Aspergers/ASD support thread

seven-day-weekend

Savvy_Sue wrote: »

Yes.

I'm not sure you can ...

We share the house with a chap with undiagnosed AS, as in when I told him they thought DS1 had Aspergers he asked what that was, and when I explained he said "Oh, I'm one of those!" and immediately I agreed that he was!

Sometimes we just can't communicate even very simple things. Actually it's usually very simple things. It's obvious to me what I'm trying to say, and it's obvious to him that I mean something completely different.

Oh, my son and I are doing this all the time! He wants a 'simple answer', I say there isn't one, we both get our knickers in a twist. In the end my husband has to answer the question. Then my son will say 'why couldn't Mum say that?' :rotfl:

(And the answer is because I didn't think it answered the question).

TheEffect

I'm an LSA in a secondary school and work with two young boys (12 and 14) who both have autism. Even though they share some tendencies, the 12 year old is so much more confident and has a lot more socialising skills then the older boy.

The 14 year old has had such a rough time at school and I personally believe his parents should have looked into a special school. He does not know how to socialise and recently, he's been trying to understand and use sarcasm, however it comes across that he offending the other pupils. He has no friends and the other pupils just do not understand. On top of this, I've met his parent (single parent) and she put him down and embarrassed him in front of myself and my boss.

If any parents have any ideas on what I can do to help this boy, please do offer your suggestions. I've won this boys trust, and I don't want to lose it in the way that I deal with any bullying, as he is very conscious about me disciplining other pupils as a result of their behaviour towards him, as they seem to take it out on him afterwards.

Strapped

Hi, just a quick question please. DS, almost 8 (how time flies) now has had his "formal assessment" and been rubber-stamped as having Asperger's. BUT the paedatrician also wants to test him for "Fragile X" syndome (chromosomal abnormality). I'd never heard of this, but reading up about it, it appears that it has some symptoms similar to Asperger's/ASD, although it is a separate "syndrome" and it is possible to have both, or to be mis-diagnosed with one (eg Asperger's) and actually only have the other (eg Fragile X). Did anyone else have their child tested for this? Trying to find out whether it's routine (in a ruling-out-all-other-causes kind of a way) or whether she suspects he may actually have it?

Thanks.

Firefly

Strapped wrote: »

Hi, just a quick question please. DS, almost 8 (how time flies) now has had his "formal assessment" and been rubber-stamped as having Asperger's. BUT the paedatrician also wants to test him for "Fragile X" syndome (chromosomal abnormality). I'd never heard of this, but reading up about it, it appears that it has some symptoms similar to Asperger's/ASD, although it is a separate "syndrome" and it is possible to have both, or to be mis-diagnosed with one (eg Asperger's) and actually only have the other (eg Fragile X). Did anyone else have their child tested for this? Trying to find out whether it's routine (in a ruling-out-all-other-causes kind of a way) or whether she suspects he may actually have it?

Thanks.

It's routine. Most diagnostic assessments I read through in my work life have the results of Fragile X test too.

Strapped

blue_monkey wrote: »

Evening everyone.

Does anyone know what to get or do to deal with clothes chewing? I am struggling and getting through 1-2 tops a DAY at the moment (was 3-4 a week).

Any ideas at all?

Mine chews his cuffs. His new TA (who is himself on the spectrum apparently!) gave him a set of "ninja" sweatbands, which he loves and has started wearing all the time (not strictly uniform I'm sure but hey ) and they are saving his cuffs, yay!

Mandles

Strapped wrote: »

Hi, just a quick question please. DS, almost 8 (how time flies) now has had his "formal assessment" and been rubber-stamped as having Asperger's. BUT the paedatrician also wants to test him for "Fragile X" syndome (chromosomal abnormality). I'd never heard of this, but reading up about it, it appears that it has some symptoms similar to Asperger's/ASD, although it is a separate "syndrome" and it is possible to have both, or to be mis-diagnosed with one (eg Asperger's) and actually only have the other (eg Fragile X). Did anyone else have their child tested for this? Trying to find out whether it's routine (in a ruling-out-all-other-causes kind of a way) or whether she suspects he may actually have it?

Thanks.

