Aspergers/ASD support thread

Zara33

blue monkey i will post this quickly as i have to do the school run, trust me i know exactly how you feel but you have to think about yourself. i wasn't having a dig at you honestly i wasn't you have to be fit and well for your lad and you won't do this if your run down.

bbl

D&DD

Hi BM well it took us 3 years to get our statement :eek: If I can pass on a tip though which got us it eventually..it will be worth all the carp we went through if it helps just one person!!
Take a look at IPSEA's website It has a template letter http://www.ipsea.org.uk/sevenfixes.htm which requests a full asessment of your child.The LEA then have 6 weeks in which to reply to your request.:D
Gets their backs up usually but cuts out the middleman (the school)

D&DD

ooh Duchy you were in the next borough to me then

NoahsPennilessMummy

I don`t think you need a diagnosis to get a statement.

Noah was diagnosed with autism at 2 and then because he was going to an autism centre for therapy for 3 days a week they automatically put everythig in place for his statemnt and it all happened very quickly.

He got a statement very easily and it was all in place ready for him starting mornings in a nursery at 3...he got one to one etc.

Bear in mind tho that many councils try to avoid giving statements if they can and it has got worse recently.....i know of several children with autism who are 6 years plus and non verbal and cannot get a statement!

Parent partnership can help advise on all aspects of having a child with SEN.

also have you ever thought of applying for DLA to get a bit of money to help with the cost of having a disabled child?

There are some things I have had to buy like a disabled buggy for £300 which i would hve struggled to do without it.

NoahsPennilessMummy

and i would agree with what D&DD said and use that template letter.......that will help get the ball rolling.

as i said Noahs statement got sorted very quickly as many professionals were involved but people i know who did it on their own found it a hard slog:rolleyes:

sunflower_2

hi everyone

i havent posted for a long time, but read posts whenever i get spare time (rare).

i cannot believe how many people are in the same boat as me, nor how many children seem to have Aspergers

maybe Aspies are normal - and we are the "weird" ones???

my eldest son is now 11 and was diagnosed with having AS and Dyspraxia mid 2007.
we have fought for this diagnosis for 6 years.

we have always known there was something not quite right.

having the diagnosis makes a HUGE difference to me.
before i would get angry with him when he went into a trance at a supermarket and "showed me up"
whereas now i am a lot more patient????

by the way - he is also called Ryan !?!?!:eek:

I get upset a lot recently as I just dont find the time to spend with him, listening to him go on and on about football facts (i have 2 babies).

ryan spends most of his time on his own and seems to prefer it this way.
i feel guilty because sometimes i am relieved as it makes things easier for me.


i feel like a terrible parent

quietheart

just a quicky as i need to go out.
i had my son statemented whilst he was at nursery, my friend's daughter was statemented prior to her starting nursery so being too young isn't an issue. i did a parental referral as i felt he would need support ongoing, if he didn't need the statement in a couple of years then great but he needed it then so I pushed for it. he was diagnosed with asperger's before christmas and is nearly 7 i'm so glad he's already statemented as it'll make support quicker and easier. will postmore later!

sunflower_2

sorry by the way for hijacking the conversation!!

seven-day-weekend

Hi all.

Talking about development stages.....

My son could lif t his head up from the monment he was born. It was the fashion 28 years ago to lie them on their tummies and Ben would push himself up on his arms as if he was doing press-ups. I told th midwife I didn't think newborn babies could do that, she said a few can.

He also talked REAlly early. He spoke in sentences at a year old and my husband has recorded in his diary that Ben said 'look Dad, I'm on the front of your back'. when bouncing on his dad's chest at fourteen months:eek: . He always had a very wide vocabulary and would make words up if he didn't know the name of something (like 'brickage' when he didn't know the word for brickwork).

He never crawled, he just walked around holding onto furniture from about ten months and then walked on his own at fourteen months.

He was about average with his toilet training and as far as I can remember, didn't have any problems with it.

He was late learning to read, but once he learned went off like a train and soon had a reading age about four years above his chronological age.

He was very good with making lego (he would make lego models that 'transformed' like the Transformers who were very popular at the time. He still buys himself lego now, at 28).

He was very slow at learning to tie his tie and shoelaces and even now has a problem with them, not so much the laces but the tie.

Can't remember anything else at the moment, but hope this is helpful to you younger mums with small Aspie sons.

I wish we could have had a diagnosis and Ben could have had the help that he needed, but AS was not recognised as a condition 28 years ago. We just had to do the best we could on our own with our 'odd' child whom teachers said was lazy and irritating. They never mentioned any of his good points.

Still it's good that today's little boys are being helped!

To the lady who is being evicted - what a worry for you, surely the council will find you somewhere if they know your family difficulties? Do you have letters from the Doctor and things like that?

blue_monkey_2

Hi guys, No, don't worry Zara, I know you was just looking out for me, I was just trying to say that I am trying to keep smiling on the outside but inside I feel like crying. I know you were just looking out for me

Thanks also guys for all that information. I've just been on the local authority website and it is crammed full of information. I am not sure what to do next for the best, Ryan is not yet 4 so I wonder if people are going to think I am being a bit pre-empt in all of this but then I think I should do it and find out before it gets to FT Ed stage. I was telling a US friend of mine was going on and she asked if I had considered home schooling him............ after I had finished screaming I then had to mail her and explain that selfish as it seems School was my only 'time off' so there was no way I could consider home schooling. Can you imagine!! He wouldn't get anything done but would know how to be an MSE!!

There seem to be so many descisions to make these days. I thought being a stay at home mum was supposed to be easy!!

out of interest though, do any of you think I should wait until we are housed to get the letter? if they move us in 6 weeks to a new area, surely that would mean starting all over again and assessing him in a new school with no-one he knows is not going to be the best. What are your thoughts on this. And also, if we get moved I am assuming he would go to the nearest school and would I have to be honest about what has happened in the past. Can they refuse to take him for this reason. I am worried they might refuse to take him (and DD) into school if we have to move areas.