Aspergers/ASD support thread

NoahsPennilessMummy

Noah is very thin and they finally took me seriously when they weighed him and he is now just on the 50th centile line......as he was 11lb when born and he was on 99th centile:o there is definately something amiss with his weight....hence the referral at last to dietician:T .

Is it common then for autistic children to have problems with writing? or does this mean they also may have dyspraxia? alarm bells ringing here

Snaggles

Hi Rovers, the meeting is on the 14th, but we aren't going - it's just CAMHS and the school......I have no idea what's going on...

I've got the contact details for the parent partnership thanks, I am just waiting to see what CAMHS say first and then I will get my head together and start workign out a plan of action.

Hope everything's okay with you hun.

D&DD

Rovers our EP/paed said threading beads onto string,playdough and hanging from monkey bars(?????) all helps low muscle tone,ligament dexterity etc..I also find DS types beautifully(when dictated to) but can't write legibly and spelling 'doesn't count as he's russian :rotfl: '

isualive

kylieM wrote: »

isulive.... how did you overcome it. Sam is 12, very tall and very fat (we joke he has man boobs).

Robert weighed 8 stone when he was 8 yrs old.:mad: :mad: :mad: :mad: Terrible I know. I looked at the future, & was petrified that he was going to put on, a stone for each year of his life! It took a lot of tantrums, but I banned White bread, cheese, chips, biscuits, battered food, fatty spreads, pizza, full cream milk etc.

The ban was for the whole household, as it was the only way it was going to work!!

To be honest the list is endless. We even started a veg patch at the top of the garden!!! Robert loved growing veg!

After a few weeks we allowed cheese as a treat! Biscuits are allowed at weekends, & chips are allowed on holiday!

Robert now weighs 9 stone. He is 13 & 5ft 5" tall. His man boobs are long gone!!!!:rotfl:

D&DD

isualive wrote: »

Thanks! My son had his statement when he started school. As he got older he needed more one to one. In the end he spent most of the time being excluded from his peers & being taught in the corridor. Not ideal.

I was so frustrated & spent years fighting his corner. I was told by the headmaster in the car park that he needed to go full time to a special school.

What a joke? I felt so humiliated. It took 6 months but he finally got a place.

It's so unfair that you can't get a place. Luckily Roberts is only an hour away. He leaves home at 7.50 am & gets back at 4.20 pm. Not nice in the winter, as he leaves & gets home in the dark!

See this is where we come unstuck because when he kicks off at school he 'only' hurts himself so they don't worry..and say they can cope..if he was excluded more often he would be out of there and in a base/special school before his feet hit the ground.
He's flooded the loos,strangled himself til he passed out,nearly put his head through a solid wood door (headbutts are his specialty)and had another child by the neck up against a fence..but he's 'fine' :mad:

quietheart

Snaggles wrote: »

Hi Rovers, the meeting is on the 14th, but we aren't going - it's just CAMHS and the school......I have no idea what's going on...

How peculiar! We've had intervention (for want of a better word!) for over 4 years for various issues, just about every agency that could be involved has been involved but there's never been a meeting where I didn't attend or was at least invited. I guess different authorities do things in different ways but you are the most knowledgable person involved so it just seems bizarre.

NoahsPM - aspergers, dyspraxia and dyslexia are linked. i feel my son's writing is down to dyspraxia as he fits most of the symptoms/criteria. have a look at http://www.dyspraxiafoundation.org.uk/services/gu_symptoms.php and it might help you rule it in/out. he is very dyspraxic and not hugely asperger's but has an asperger's dx. he behaves differently to how the rest of the kiddiewinks on here though so i'm confused.

quietheart

D&DD wrote: »

Rovers our EP/paed said threading beads onto string,playdough and hanging from monkey bars(?????) all helps low muscle tone,ligament dexterity etc..I also find DS types beautifully(when dictated to) but can't write legibly and spelling 'doesn't count as he's russian :rotfl: '

thanks D&DD. J did have OT input during reception he'd do the exercises while she said with him but hated doing it at home. he's got a low attention span and doesn't want to do much at all. he doesn't have any particular interests which isn't very AS to me! and is always asking what he can do next as he's bored....
will try a bit of threading after school and see how it goes. make it into a competition with his brother maybe, that should fire him up.

duchy

kylieM wrote: »

I feel incredibly sad reading your posts.


Maybe you guys should look into a rest bite care. Sam goes every Sunday, It gives my mum a bit of a break and he loves going, they take him to the cinema (he never behaves when we take him lol) for walks along Brighton pier, Lunch to MacDonald's and Pizza hut (his favorite place).

Kylie-I love you !!
What a fabulous typo for respite care -this thread was getting a bit heavy and you have me giggling. Thank you :rotfl:

D&DD

Snaggles what a brilliant idea for a chart :j :j Guess what I'll be making later :T Wow thanks!!!
Rovers my boy had his urine tested at Sunderland as we always thought there was more to his skin rashes than eczema..His tests showed gluten and Casein probs so we embarked on 'the diet'
Meanwhile he's been tested and found to have coeliacs and dermatitus herpeteformis NOT eczema...
The GF/CF diet takes a lot of getting your head round and can in noooo way be done overnight,I'm now nearly 3 years in and still learning!Read all you can first,its not a magic cure but it suits my boy.Each of our kids have their own special pieces and with him diet is a very big factor..I've been working it out since he was 3 and could now literally tell you what foods affect which behaviours,mannerisms and moods with him.

NoahsPennilessMummy

rovers
my son has classic autism but certain things on here are making me think dyspraxia may be included......i will have a look at that website...thanks:T


as for the GF/CF diet....hmmmm...well i have read up on it and as a nurse I can see the logic in it all....however as carbs are all ds eats i wonder what the hell will he eat if i put him on that:rotfl:

I honestly dont think i have the strength to even try it....the tantrums and behaviour would be unthinkable.....i know that probably sounds really lame:o .

well off to hairdressers now thank god...washed hair last night without straightening it and i look like michael jackson circa the jackson 5 era..heeeeheeeee.

will be on later
x