Aspergers/ASD support thread

3onitsway

rosie-marie wrote: »

Right I see. It seems you have a few years more experience than me, and it sounds like our boys are quite similar. I may come back to pick your brains.

My daughter is going through that early teenage thing where everything is "not fair" and there is plenty of stomping feet and slamming doors :rolleyes:. I'm quite down at the moment because I feel I'm being pulled in half, trying to juggle whats best for both of them. We just want our kids to be happy don't we.

Does you son listen to music on headphones?

Feel free to ask me anything/pm me! I'm no expert but if my experience can help anyone i'll be happy!

Sorry if you've said - but how old are your children?

I know exactly how you feel - except now i'm being pulled three ways! DD (8) is very 'me me me', iykwim! Always wanting to show us her latest dance/song/play - in fact, anything so she's centre of attention. I'm thinking its to get some attention away from DS - although i've always tried hard to make sure she gets plenty of my time too. Maybe she's just one of those children. My mum wonders where I got her from as she's the complete opposite of me as I child, I was the shy/wierd little girl (probably autistic!) who wouldn't speak to anyone!

He like to listen to music - but demolishes personal tape players/cd players at an alarming rate!!

rosie-marie

3onitsway wrote: »

Feel free to ask me anything/pm me! I'm no expert but if my experience can help anyone i'll be happy!

Sorry if you've said - but how old are your children?

I know exactly how you feel - except now i'm being pulled three ways! DD (8) is very 'me me me', iykwim! Always wanting to show us her latest dance/song/play - in fact, anything so she's centre of attention. I'm thinking its to get some attention away from DS - although i've always tried hard to make sure she gets plenty of my time too. Maybe she's just one of those children. My mum wonders where I got her from as she's the complete opposite of me as I child, I was the shy/wierd little girl (probably autistic!) who wouldn't speak to anyone!

He like to listen to music - but demolishes personal tape players/cd players at an alarming rate!!

My little boy is 8 and daughter 10 (not ASD). Thanks for your message.

Well - thats just the problem we have, we've tried tapes and CD's and they last 2 minutes. Also, he doesn't really like headphones on his head or in his ears. Anyway I had a brainwave today - I thought what about an MP3 player? My OH tracked down some really nice headphones from Argos (Sony) that are small but extra cushioned. We put them on him this afternoon and he's been a different boy - really content :j. My daughter has been able to make noise and it hasn't bothered him. I know he can't have them on all the time but its great for those desperate times when he's not coping. BTW he really has a liking for Disco music (Abba, Beegees, Leo Sayer etc. Lol ), it seems to calm him down more than any other music.

Have ordered some Kidz Muffs from the link above - they look like nice cushioned headphones, but small designed for kids, not sure how we will get on but I'm ready to try anything! The were £17 with postage so a bit pricey - is yours ok with things over his head?

softwaremad

Strapped wrote: »

We're kinda the opposite way - DS has *ahem* very challenging behaviour at school but is much calmer at home. He is now statemented, but all they have done is to start to pay a STUDENT with no experience as far as I can tell, and so long as he is "not disturbing the rest of the class" they don't particularly care that he is not progressing himself. He is 7 and can't write, yet all agree he is one of the most intelligent in the class I've tried giving them stuff we're making some progress with at home (special marked out paper etc) but as far as I can tell, they just let him do whatever he wants - mostly playing on the computer away from the rest of the class.

Blimey thats tantamount to neglect- my solicitor would love this as we are preparing thee case for my dd neglect already as she is 13 and you cant enact on this till the children are 18 yrs old!

softwaremad

Children with ASD compartmentalise in the way that school is for learning and home is for relaxing - hence the struggle to get them to do school work at home! with ragard to senco's that arent that good - its a tough job and there has to be at leat one in each school - its a lot of extra responsibility and they dont really get paid for it! training is really poor so its a live & learn sort of position

3onitsway

rosie-marie wrote: »

My little boy is 8 and daughter 10 (not ASD). Thanks for your message.

Well - thats just the problem we have, we've tried tapes and CD's and they last 2 minutes. Also, he doesn't really like headphones on his head or in his ears. Anyway I had a brainwave today - I thought what about an MP3 player? My OH tracked down some really nice headphones from Argos (Sony) that are small but extra cushioned. We put them on him this afternoon and he's been a different boy - really content :j. My daughter has been able to make noise and it hasn't bothered him. I know he can't have them on all the time but its great for those desperate times when he's not coping. BTW he really has a liking for Disco music (Abba, Beegees, Leo Sayer etc. Lol ), it seems to calm him down more than any other music.

Have ordered some Kidz Muffs from the link above - they look like nice cushioned headphones, but small designed for kids, not sure how we will get on but I'm ready to try anything! The were £17 with postage so a bit pricey - is yours ok with things over his head?

