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Aspergers/ASD support thread

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  • D&DD
    D&DD Posts: 4,405 Forumite
    *Raises hand*
    We have toilet ummmm issues too :o Thankfully he will use a toilet now...sort of :eek: He will poo in it but will go to wee all round or on it..very annoying when Dads 'supervising' while I'm doing dinner..I run in for a quick wee and :eek:
    Always had probs with pooing Rovers and yes constipation to the point of impaction when he was little..Since we started the diet and fishoils it seems very much improved :D

    When he was younger he would only pee on a certain piece of carpet right in front of the tv..or in my tomato plants :rotfl:
  • Thanks for the info about the portable toilet seat.....i have looked at these before but not sure if he would still resist as he would see the black seat before i put the cover on:o .......he is so obssessed by black seats that he has to go and look at the loo wherever we go to see what colour it is.

    D&DD i tried Noah on the EQ fish oil liquid but he really reacted badly....he screamed for 2 weeks and i didnt know what was wrong but wondered if it had been the fish oil....i stopped it and within a few days he ws back to normal!!! will not be going there again:rolleyes:

    some people speak highly of it tho
  • Snaggles
    Snaggles Posts: 19,503 Forumite
    We tried the Eye-Q stuff too, with no effect (we followed the instructions exactly - high dose at first, then reduce after 12 weeks). I've heard plenty of other people say they have had good results with it though. Boots have it on permanent 3 for 2 I think.
    "I wasn't wrong, I just wasn't right enough."
    :smileyhea
    9780007258925
  • OMG! Just had a look on the dyspraxia website that someone on here suggested and noah has every symptom:eek:

    admittedly a lot of them overlap with his autism but other more specific ones......still unable to ride a bike ( nursery tried for over a year and got nowhere), unable to hold pen/pencil, still not left or right handed speak volumes.....

    I will have a word with Ryegate ( his specialist centre) and see if they have any thoughts.:confused:
  • kylieM wrote: »
    I am really sorry for what I am going to say, but here goes, Sam had a habit of pooing on video cases (stopped now) so maybe weird toilet behavior is an autistic thing.

    He has started fiddling with his member in public recently, but he is coming onto that age. Anyone else found this?

    My son started doing this when he was around 8. It could be quite embarassing! DS has to fiddle with something when he is having a conversation, luckily now it seems to be pens!

    When he was fiddling with his thingy a friend suggested that I take him to the Doc to make sure he did not have some kind of irritation that was causing this. He was about 10 by this stage and we took him to the Docs and there was nothing wrong. Poor wee mite though was so embarassed that he never played with his thingy in public again!
  • OMG! Just had a look on the dyspraxia website that someone on here suggested and noah has every symptom:eek:

    admittedly a lot of them overlap with his autism but other more specific ones......still unable to ride a bike ( nursery tried for over a year and got nowhere), unable to hold pen/pencil, still not left or right handed speak volumes.....

    I will have a word with Ryegate ( his specialist centre) and see if they have any thoughts.:confused:


    Quite often dyspraxia goes hand in hand with ASD. My son has both but is improving on both fronts with age. He is nearly 13 now and eventually learned how to ride a bike (no stabablisers!) at 9 years old. He has had input from OT, things like soft play therapy, ball skills and help with his writing. His writing is still terrible and he can't tie laces but he does play for the school B rugby team which is quite an acheivement for him!
  • dr at camhs gives my dd2 lyrinel xl 10mg tabs to stop her wetting herself in day and at night she is 9 and still has the odd accident in the day mainly at school when they have a different teacher i keep going in about this but she is now dry at night It's took about 2 years of tablets so far but sould be of them in 12-18months with a bit of luck.She still has to be reminded to go to the toilet as she can't hold on to long but she a lot better than she was used to be wet quilt sheets even pillows sometimes three times a night and wet clothes 4-5 times a day now maybe twice a week
  • Thanks for that:T

    i will speak to them and see if they feel some OT support would help him.
    This autism is certainly a learning curve!!:confused:
  • isualive
    isualive Posts: 6,970 Forumite
    Part of the Furniture 1,000 Posts Photogenic Combo Breaker
    My son is 13 but when he was younger he was a nightmare. He wouldn't poo for days, & when he finally went he always complained about the smell.

    Nows he's older he's much better. He is very suspicious though of strange toilets, & before now has refused to go in certain public loos.


    On a different subject!

    His handwriting is not good. He has gross & fine motor skills delay which causes his writing to be messy. This is generally because he sometimes shakes when writing.

    If he really concentrates & takes his time, his writing is much improved. He also can't do his shoe laces up & finds scissors hard to use.
    Kind words can be short and easy to speak, but their echoes are truly endless. ~ Mother Teresa
  • Hi Isualive

    sounds like your son has similar probbs to mine, he also shakes when trying to do something intricate like writing. I don't worry too much about it though cause he has excellent computer skills and lets face it Doctors have terrible writing!! School did offer him a lap top but he doesn't want anyone to know he is different, bless!

    As for the shoe laces I work as a Youth Worker and can confirm that most teenagers don't bother to do them up anyway so I don't suppose its too big a deal and there is always velcro!

    The loo thing, my DS loves visiting toilets he even marks them out of 10!!! If they score really low then he refuses to use them. On the other hand if we are out and about and he finds high scoring toilets he seems to have to visit them every 5 mins!! Ah the joys of ASD parenthood it indeed is an interesting journey!
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