weight will make me into this marvolous woman with no sypmtoms ~ I on the other hand am not conviced but hey once I start losing weight and then get fatigue (another symptoms) the docs can sort that too.

I have come to the fact that I will never be anything other than someone who is part woman part man. No one can change that and sadly unless I win teh lottery no one will take me seriously to sort out my symptoms to make me feel more of a woman. So in the mean time I will just carry on how I am, with no solutions.

Gemmzie

By alternative medicine, I mean, homoeopathy. That's probably the best place to start. It can't hurt right? Do you take anti-depressants? They might help stabilise your mood so things don't seem so bad. Are they asking you to lose weight so they can put you on the pill?

postingalwaysposting

fac ~ I have gone past giving up and I am past the turning to find my way back too. If I am honest I hate doctors, I hate the way they will not take me seriously and they seem to think its ok for a human to go throught this. To them I am a number, some person out of the thousands they see with a problem, they dont care. Doctors and nurses do do a good job and they are great people but I guess it depends what situation you are in etc etc.

Gemmzie

postingalwaysposting wrote: »

fac ~ I have gone past giving up and I am past the turning to find my way back too. If I am honest I hate doctors, I hate the way they will not take me seriously and they seem to think its ok for a human to go throught this. To them I am a number, some person out of the thousands they see with a problem, they dont care. Doctors and nurses do do a good job and they are great people but I guess it depends what situation you are in etc etc.

I totally get how you feel here hun, I've given up on the doctors too and they've made it quite clear they've given up on me, so I've decided fcuk them, I'll find another way to feel better.