He likes his wooly hat over his ears, but that looks a bit daft and causes sweaty head in summer!! He also managed to break my ipod:mad:, but i might try him with a cheap mp3 player without a screen. Its his birthday next month so thats an idea for a present!

softwaremad i totally agree with school/home being completely different! When he first started school he'd feed himself for months, while at home, he'd sit on his hands for me to feed him! And more recently, he was out of nappies, with no accidents at school for 6 months before it clicked at home.

NoahsPennilessMummy

Hi

Has anyone any experience of tooth extractions in ASD children? My son is almost 6 and has ASD, dyspraxia and APD, is also in process of being assessed for ADHD.( have my hands full lol)
on visits to the dentist they have said he has a couple of small dental caries but that they are hoping the teeth will fall out before it causes a problem as he would need sedation if they extracted them at the dental hospital:eek:
When brushing his teeth tonight he shouted that it was hurting so I had to stop, on examination his top back tooth looked brown at the very back but I cant tell if it was shreddies from his supper:o couldnt get a good look at them:rolleyes:
It looked slightly ulcerous at the side too....am now scared stiff it has decayed properly and will need it out:eek: the thought of him having sedation and then the soreness after terrifies me!
help anyone!
love claire

3onitsway

NoahsPennilessMummy wrote: »

Hi

Has anyone any experience of tooth extractions in ASD children? My son is almost 6 and has ASD, dyspraxia and APD, is also in process of being assessed for ADHD.( have my hands full lol)
on visits to the dentist they have said he has a couple of small dental caries but that they are hoping the teeth will fall out before it causes a problem as he would need sedation if they extracted them at the dental hospital:eek:
When brushing his teeth tonight he shouted that it was hurting so I had to stop, on examination his top back tooth looked brown at the very back but I cant tell if it was shreddies from his supper:o couldnt get a good look at them:rolleyes:
It looked slightly ulcerous at the side too....am now scared stiff it has decayed properly and will need it out:eek: the thought of him having sedation and then the soreness after terrifies me!
help anyone!
love claire

Hi Claire,

My DS lets the dentist look in his mouth, but thats as far as it goes!

The dentist told me a while back, that if he needed any treatment, it would be a hospital/anesthetic (sp?) job - as DS wouldn't let him near him with any tools, especially noisy ones.

shazrobo

one of my 14 year old sons is due to have his first filling in july, and i'm terrified of the dentist hurting him, as daniel can get so aggressive, and he is already on his final warning from the police.

sorry not much help

shaz x

di3004

Hi there

Think I may have posted on here I while ago, but can't remember, I have been a member on this site for a good while now and its about time I introduced myself on this thread if I did not do this before......:o

My son Daniel is 14, he has Aspergers syndrome, Anxiety disorders, very complexed issues.
I understand that not all kids with Aspergers are the same, but my son is not a good sleeper and despite trying natural ways of dealing with this, like diet, computer games etc etc, medication have been discussed by his specialists but we are not sure on that to be honest, although they do say its best for him to not have meds anyway, that is just the way he is.

However, since DEC 2008 he is home educated due to some serious issues at the school which did not help my son, its a long long story which the school did not resolve, this had went on for years more on than off.
One of those was him being bullied, it came to the stage we had to get the police involved, we did not want to take it this far but had to think of our son and him checked out by his GP........so its all on report.
We do not want him to lose out on his education, but it was hell for him and it was stopping him from getting on anyway.

And as many of you know they do not take very well to changes, and with him not being able to mix well - as much as we have tried, even groups etc, we will still keep trying though.

This is still an ongoing matter with his specialists where he may be lucky to get some funding for home education, but for now, I have been lucky with at last 2 family members where one is those of a private tutor, in his spare time in the week will help my son and another member of the family works part time in education and helps in between also.

Anyway, lovely to meet you all and what a lovely thread, keep up the great work.:T;)

softwaremad

Home schooling - what a challenge - although the LEA is under obligation to provide a safe environment and education for all! as the school he was attending was obviously unsuitable you may want to ask them to provide home/school tuition - as for sleeping aids (i had a friend who tried the melatonin drug which seems to be the fad one of the moment) however her son became immune after a week of taking it! so its good for now and again but not for constant use! although its entirely up to you how you feel about it! if you are that exhausted then i would suggest giving it a trial run - as parents who are tired tolerate less than those who get a good nights sleep!

As for dentists my dd also would need general anaesthetic for fillings although we have been lucky to date - she did have minor decay on her baby teeth but they fell out before needing any work done! i think the g/a is the best option for causing less distress than a dentist trying to do the work with the child awake!