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Aspergers/ASD support thread

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  • lottylouj
    lottylouj Posts: 453 Forumite
    hi all, on the subject of teeth, were any of your dd/ ds late loosing there baby teeth? my dd is 9 and has only lost 6 so far, 4 from the top and 2 from the bottom, no more wobbly ones either.
    she has been good with the dentist so far but hasnt had to have any real work done other than having her back molers painted.

    sorry i cant help with any of the questions im still pretty new to this and still finding my feet with my dd.
    Back to comping Jan 2013 :j
    Feb wins : WWE goody bag, dvd, £5 amazon, Bear nibbles, Moisturiser
  • 3onitsway
    3onitsway Posts: 4,000 Forumite
    1,000 Posts Combo Breaker
    lottylouj wrote: »
    hi all, on the subject of teeth, were any of your dd/ ds late loosing there baby teeth? my dd is 9 and has only lost 6 so far, 4 from the top and 2 from the bottom, no more wobbly ones either.
    she has been good with the dentist so far but hasnt had to have any real work done other than having her back molers painted.

    sorry i cant help with any of the questions im still pretty new to this and still finding my feet with my dd.

    I suppose every child is different, but my DS has Global Developmental Delay, along with Autism. The delay seems to be on everything. On his first birthday, he still had a mouth full of gums while his younger cousin was running about munching on a chicken leg!
    He eventually got some teeth, but they didn't start coming out until he was about 9 - he and his 3 year younger sister were missing their two front teeth at the same time.
    :beer:
  • lottylouj
    lottylouj Posts: 453 Forumite
    edited 27 April 2009 at 11:08AM
    3onitsway wrote: »
    I suppose every child is different, but my DS has Global Developmental Delay, along with Autism. The delay seems to be on everything. On his first birthday, he still had a mouth full of gums while his younger cousin was running about munching on a chicken leg!
    He eventually got some teeth, but they didn't start coming out until he was about 9 - he and his 3 year younger sister were missing their two front teeth at the same time.

    very true they are all different, my dd and ds couldnt be more opposite it i had planned it!!
    dd has been delayed with everything from all of the mile stones from birth right up to now. i believe she was 12 mths when she had her 1st tooth.
    she is very small for her age, her 6 yr old brother is the same height as her. she didnt roll over till 10 mths, she didnt sit up till 12mths and didnt walk till she was 2. didnt talk properly till she started school ( thank god for those red books!!)
    Back to comping Jan 2013 :j
    Feb wins : WWE goody bag, dvd, £5 amazon, Bear nibbles, Moisturiser
  • Mandles
    Mandles Posts: 4,121 Forumite
    Hi

    Has anyone any experience of tooth extractions in ASD children? My son is almost 6 and has ASD, dyspraxia and APD, is also in process of being assessed for ADHD.( have my hands full lol)
    on visits to the dentist they have said he has a couple of small dental caries but that they are hoping the teeth will fall out before it causes a problem as he would need sedation if they extracted them at the dental hospital:eek:
    When brushing his teeth tonight he shouted that it was hurting so I had to stop, on examination his top back tooth looked brown at the very back but I cant tell if it was shreddies from his supper:o couldnt get a good look at them:rolleyes:
    It looked slightly ulcerous at the side too....am now scared stiff it has decayed properly and will need it out:eek: the thought of him having sedation and then the soreness after terrifies me!
    help anyone!
    love claire
    My son had to be put under for a very minor thing due to him being aspergers. I was worried sick and tried to hide it but felt like i was saying goodbye to him forever as i stood with him as they put him to sleep. It is so daft but we always imagine the worst(which is incredibly rare that anything should go wrong). The good thing is that they don't remember a thing. The only thing to watch is when they come out as my sons brain was going at its normal mega fast speed and he was trying to move at 90 miles an hour but his legs were still like jelly so i just had to watch that he did not fall over anything which he kept nearly doing(he looked drunk, it was quite funny really).

