Aspergers/ASD support thread

samf1971

Just thought I'd post a quick update.

Thanks for all the nappy advice by the way.

DS has now been diagnosed with Autism - which is what we expected.

He's already having SALT but it will be with someone else now. He's going to have OT sessions too to work on his sensory issues and co-ordination etc.

The ed psych has put a formal referral to Stars for him (he already goes whenver we can make it, but this is for someone to come out and work with us), she's left it to us to approach her, we're planning to home ed so she's left it up to us to decide if & when we need her help/advice which is nice not to feel pressurised

We've a lovely new HV who is going to sort out nappieis for him which will be great

I feel pretty positive about everything really, it's just confirmed what we already new but it's nice to be able to access more services for him & at the end of the day I can't say I really see the autism, I just see DS as who he is

Snaggles

Hi Sam, I've just PM'd you about Stars - you're in the same area as me, so am wondering if you will see the same people as us - if so, they are fabulous! I mentioned the bit about the school before I had fully read your post and I now see that you are going to home ed....so just ignore that bit...lol!

madhouse

I have posted this on the benefits forum, but thought I'd post here as well incase people miss it. The family fund has raised it's upper age limit to 16 for England and 17 for N.I. and Wales. More details here: www.familyfund.org.uk

lil_me

If your local parent partnership isn't any good with advice etc (ours are brilliant but I know not all are) http://www.ipsea.org.uk/ can be very useful for SEN advice.

mandy.h_2

just spent most of the day filling in DLA renewal form, phoned them to ask if they have copies of original claim when assesing new one as this would make life much easier, obviously not was the reply. i find these forms so dis hartening but a essential thing for ds. nowhere near finished will do rest tommorrow

Sarahsaver

Oh heck, had a difficult couple of days with DS.
I am worried about when the new baby arrives.
i really think I am going to have to make one room in the house secure so I can lock the baby and myself in it at such times. Oh heck. What the hell do I do? social services, won't they either not help me at all or take one of my kids away?

Advice please!

shazrobo

no advice sarah i'm afraid, just (((big hugs)))
one of my twin lads been terrible these last few days, especially saturday, when he was so violent, maybe the weather is affecting him?
social services in my area are a waste of time, but in your area maybe more helpful, contact them and see what they say.

Snaggles

Sarahsaver wrote: »

Oh heck, had a difficult couple of days with DS.
I am worried about when the new baby arrives.
i really think I am going to have to make one room in the house secure so I can lock the baby and myself in it at such times. Oh heck. What the hell do I do? social services, won't they either not help me at all or take one of my kids away?

Advice please!

They wont take your kids away hun....you're a fab Mum.

I think it may be a good idea to have somewhere you can go - if you are dealing with someone who is completely out of control, the best thing to do is just remove yourself from the situation - you and the baby will be safe, and the situation will calm down much more quickly.

My ds went through a rough patch after I had dd, and another one just as dd started to get more mobile and communicative. But generally he has coped really well, and he absolutely adores his little sister. He can be a bit mean to her sometimes, pinching her toys, but then getting cross if she pinches his, but he has never been violent towards her - it's like a line that (touch wood) he wont cross.

I hope you have a similar experience.

getcarter

Hi everyone

I already have one son (9) with ASD and ADHD but it's my other son (11) that's causing problems at the mo. He finally has a diagnosis for epilepsy (been over 4 years), but has been getting into trouble at school over the last year, so much so that he has had to have a 'minder' with him and also been excluded one day. We have been having appointments with CAMHS but the lady we've been seeing for anger managment etc thinks he may also have ASD so we have an appointment with someone else in Sept. Would it be possible for any problems to show up now? (other son diagnosed at 5). His social skills have disappeared this year.

Do you think this is just age or something more?

Sarahsaver

The thing is having one child with ASD can affect the others, I know this from my DD who is very resentful and angry towards DS1.
you can tell with DS that his behaviour just IS , it's there all along waiting to show itself, whereas DD is reactive to stuff going on. also she can control her behaviour or talk about how she feels but DS can't.
If you mean the 11 yr old lacking in social skills, not many do at that age!

have you contacted Young Minds because they were really helpful for me;)