Aspergers/ASD support thread

Sarahsaver

anyhooo...back OT my DS has 'strong aspergers tendencies' but how can i get his school to see that he needs help, for instance yet again he didnt have his inhaler cos he had pocketed the one they r supposed to keep in school. i get the feeling its quite common for people not to take aspergers seriousl;y - or have i just had bad luck

mrs_moneyspinner

thanks all above - sorry for leading you off the AS topic. Sarahsaver I think teachers are like gp's - all rounders - they don't specialise in any one child's needs. I get tiresome little messages that 'son has been told 3 times to stop touching peoples rubber/pencil/ruler as though this is some shocking revelation that needs instant discipline - aspergers isn't considered - he doesn't read the other kid's feelings or the teachers expression, he will laugh - he isn't being naughty, he is uncomfortable, uncertain. At school trip last summer - 'lets make a picture from twigs - children duly did so - our boy then poured earth on top - teacher never asked why just yelled him off in disgrace - he was trying to make it 3D and thought it looked 'flat' ... aspergers wasn't even considered - but then again, you don't want to make it like a crutch for them I suppose. By the way, is everyone here UK based? your school senco should be able to tell you how to get your kid assessed/recognised if UK.

Strapped

:j Just a little progress report: received the report back from the paedetrician this morning saying "has many features consistent with Asperger's syndrome and I am strongly suspicious that he may end up with this diagnosis...I am also screening with Conners' questionaires but feel that the diagnosis of ADHD is unlikely". Strange seeing it in black and white but also quite a relief. Yesterday I posted off an epic letter to the statementing people, so I also scanned in the paed report and emailed it to them as well today. If he doesn't end up with extra funding next term will be a diasater so fingers crossed.

looby-loo_2

Strapped wrote: »

:j Just a little progress report: received the report back from the paedetrician this morning saying "has many features consistent with Asperger's syndrome and I am strongly suspicious that he may end up with this diagnosis...I am also screening with Conners' questionaires but feel that the diagnosis of ADHD is unlikely". Strange seeing it in black and white but also quite a relief. Yesterday I posted off an epic letter to the statementing people, so I also scanned in the paed report and emailed it to them as well today. If he doesn't end up with extra funding next term will be a diasater so fingers crossed.

As you probably know the diagnosis will not be given quickly. I wish you luck.

Savvy_Sue

mrs_moneyspinner wrote: »

thanks all above - sorry for leading you off the AS topic.

mrsm, neither you nor sarah need apologise. I was launching a pre-emptive strike. If you search for Home Education in Discussion Time you'll see why, it raises strong feelings in both directions, which is fair enough 'down there' but not helpful within this thread. BEFORE you go and look there I'd suggest you make your own mind up first as to whether that's something you want to try.

Strapped

There's already been a lot of "intervention" over the last 18 months from the Ed Pysch, the Behaviour Support team and most recently the County Autism team and the Exclusion officer. I can assure you we've tried everything suggested! He's been excluded from school twice and was on part-time hours for a while after that too, because the school just couldn't cope with him. For the last few weeks he's had 1:1 support and is following a modified timetable which means he's actually been in school - but he's only had that 1:1 because the school has had students there (freeing up one of the experienced TAs to work with DS) - now they've left to go back to uni, the school says it can't continue to allocate the TA to DS unless they can have another TA / more TA time. I foresee trouble ahead

ETA: we were referred to the paed by our family GP, and the "report" is his letter back to her, copied to us, outlining what he suspects and what the next steps in diagnosis are. There are no "recommendations" for the school, or for us - this is something through the NHS, separate to the school / statementing process. I hope that makes things clearer.

Also, we are already some way into the statementing process, and CSET have already agreed that they are making an assessment, which is what the "parental evidence" letter was for.

looby-loo_2

Strapped wrote: »

There's already been a lot of "intervention" over the last 18 months from the Ed Pysch, the Behaviour Support team and most recently the County Autism team and the Exclusion officer.

In my LA the Autism Team wont get involved until the diagnosis has beem made.

3onitsway

mrs_moneyspinner wrote: »

I have just started to realise that I may have aspergers myself ha ha... it would explain why friends quickly disappear, offended by my 'direct approach', tell me my mouth travels faster than my brain, find me insensitive, etc.! not surprising as my youngest has aspergers and I am beginning to see the similarities.

That sounds like me!!

My DS has severe Autism and other learning difficulties - but lots of his little habits remind me (and mum) of me as a child.
Mum says looking back, i was also probably Autistic - but back then (early 70's), I was just a 'strange', anti-social awkward, child!! I didn't mix well, or have many friends. I still don't like many people - ha ha :rotfl:

I wonder how many parents of ASD children can see it in themselves?

[Deleted User]

Ha! My son is autistic and DH just got an official diagnosis that he has Aspergers. It doesn't surprise me at all, they are so much alike! My FIL is also suspiciously similar....

mandy.h_2

i am convinced oh has apwrgers to he and ds are so alike, discussed it with him he says he might have but when he was younger was just that weird kid we all knew one at some point. i think its definatly hereditary