    With a painful tooth i imagine that your child would probably be less stressed once it has gone . Hope all goes well. I am sure it will. It is all over so quick. If you are like me you'll wonder why you worried so much!;)
  • softwaremad
    softwaremad Posts: 154 Forumite
    global developmental delay is the term they used to diagnose my dd initially as the consultant said it definately wasnt autism - and you dont want that diagnosed as they are all schizophrenic too! belive it or not that consultant is now head of autism dept in cardiff hospital - i moved away from the area to get a proper diagnosis for my dd

    my dd is now 13 with sever autism and assoociated learning difficulties caused by the asd! i think that you may well find in time that the global developmental delay is the same as my dd
  • softwaremad
    softwaremad Posts: 154 Forumite
    ps i hope your getting all of your dla and carers allowances!
  • rosie-marie
    rosie-marie Posts: 264 Forumite
    Also on the subject of teeth - has anyone ever had problems with just wobbly teeth, and new teeth coming through. We always know when our little boy has a wobbly tooth because he's like a baby teething, chewing on everything, a bit grizzly, and rather loose bowel movements. As soon as the tooth comes out he goes back his normal self. Nobody I have talked to has ever heard of it before. His teeth are very healthy.
  • lottylouj
    lottylouj Posts: 453 Forumite
    edited 27 April 2009 at 9:55AM
    dd has a moderate learning disability and a severe learning delay, and an iq according to the WISK III accessment score of mid sixties, going on what ive been told/seen.
    dla is in for renewal at the mo, the waiting is horrendous!!
    Back to comping Jan 2013 :j
    Feb wins : WWE goody bag, dvd, £5 amazon, Bear nibbles, Moisturiser
  • 3onitsway
    3onitsway Posts: 4,000 Forumite
    1,000 Posts Combo Breaker
    global developmental delay is the term they used to diagnose my dd initially as the consultant said it definately wasnt autism - and you dont want that diagnosed as they are all schizophrenic too! belive it or not that consultant is now head of autism dept in cardiff hospital - i moved away from the area to get a proper diagnosis for my dd

    my dd is now 13 with sever autism and assoociated learning difficulties caused by the asd! i think that you may well find in time that the global developmental delay is the same as my dd

    OMG! What a thing for a consultant to say! :eek:

    DS was diagnosed with GDD when he was around 3 - i remember thinking at the time is that the label they use when they don't really know what is wrong? He wasn't autistic enough to be autistic at that time. He was too cuddly and gave too much eye contact.

    He was just as cuddly and gave great eye contact when he was finally diagnosed at 7!
    :beer:
  • di3004
    di3004 Posts: 42,579 Forumite
    Home schooling - what a challenge - although the LEA is under obligation to provide a safe environment and education for all! as the school he was attending was obviously unsuitable you may want to ask them to provide home/school tuition - as for sleeping aids (i had a friend who tried the melatonin drug which seems to be the fad one of the moment) however her son became immune after a week of taking it! so its good for now and again but not for constant use! although its entirely up to you how you feel about it! if you are that exhausted then i would suggest giving it a trial run - as parents who are tired tolerate less than those who get a good nights sleep!

    As for dentists my dd also would need general anaesthetic for fillings although we have been lucky to date - she did have minor decay on her baby teeth but they fell out before needing any work done! i think the g/a is the best option for causing less distress than a dentist trying to do the work with the child awake!


    Hi and thanks for your response.;)

    My Uncle is only helping out short term, with him being a retired teacher in both secondary and university, he's a great help, but he is getting on now, so am hoping something will be sorted out soon.

    We de-registered my son in Dec 2008, and are surprised not to hear anything at all, from his ED Pysh etc, we have wrote to them in regards of this matter but up to now we have not heard a word.

    They were always late with organisting meetings when my son was at school, we also kept on at SENCO, as his review was months behind, I think they were glad not to be dealing with us again to be honest, as I must admit we were on at them all the time, but for the sake of our son.

    Melatonin, this did actually come up at the last appointment, then they say they don't believe in this and that is just the way my son is:confused:.

    Mind you from newborn he never had sleep in the day, and night times was just the point of him nodding off for half hour at a time.

    I should be used to it really as I was brought up with a severely autistic brother, he is 44 now and another that would never sleep.

    And another thing ......... he has his Dental check up coming up as well, will give them a ring in case the appointment has gone to the wrong addy again.;)
    The one and only "Dizzy Di" :D
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