Aspergers/ASD support thread

isualive

Thanks, Hi 2 u 2.

My older children don't bother with shoe laces either, kids eh? He has slip on shoes & velcro trainers, it's just the football boots that need the laces done up!

karmacookie

Yes, football boots, thought that was going to be a majot problem but we gor those ones with the sort of large tongue that has elastic so goes over the whole shoe. We cut the laces and tied knots in them so as they don't trip him up! This seems to be working, he hasn't lost one yet playing football/rugby!

isualive

What a good idea, I might give it a try. Thanks! I better go now as the school bus has just dropped my son home!

quietheart

NoahsPennilessMummy wrote: »

OMG! Just had a look on the dyspraxia website that someone on here suggested and noah has every symptom:eek: .

that's just how i felt when i stumbled across it! it's worth having it diagnosed if it means he'll get occupational therapy, I know a child who was given a tilted board to write on and suddenly he could write, small things can help. See what the centre say and try not to worry.

shazrobo

wow a lot of posts on this thread today, and they made interesting reading. my two sons are 12 now, and have a phobia of public toilets, they are ok going in for a wee, but if they need a poo they will try and hold on til they get home not always possible if out for day and we still have accidents, they occasionally still wet too, but being at special schools, they just accept it and help they change.
thought my sons were the only ones with toilet troubles

Savvy_Sue

I have to say that I have had (and still have) more problems with DS3 and the toilet than with DS1, and I don't think DS3 has AS! And it is not that uncommon to have problems with unfamiliar toilets - I am quite sure that NONE of mine have ever used the school toilets unless they were absolutely at bursting point.

TBH, even now DS3 will only use the family bathroom if he needs to do more than a wee - he does not like the downstairs loo, especially at night. Mind you, nor do I! He used to use MY ensuite but that's been out of order for a while, and I didn't like the intrusion: it's good to keep one female friendly room in the house ...

So, to anyone who's found this thread after doing a search for children's toilet problems, please do not leap to the assumption that your child has AS, ADHD, dyspraxia, or anything else 'different'. Normality covers almost as wide a spectrum ...

Oh, DS1 used to hang on to his 'equipment' all the time when he was at nursery, mercifully outside his trousers. I would just gently move his hands somewhere else and remind him that it wasn't going to fall off. I didn't think of it as unusual behaviour, TBH.

blue_monkey_2

Morning everyone - well, what happened on here? I've been away (OK, cleaning the house from top to bottom and packing - I NEED a rest!!!) for 5 days and now I have 6 pages to catch up on!! Eek!! Great to see so many new people with us.

I wanted to add that both of my children have had ear defenders for a couple of years now, they are made by a company called Peltor: http://www.kidshearingprotection.co.uk/ they cost me about £33 for 2 pairs but I have a pink pair for DD and a yellow pair for DS. I got them because they are both petrified of noises and we was off to Florida and they wore them for the flight and also for the fireworks and I bought them before this so they could get used to having them. DD is so scared of noises that she actually vomits if she hears something loud - and these have done wonders, they don't block everything out but they block out the 'loudness' of it (is that even a word??). I never thought of taking them to the supermarket and shopping with me for Ryan in all honesty, we've just taken them to firework displays, if we are going somewhere that there might be fireworks going off they come with us, they wore them on the flight as well while going up, but they are fab and well worth the money. Hope this helps someone, I am just going to catch up with the rest of this thread - you can tell the kids are back at school!!

blue_monkey_2

Still on page 21, :eek: LOL.... some catching up to do.

I am having a moan on this post, sorry.

Something terrible has happened and it seems to be the way everything is going now. I spoke to the teacher this morning and told her about the impending eviction and she asked if we would stay around here and I said that I thought because Ryan has his TA then they would have to keep us around here. And then she said 'you do realise he does not have his TA now, it was only until Xmas?' I said no I did not. So, he now has no TA but 'it's OK as there are now 2 teachers to 11 kids'. !!!!!!! I was told on my paperwork it was until march when he was reveiwed. I feel like the bottom has dropped out of my world to be honest, does that sound silly? So that means my son has no TA and the council can stick us anywhere as we are not tied to this school now. Why does everything seem such a damn fight, if you look on the website for the housing people who have been in prison, drug takers and alcoholics get first priority over normal tax paying familes who just cannot afford to rent privately or buy, we have not even got enough money for a deposit let alone a months rent without getting into the red with our banks (and I know once in we will never get out again) PLUS I've been told we will have to pay my mums £1000 legal bill too for evicting us. you couldn't make it up!! My business has to close tonight and everything go into storage so I am going to be stuck at home with naff all to do and no money. My mum said to me 'can you still work from the hostel?' and I said no mum, my business is closing tonight and everything going into storage. She didn't even answer.

