Aspergers/ASD support thread

blue_monkey_2

Strapped wrote: »

Oh-oh. Guess what I bought DS for Christmas. We'll be swapping marble-run stories in the New Year perhaps :rolleyes:

The question on whether we get as far as the New Year without being bored stiff. I tried to hide the bit of marble run today - it lasted 10 seconds through the door after school before he asked where it was. I did not have the heart to say I did not know, just that I put it up for safe keeping... :rotfl: I can try can't I??

I spoke to DS teacher today and she said he was obsessed by the marble run there too. At least it is not like the other school, they knew he was obsessed by trains and so rather than let him play with the trains while he adjusted to his new routines they took them away!! I can see so many problems the other school made for my son now that he is not there.

PS: I've switched to mozilla because of the IE problems and the smilies are moving much faster than before. :rotfl:

looby-loo_2

I have a slightly opposite problem. I have a parent who has Munchausen by Proxy Syndrome and is probably on the AS sectrum. The more I try to sort things out the more I accidentally wind her up.

seven-day-weekend

parisjordana wrote: »

These children are all different and special in their own little way arnt they......no 2 ASD,s are the same though....all just so unique.....mine is 18 now but when I read the latest contributions to this thread it cheers me up and I smile because even though 18 he could be the 6 year old whos obsesing about Starwars or the little boy who talked about Marble run for 2 hours or the 11 yr old boy who butts in and is clumsy

:rotfl::rotfl:

Mine is 29 next month and still obsesses about Warhammer models or gives me earbendings on the phone about the latest film he's seen (all the plot in detail even though I may have wanted to see the film myself) and buttsd in and is clumsy.........and is delighted to find some half-price lego even though he was 27 at the time......

....Luckily as he has got older he has learned to cope with these things better and can manage to bite his lip more than he used to as he has accepted (not understood) that most poeple are not interested in the finer points of Warhammer (or Jeremy Clarkson - we got an earbending about him a couple of times :eek:). We can also tell him kindly to 'stop!' during a monologue and usually he will wind down.

But yes, amny of these small boys I'm reading about on here remind me of my own 'small boy'!:rotfl:

mrs_moneyspinner

I have just started to realise that I may have aspergers myself ha ha... it would explain why friends quickly disappear, offended by my 'direct approach', tell me my mouth travels faster than my brain, find me insensitive, etc.! not surprising as my youngest has aspergers and I am beginning to see the similarities. It was quite reassuring to read this thread today. While I am here - son has been given concerta to try 'for concentration in class' re adhd (which he is also diagnosed with) .. has anyone tried concerta? any opinion? we haven't used it yet - I am holding back.

Sarahsaver

ah but my view on problems in school is what are the teachers doing? could it be their fault a child is bored/ not concentrating.
example : my dd was on sen register for BESD and was ALWAYS in trouble
home educated her 6 months
now at new school and she is a star pupil

mrs_moneyspinner

sarahsaver - how do you get home ed? our gp suggested this ages ago - we dismissed it as we thought it would omit social skills/friends/fun... we couldn't get a SEN - the school have put his ability at above the criteria to qualify - which we have disputed but we cannot get them to change unless we pay to have it challenged... anyway, tell me about home education please - im interested.

Sarahsaver

TO home educate you just have to ask the school to take you off roll. They are legally required to do so within 2 days, you do NOT have to agree to a home visit from the EWO or anyone else for that matter. You do not have to 'apply' for it, i think there has to be more involvement from the LEA if your child is statemented but thats it.
DD was on the SEN register but not statemented and the child psychologist still came to see her when i was home edding her bcos you are still entitled. He did tests and she has reading age of nearly 15 but spelling age just under 9 which would explain her frustration.
DS1 is not statemented either, there are statutory guidelines of what help kids with SEN should get even if they do not have a statement.
It doesnt omit social skills and is often MORE fun - we went out on trips/visits every week. We met families of other home ed kids and your child lears better than at school how to mix quite naturally with people of all ages and not have the 'eeeew' factor about boys and girls not mixing, they get another shot at being a child! not a vehicle for the system to meet targets!
You dont have to spend all day doing 'work' you may be out at a museum or go for a walk, any reading or written activities will take less time cos your child is not sharing you with 30 other kids as they would at school.
Through local home ed groups you would be able to meet like minded people i am sure they would not mind you visiting or having a chat if you are considering it.

My DS doesnt want to go to the school where dd is where there are places and it is lovely, he wants to go to the one where theres a lad he knows and theres a waiting list and its like a building site :eek:

Savvy_Sue

And I'm sure Sarah knows about Education Otherwise, which would be a very good source of information.

Can I just suggest in advance that we keep the thread on topic by not discussing the pros and cons of home ed in general. The place for that is Discussion Time where there have been one or two debates in the past. It goes without saying that home ed won't be suitable for all AS children, but then nothing's ever simple, is it?

Sarahsaver

sorry i did go on a bit but she asked;) I would not dare mention it in DT! I will remove my post if u like or pm it to moneyspinner instead;)

Savvy_Sue

Sarahsaver wrote: »

sorry i did go on a bit but she asked;) I would not dare mention it in DT! I will remove my post if u like or pm it to moneyspinner instead;)

No, please don't do that, your post is fine, I just don't want the factual response you gave clouded by a bunch of less factual ones and emotive responses to the very idea.

Fact: home education is legal.

Fact: school education doesn't suit all children.

Fact: home education doesn't suit all children.

These facts are true, whether the child has AS or any other SEN or is that rare thing, entirely 'normal'.