Aspergers/ASD support thread

Sarahsaver

Unfortunately i would not put anything past that school. I am honestly sick of it at times. Especially as the social services family support meeting was in the school yesterday

Long story but my DD who would have been in yr 6, I have taken her off roll and am home educating her for this year.

They know ds has an eneuresis problem too and he was not allowed to go to the toilet.

mandy.h_2

sarah
we had same problem last year with ds science teacher every week he was coming home saying she had said or done somthing, i asked why he did not tell ta said told senco and she did not believe him, eventually towards end of year things reached a head and he refused to go in her lessons on being returned to class by another teacher she was observed shouting at him as soon as he walked through the classroom door, it was reported by this teacher.

gone back to school today science teacher no longer at school apparently had to many complaints about her
so you might find others in class have problems with her to id go to head as well as her

NoahsPennilessMummy

Many thanks for the advice re toilet seat.

Have now tried the paper covers but no good:rolleyes:

he went back to school yesterday and once he settles again I will suggest to his one to one a desensitisation programme to get him to slowly use the black seats at school....he has a special white one:o .

Now I need advice on something else.....I am looking at the GF/CF diet for ds....just looking into it at this stage....
Has anyone here done it and how did it go?
Am concerned as he has a restricted diet now and wonder what he will eat and will I be able to do it etc.
Have ordered a book from amazon but wondered if there was any first hand experience on here.

many thanks
claire
x

mousytrap

fallen_angel_69 wrote: »

Just wondering how everyone is coping over the school holidays
I wish it would stop flipping raining and then we could go out and about i hate being stuck inside,although we have been to Statford and had to come home because we got soaked I seem to think the kids play up more when they can't go far mine seem to be arguing over the least slightest thing
,

It's been a long six weeks over here but eldest son finally went back to school today.

Fortunately he son was away for 2 weeks with his grandparents in the middle which helped a lot, but we also had a couple of short breaks which were very difficult indeed. The first time I took the kids away by myself and they both played up regularly. The second time I took OH as well and all three of them gave me grief. (Most of it came down to nobody getting enough sleep)

I have come to the conclusion that I am never, ever going on holiday with OH again and I'm not taking both kids by myself for a very long time. Either I go by myself or just take one kid at a time.

We are still getting into Geocaching, though... Actually I'm a bit obsessed... I expect to reach 200 finds this weekend (in 3 mths) many of which either, or both, children participated in. I am also about to take eldest son orienteering for the second time on a slightly more difficult course.

We saw the paediatrician for the second time. He already referred him for autism assessment but this time had the behaviour questionnaire back from the school. He said it's all in keeping with an AS profile... Still have to wait 18 mths on the assessment queue though. He's going to go into the school and observe and talk to him, then meet with us there (date to be advised). Also spoke to him re better managing the getting him to sleep process. He's going to suggest to our GP some anti-histamine meds (starting with V???) with a soporific effect.

Meanwhile we also tried cranial osteopathy (3 sessions) out of desperation really, and much to MILs horror. He was so relaxed while the guy did it, but haven't noticed any difference outside clinic.

Anyway, youngest is at nursery 4 days a week now so next week I will have my life back again... at least during the day...

mousy

mandy.h_2

Don’t know whether its easier when they r not at school

DS came home today with one of SATS results science only got 3C, now I know he has had problems in this subject but a 3C is really low, he is not happy

I phoned school told me not to worry they were all being sent back to be remarked DS should be getting at least a 6, apparently a boy in bottom set is supposed to have gone up to a 5A so will have to wait and see. Personally it does not matter to me but DS is worried he is now going to move sets again.
It’s the problems it causes at home that I worry about

Sarahsaver

My DS brings most of his worries home too. I told the school that, from a cynical point of view they dont have to give a damn but from a moral point of view they should be worried they are not allowing my DS to deal with problems at school so he brings it home and the whole family suffers. His feelings are hurt by the attitude of the teacher, and he can't understand why anyone would not like him (his words bless him)

PLEASE try not to worry about Sats. They are not compulsory in any case whatever anyone tells you. Sats are primarily there for the government and the school as a box ticking exercise. NO test is ever going to measure my DS1's culinary knowledge, what he knows about nature, cacti, how sensitive and insightful he is, his astounding vocabulary. They will measure what they have been taught at school (teaching to the test of course) and he will not do well. Kids with ASD have a different kind of intelligence that isn't measured by SATS.

mandy.h_2

Sarahsaver wrote: »

My DS brings most of his worries home too. I told the school that, from a cynical point of view they dont have to give a damn but from a moral point of view they should be worried they are not allowing my DS to deal with problems at school so he brings it home and the whole family suffers. His feelings are hurt by the attitude of the teacher, and he can't understand why anyone would not like him (his words bless him)

PLEASE try not to worry about Sats. They are not compulsory in any case whatever anyone tells you. Sats are primarily there for the government and the school as a box ticking exercise. NO test is ever going to measure my DS1's culinary knowledge, what he knows about nature, cacti, how sensitive and insightful he is, his astounding vocabulary. They will measure what they have been taught at school (teaching to the test of course) and he will not do well. Kids with ASD have a different kind of intelligence that isn't measured by SATS.

i fully agree i dont care he just gets so upset, we have always had the problem of anything going wrong at school he waits till he gets home sometimes he is upset for days before he will tell us what is wrong. i usually can spot the signs and sit him down now and ask i tell him we are not moving till its sorted. to be honest the ta he has is really good and usually rings meto warn me if there have been any problems

seven-day-weekend

Just been reading the symptoms for Dyspraxia (as my son has dyspraxic symptoms as well as AS, quite common I believe), but while I was doing so I came across a little article that went 'bingo!'

A doctor said she always asked parents of AS kid things about the pregnancy
1. was there ever any sign of miscarriage
2.was the labour less than two hours and traumatic
(There was something else, but would you believe, I have forgotten what it was!)

Anyway, I had to go into hospital at five months pregnant becauses my son was at the top of the birth canal as my cervix was dilated due to a weakness. I stayed there until my ninth month. He could have been born any time from five months onwards, he was in the right position.. It made me think, his head was down in the birth canal for all that time, couldn't have done him much good.:eek:

Also my labour was less than two hours although not traumatic.

There was another thing about kids with AS, dyspraxia and other associated conditions which said they very rarely crawled as babies. (A higher proportion than in the general population). My son did not crawl.

Thought it was all very interesting.

My son (for those who do not know, he is 28) has been a lot better this last year. He rang me up today to tell me how he had budgeted the money left in his bank account so that it would last him until he was paid. He couldn't have done that a year ago, I'd have had to do it for him. Also he now realises that he can't get ready for work in twenty minutes like everyone else can, and allows himself the two hours he needs. Not so long ago I would have had to tell him when to get ready, if I didn't he wouldn't allow himself enough time to organise things and would either be late or go out unfed, unwashed and unshaven and without his phone or bus fare. :rotfl:

I also had to listen to a long-winded monologue about Jeremy Clarkson.:eek:

He's getting there slowly.

I think people with mild AS do learn to cope with it, it takes time because they have to learn things that come naturally to other people. In some ways my son is very mature but in others he is like a fourteen year old.

Just rambling in the early hours, I'll shut up now!:D

mandy.h_2

seven day weekend
im exactly the same ds wanted to arrive at 25 wks they kept him intill term with me lying on my back till he was due, he also never crawled i just thought it was because he was so fat
did you have the steroid injections im sure its somthing to do with them why he has AS, had DD 34 week small but no drugs no probs as such

seven-day-weekend

No, I had no treatment apart from bedrest, but this was 28 years ago.