The doctor done me a letter for the council to say he had referred Ryan but he has put the WRONG living address for me. it took a week to get the letter and no time for a new one to be done and get it in before the council doctors came.

On top of this, when Ryan was at his last nursery there was one little boy he took a dislike too - every day (and I mean every day) I was being pulled aside for him having bitten or hit this other little lad so in the end I just stopped sending Ryan to this Nursery school as it was not like he HAD to go and he was clearly not enjoying being there. Well, the kids get mornings or afternoons and they are supposed to liase with his old nursery about the kids going in but this other little boy is going to be in the same morning nursery class as Ryan. I am dreading it now to be honest as I know Ryan is going to go for him and especially with not having the teaching assistant, I have told the school so i guess I should stand back and just watch the fireworks. I have told them he has been referred so surely they should realise he has a problem.

And I have still not heard from the Paediatrician about an appointment. I was told it would be a few weeks, it has now been a month, just how long am I supposed to be waiting. What with this and the eviction, I don't know what to do

I am sorry, it just helps to get these things off my chest sometimes but I am feeling pretty glum about everything right now but I am holding it all together for the sake of the kids. I am sure everything will come right in the same week. got to keep on smiling (on the outisde!).

blue_monkey_2

Caught up.

Interesting about the foods, DS hardly eats anything, he is asking me for lunch now I will do it and he won't eat it yet if I don't do it he will keep on until it is done. He is funny about food too and hmmm, carbs are a big thing for him too.

You know I sometimes wonder if I am reading too many things into this, do your kids have 'good' and 'bad' days? Are they 'bad' all day? Maybe it is because we are having a good time right now, that being said he did have a strop earlier and he is still biting other kids and himself. He has taken to be ing a 'rat' all day and it seems that it gives him a 'red light' to be vicious to people. I can be sitting here and he will come up and put his nails down my face and say 'rats scratch' or bite me and he gets up in the morning and he cannot just lay beside me in bed he has to be jumping all over me, kicking me in the face, headbutting in the face, or the very nice putting his bottom in my face without a nappy on - just how many times can you tell one child not to do that please!! I tell him not to do these thing but it makes no diference. Does anyone else have this. I just wonder at times if he is just 'normal but difficult' but I cannot cope with him being normal *sigh*. I wonder what it would be like to have a 'normal' family life. I cannot go swimming or to the shops or cinema unless I have someone else to 'take over' with DD when he goes off on one. We can't go out to eat as we usually get in the door and he is running off, hiding under tables, trying to get out again, he has no interest in the food coming even if he has not eaten all day.

About the toilet thing, when he goes for a poo he will not have anyone else in the bathroom with him, he does go and if we are out he has to go to the loo every 5 minutes, I suspected it was to 'check out the loos' as he will go to a different one each time. I have read about detachment (I think) and that you should say 'bye' to the poo when flushing it away. Anyone else tried this. As I said, we have been very lucky with the toilet but he will hold in a poo if we are out, it has to be at home unless he is bursting (and he did burst once, at Colchester Zoo in front of the fast food place where everyone was eating and this HUGE poo fell out of his shorts. I laugh when I think of all the horrified people eating their bdinner now, LOL!! I had already taken him to the toilet twice, what more can you do??

I wanted to ask, when your babies where younger at what ages did they sit/walk/etc... especially those mums who have ADHD kids. When Ryan was 6 weeks old we got on of those mobiles on the mat that they lay under but he used to scoot about 4 foot away from it with his legs, by 3 months he was in one of those standing rings with the toys on it, by 5 months he was pulling himself up and a few weeks on he was walking around the furniture, he took his first unaided steps at 8 months - and he has not stopped since. I think he did crawl, it must of been around 4 months. It seems bizarre to me when I see mums with babies that are 6 months old and they are not doing anything as Ryan was doing too much. He was very grizzly as a baby if awake and he dropped his daytime sleep early, he was about a year. I was gutted!! Any other thoughts on this, it is something I have always pondered but not had anyone else to ask about.

Off to get lunch now so will leave you in peace. hope everyone is having a good day. Isn't it great to be back in school, just for a few hours but it just means I get some 'me time' for a change.

NoahsPennilessMummy

Sorry to hear you are having such a hard time
I havent read all the posts from the start so I dont know the whole story about what is happening but is all seems a bit severe.
I will have a look and catch up with the eviction etc but wanted to write this now so you knew someone was bothered ((hugs))

I dont know how the school can do that to your child!

It has just taken me months to get support in place for noah but the school were happy for him to start school with no one to one and just "keep and eye on him!"......i was not happy at all with ratio of one to 13....he would not cope so i said he wasnt starting school till he had support.

Has your boy got a diagnosis or statement yet? noah was diagnosed at 2 and got statemented straight away and although everything is always a fight it is a bit easier once they are statemented and it is all set out.

sending you hugs
claire
xx