Aspergers/ASD support thread

NoahsPennilessMummy

you are certainly not failing as a mum D&DD!! please don`t ever think that.

I think we sometimes just get things out of proportion......i ws told at the last minute that they had found support for ds to start school so spent 2 days searching for PE kit in his size to no avail....ended up in tears in shopping centre as i was such a crap mum i couldnt even sort out a PE kit!!.....how mad am i? totally out of perspective but its how I felt at the time

kylieM_2

is it respite? I always thought it was rest bite lol.

I suppose you can never get two autistic children the same. My mother was worried about Sam attending the support group, but now he loves it and asks to go all the time. It may be something they can get used to.

How old is Noah?

Yes the problem with Sams appetite is that he eats too much, whole blocks of cheese sometimes.

isualive

My son was such a fussy eater, & would only eat certain favourites! This has slowly changed. He now does cooking at school but generally never eats what he makes.
He doesn't even eat sweets as he can't bear the texture.
Two years ago I decided to make him have school dinners everyday. At first he hated it but it's really improved his food choice.
He now loves school dinners but not always.
When he was younger I used to bribe him to taste certain foods. I also used to blend veg etc & hide it amongst cottage pie etc.

Kylie..........My son used to do that! He only loved fattening food & when he was younger he had a real weight problem. He used to hide with 4 pints of milk & a IIb of cheese!

D&DD

Snaggles wrote: »

Exactly how I feel......BUT.....just from your posts on here, I can tell you with pretty much 100% certainty that you are not failing him as a Mum. You come across as compassionate and caring, which is exactly what our lovely kids need.

Now don't start me blubbing..it's too early!!!!!!!


Isualive hello! Yes we've been to look round a few units etc and they would be perfect for our DS...getting a place in one though around here (if you actually live in the borough ) is a different story entirely..I'd probably crash the site writing it :rotfl:

Snaggles

Yes, food issues here too. Ryan has a sort of star chart type thing, called 'Escape from Junk Island'. It's a drawing of an island with various obstacles such as the haunted beach-huts, slimy swamp, dragon caves, rickety bridge...etc. To defeat each obstacle, he has to get a star (which is placed over the picture of the obstacle). Stars are earned by trying either a new food, or a food he has had in the past but not liked. He just has to have one mouthful (we have to start very slowly with new foods).

For each obstacle he defeats, he gets a small prize (a Doctor Who sticker, a lolly, a pen etc...just silly little low cost things). When he gets past all the obstacles onto boat, he has 'escaped from Junk Island' and gets a bigger prize, such as a Doctor Who figure. It works quite well - he hasn't learned to like many new foods yet, but he is giving them a try, which is a big step forward.

You can adapt it to their special interests - I am in the process of making a Doctor Who themed one, where he has to do battle with Daleks and Cybermen as he crosses the vortex.....lol.

quietheart

Haven't been on here for ages (mainly due to 2 wks of sickness - yuk) - so sorry things are tough Snaggles. You must be feeling totally drained. I think it's so hard for AS kids to go back into school after the holidays. You must have your meeting to discuss Ryan's dx soon, do hope that goes well and that you get a diagnosis and start to help. Made me sad to hear about you being called into school and Ryan being labelled, poor mite it must be so hard for him to understand what's going on. Did you manage to get hold of parent partnership in your area, it might help if you had someone with you for the meeting. So frustrating when professionals get something into their head ie ryan and his dad's relationship i wish they'd listen more to the person who knows the people involved. we've had similar before when a psychotherapist decided j must have expereienced trauma and that's why he didn't speak - then proceeded to interogate a 4 yr old with selective mutism..... god give me strength! you do learn to laugh about it because you'd go doo-lally otherwise.
I'm getting twitchy about junior school in sept, it separate to the infant school so totally new for him. writing is becoming more of a problem every day, is there anything that helps with this? do other AS kids have dyspraxia as well. Think J has dyspraxia and dyslexia. The stress levels around writing are out of control. This is our biggest issue. I'm trying to get a meeting between the autism unit and the school set up as since diagnosis the unit feel he needs support at school but school don't think he's 'bad' enough - hearing he's not on the bottom table was meant to reassure me but didn't. I don't care what blinking table he's on I care that he's struggling.
At least they've stopped vomiting now, must be grateful for small mercies!

NoahsPennilessMummy

Hi Kylie:D .....Noah is 4 and a half so still my baby really:rotfl:


as for food....he only gets on with carbohydrates...eats lots od wholemeal bread....has to be Warburtons cut into 4 with cream cheese in.....oh and the "skins" (crusts off)...he eats this daily with yellow crisps ( Quavers)..has done for over 2 years:eek:

I make a meal every night but he wont eat it.....only eats dumplings, yorkies and pie crusts.....ie more carbohydrates.

Has no meat or fish, no dairy apart from cream cheese, no fruit or veg.

He is never hungry as he is full of carbs but is not getting any nutrients....going to dietician next month but not sure what they can do.

kylieM_2

isulive.... how did you overcome it. Sam is 12, very tall and very fat (we joke he has man boobs).

quietheart

Find it interesting that AS kids are obsessed by carbs.
I've been lectured on this, it makes interesting reading but I don't think I could follow it through
http://www.glutensolutions.com/autism.htm
http://www.autism.org/leakygut.html
I know someone who follows it religiously and it's made a huge difference but it's hard going and i don't think i'm up to the job:o

isualive

D&DD wrote: »

Now don't start me blubbing..it's too early!!!!!!!


Isualive hello! Yes we've been to look round a few units etc and they would be perfect for our DS...getting a place in one though around here (if you actually live in the borough ) is a different story entirely..I'd probably crash the site writing it :rotfl:

Thanks! My son had his statement when he started school. As he got older he needed more one to one. In the end he spent most of the time being excluded from his peers & being taught in the corridor. Not ideal.

I was so frustrated & spent years fighting his corner. I was told by the headmaster in the car park that he needed to go full time to a special school.

What a joke? I felt so humiliated. It took 6 months but he finally got a place.

It's so unfair that you can't get a place. Luckily Roberts is only an hour away. He leaves home at 7.50 am & gets back at 4.20 pm. Not nice in the winter, as he leaves & gets home in the dark!