Aspergers/ASD support thread

Js_Other_Half

Some recommendations for clothing and furniture for ASD/Special Needs kids:

http://www.toughfurniture.co.uk/ does very robust furniture, and it looks like any other modern stuff. You can get things like a chest of drawers with a tv unit on top - the tv is locked into the unit, the tv can be watched through the perspex screen, but it can't be shoved off the chest of drawers etc
I've seen a lot of this stuff in a kids respite care unit. I believe a wardrobe was about £300.

Clothing:
This site is full of special needs clothing, and although not specifically for autism, has some stuff that could be very useful eg zip up back all in one pjs up to age 14
http://www.tanniandanni.com/kidsclothing/pyjamas.htm

hth

Raksha

Can I have some advice please? I've had my suspicions about #3 son since he was a toddler (he's now 11). He can be obsessive about things, he's not good at recognising the eb and flo of conversation and can be perceived as 'rude' when he butts in. He will do things in a 'clumsy' way and not be able to stop himself even when told repeatedly not to do things that way and have it explained./show him how to acheive the correct result. He gets stressed easily, which often results in him in tears (this happens at home and at school, where he is allowed to go away and calm down). He soils his pants

We had an appointment with the Child and Adolescent Mental Health Community nurse last week, he was off school with tonsilitis, but we went anyway. After seeing us both, she asked #3 son to wait 'outside in reception' When we got out there, he was no where to be seen, until we spotted him outside reception!.................

Does this sound like Aspergers? The Mental Health nurse seemed to want to go more down the family counselling route......

Sarahsaver

they should have given you help sooner for the soiling! see the school nurse for that (via the child health service locally)
dont let them blame you
if in doubt SELF REFERRAL has been my main way of getting help, sometimes motherly instinct alone has kept me sane
mind you i could have needed family counselling for coping with my ds!
ask away, between us theres a wealth of experience;)

blue_monkey_2

Well, I did say I thought my son was Aspie..... maybe I've not been listening before but my son is more than obsessed with this flipping marble run we got him (and then hid as it has over 500 pieces and it just tales too long to set up and it falls over at a slight touch), he has a few pieces that we left out by mistake and it is all he talks about, what shape he is going to make, how fast they are going to go, how many twists, whether it is going upside down.... just how long can you talk about one piece of little track..... If he does not see me listening or looking at what he has done he will come over and grab my face and turn it towards what he is doing and talk louder to me. Is this how it is going to be the whole time? Maybe it was happening before and I did not take much notice but tonight he has not stopped talking about this marble run. While I sit there saying 'yes' 'no' 'yes' 'no' - this went on for 2 hours until bedtime when he had a major strop because I said he had to put it away.

He gets up in the morning and he just watches the Youtube Magnext I-coaster ad for hours until breakfast and then getting dressed. We have got it for him for Xmas as it was the only thing that he asked Santa for. I suppose there is going to be more talking about that soon... LOL.

Just thought I would share with you all.

ferraripaul

hi

my son who is 5 nearly 6 has been diagnosed with aspergers, and now the feeling of obsesiveness...star wars is what we are on at the moment....so the films have to be watched over and over, and knows all the characters, also watch youtube, and plays the lego star war games on ps2....everything he does is done with obsesiveness, and we have major strops if things cannot be his way....but have just got used to it now....We are starting a early bird programme in march next year so hopefully this might help with how to help him

lb55

Can I have some advice please? I've had my suspicions about #3 son since he was a toddler (he's now 11). He can be obsessive about things, he's not good at recognising the eb and flo of conversation and can be perceived as 'rude' when he butts in. He will do things in a 'clumsy' way and not be able to stop himself even when told repeatedly not to do things that way and have it explained./show him how to acheive the correct result. He gets stressed easily, which often results in him in tears (this happens at home and at school, where he is allowed to go away and calm down). He soils his pants

We had an appointment with the Child and Adolescent Mental Health Community nurse last week, he was off school with tonsilitis, but we went anyway. After seeing us both, she asked #3 son to wait 'outside in reception' When we got out there, he was no where to be seen, until we spotted him outside reception!.................

Does this sound like Aspergers? The Mental Health nurse seemed to want to go more down the family counselling route......

I am no expert but have some similar issues with my 11 year old, I have liased with his new senior school where he is having problems with organising himself, settling in with other concerns. They have refered him with my consent and we both (my son and I) attended an appointment with a pediatrician. This is a big step I think, after I have seen my GP twice to be told there is nothing wrong. I am now waiting for all the information and tests to be evaluated this I have been told will take 2/3 months to complete.
I don't know if this is the usual route but I hope this helps.

Raksha

Ib55 thanks for that - one of the reasons I went to the GP is that his teachers are all saying he is disorganised, he seems to be really struggling with the whole 'big school' thing. This is the child who went from Level 2 in English SATS at the start of KS2 to level 5 at the end after he had the same teacher for 2 years. He's also being bullied at school

Strapped

blue_monkey wrote: »

Well, I did say I thought my son was Aspie..... maybe I've not been listening before but my son is more than obsessed with this flipping marble run we got him (and then hid as it has over 500 pieces and it just tales too long to set up and it falls over at a slight touch), he has a few pieces that we left out by mistake and it is all he talks about, what shape he is going to make, how fast they are going to go, how many twists, whether it is going upside down.... just how long can you talk about one piece of little track..... If he does not see me listening or looking at what he has done he will come over and grab my face and turn it towards what he is doing and talk louder to me. Is this how it is going to be the whole time? Maybe it was happening before and I did not take much notice but tonight he has not stopped talking about this marble run. While I sit there saying 'yes' 'no' 'yes' 'no' - this went on for 2 hours until bedtime when he had a major strop because I said he had to put it away.

He gets up in the morning and he just watches the Youtube Magnext I-coaster ad for hours until breakfast and then getting dressed. We have got it for him for Xmas as it was the only thing that he asked Santa for. I suppose there is going to be more talking about that soon... LOL.

Just thought I would share with you all.

Oh-oh. Guess what I bought DS for Christmas. We'll be swapping marble-run stories in the New Year perhaps :rolleyes:

Savvy_Sue

Raksha wrote: »

Ib55 thanks for that - one of the reasons I went to the GP is that his teachers are all saying he is disorganised, he seems to be really struggling with the whole 'big school' thing. This is the child who went from Level 2 in English SATS at the start of KS2 to level 5 at the end after he had the same teacher for 2 years. He's also being bullied at school

it does sound a bit Aspie-ish to me, and perhaps if he is having problems at school that would be another way forward. Don't let the bullying carry on: ask for the school's policy, ask what they are doing about it, ask to see the school's SENCO (Special Educational Needs Coordinator) to see if they can give support with organisation etc. I'll say again, you don't need a diagnosis to get help at school, you just (JUST!) need a recognition that they NEED help.

parisjordana

These children are all different and special in their own little way arnt they......no 2 ASD,s are the same though....all just so unique.....mine is 18 now but when I read the latest contributions to this thread it cheers me up and I smile because even though 18 he could be the 6 year old whos obsesing about Starwars or the little boy who talked about Marble run for 2 hours or the 11 yr old boy who butts in and is clumsy.....