No,
mine wasnt tested for it but he is still very young. When do they get tested for ODD ? Mine is said to be an Aspie , he has about 8 out of the listed symptons but when i look at ODD he has every single symptom of it.

And i have no suggestions for chewing i am afraid(but this link shows a lot of kids do it (http://www.medhelp.org/posts/Child-Behavior/constant-chewing-of-shirt-sleeve/show/278608), maybe it is one of those awful things that you have to try to ignore and hope it stops). I would say soak sleeve in vinegar but my DS would still suck it!

Has anyone who has a child that runs off all the time ever solved this problem? I bought a monitor that beeps when they leave a certain distance from you but the distance is so small it is rubbish and goes off all the time.

Js_Other_Half

Mandles wrote: »

Has anyone who has a child that runs off all the time ever solved this problem? I bought a monitor that beeps when they leave a certain distance from you but the distance is so small it is rubbish and goes off all the time.

Would this help?
http://www.iseeka.co.uk/

shazrobo

hi mandles, both my sons have oppositional defiant disorder, cant remember when they were diagnosed tho, sorry, probably around 9/10 years old. i have twins, and them running off was a real problem, especially as they went in opposite directions, and many times i've had the police out looking for them when they were younger. they are 14 now, and still do it, but usually they are back before dark, and if they arn't they know the police will be called for their own safety, sorry this dosen't help you much, except knowing your not alone.
thats what i like about this thread, i'm not alone, and other children are like mine. at one point, especially when they were younger, i felt i was the only one with children that behaved as mine do.

Mandles

shazrobo wrote: »

hi mandles, both my sons have oppositional defiant disorder, cant remember when they were diagnosed tho, sorry, probably around 9/10 years old. i have twins, and them running off was a real problem, especially as they went in opposite directions, and many times i've had the police out looking for them when they were younger. they are 14 now, and still do it, but usually they are back before dark, and if they arn't they know the police will be called for their own safety, sorry this dosen't help you much, except knowing your not alone.
thats what i like about this thread, i'm not alone, and other children are like mine. at one point, especially when they were younger, i felt i was the only one with children that behaved as mine do.

Oh my goodness, i only have one like it . I honestly don't know how you cope/coped with 2 like it. Congratulations on them getting to 14, i will be amazed if mine stays alive to 6, he is a total nightmare!:eek:


By the way, anyone watching celebrity big brother? I am fascinated by Jonas as i reckon that he has aspergers. He had bad tourettes, has ticks, had a problem with "pleasuring himself" and used to do it 25 times a day, gets changed 10 times a day, best day of his life was ending a game on ps3 that he had played constantly for 120 hours(about 5 days non stop), he is always on about farting and really inappropriate stuff all the time an he got a large tattoo of his record companies logo on his leg . He also had a task to do where he had to sprinkle sand in someones bed to get something good for someone else but it really bothered him and he couldn't do it. Just watching him and his reactions to things is fascinating . I feel so bad that people are calling him a wierdo. I hope people don't judge ours so harshly.:cool:

Mandles

Sorry, i am always asking stuff on this thread. I should join a support group but i haven't got the energy!

Right, again, my DS is a hyper Aspergers child and is a real wanderer. I am so gutted about the new school as i had high hopes but it is starting to get me down. The story is that he is 5 and way before he started i got everything sorted, saw the head and was very clear and it all seemed great. She was employing someone just for him and was going to start him 1 hour and build up in november/december.
I heard nothing but had a large meeting at the school and they had changed it. He was now being weaned in in January and his helper had now gone to someone else who they were not expecting at the school that started a term before him:mad:.

Now the problem is that he should be at least doing 2 hours but is still only doing 1 hour which may increase to 1 and a half next week for a while. I did query it and was told that it was because he is not understanding boundries very well and had someone chasing all over the place after him....THAT IS WHAT HE IS LIKE!! :mad: He will never understand boundries. He is going stir crazy and will really be getting behind already. It is not worth me coming home by the time i have dropped him. My house is a tip and i am going insane.

Has anyone else had this? Seems to me that they are not keen on having him now they know what he is like.What do you do, as i think he is only going to be doing 2 and a half hours at the most for the next 6 months? He will eventually have another person just for him , he just needs to be taken away to a quiet room (they said they dont know where to take him) and he loves books and could do that for half an hour or stickers.