Aspergers/ASD support thread

Savvy_Sue

It helps me sometimes when I suddenly think "Ah, I'm dealing with an Aspie here." I never say it out loud, but I just realise that the reactions I've got are what I'd expect from the definite Aspies I know.

So it may be a case of finding people like me, who aren't phased by Aspies. In many ways you're far easier to be around!

I don't know how you do that though ... Sorry!

Sarahsaver

My DS's consultant phoned today and there is to be a 'meeting' of the professionals involved so far then he may be referred to a neurologist.

Sarahsaver

Anyone else had a kind of grief feeling? i love my son the way he is but when i got the diagnosis, and today when i was told the consultant thinks he should see a neurologist, I feel sad. I didnt expect to feel this way, I thought I could cope with anything. The Dr was pretty cagey when i asked what the EEG revealed, do they not HAVE to tell me? I just want to know he is MY son.
he was ill today and hardly spoke til about 11 0 clock to tell me he was hungry and ask me why most of the other pregnant ladies were fat as well as pregnant (he had to come with me cos i had a checkup) and he heard the baby's heartbeat.
i saw the senco at school this week and she seemed quite helpful but i think i will have to write to the local authority to ask for him to be observed by the ed. psych.

mandy.h_2

just when u think things cant get any worse ds rushed in hospital with apendacitous cos he does not got all symptoms only extreme pain which for him is unusal so they wont operate till he had a scan earliest day for this is friday but he cant come home either just in case it gets worse

today has been horrible i have played go between for ds and nurse who all though very caring do not know about autism and think he will be ok once he settled in

im exhausted had to come home but am worried sick about him

Js_Other_Half

<hugs> mandyh - I can understand you being worried. I know in the past (former residential staff ), with parents permission, we've kept the young person at the residential unit if the hospital were only operating a wait and see policy. Our argument was we knew the young person, and could tell if their behaviour was out of the ordinary.



I hope you all get some sleep.

Js_Other_Half

Sarahsaver wrote: »

Anyone else had a kind of grief feeling?

It's very common - even if you were expecting the diagnosis, it's suddenly very final.

<hugs>

Sarahsaver

mandy.h wrote: »

just when u think things cant get any worse ds rushed in hospital with apendacitous cos he does not got all symptoms only extreme pain which for him is unusal so they wont operate till he had a scan earliest day for this is friday but he cant come home either just in case it gets worse

today has been horrible i have played go between for ds and nurse who all though very caring do not know about autism and think he will be ok once he settled in

im exhausted had to come home but am worried sick about him

(HUGS) sorry to hear this

PasturesNew

Snaggles wrote: »

I do enjoy your posts PN, you describe your feelings so eloquently. Have you ever thought about writing a book based on your own experiences?

I have a similar pattern of crash and burn relationships - I start off well, but then either I do something that annoys them, or I bore them, or the friendship overwhelms me and I back away.

For quite a few years I backed away from friendships altogether, and I was quite happy to just have my hubby as my only real friend (he's also almost certainly on the spectrum, which is probably why we have a turbulent but enduring relationship). But over the last couple of years, I have started to be more open to friendships. I'm not sure why that is, but goodness, they're hard work aren't they. They involve going out, socialising, making conversation....things I'm not naturally very good at. And I find I have to really think through what I'm going to say, because otherwise I will say something really insensitive, or I will miss the little cues that would tell most people to change the subject, give a hug, ask a question.....etc.

So no, I don't think you sound mad - just insightful and honest.

Thanks.
I'd never quite manage a book, unless it was random thoughts and instances without structure and form... because I can't do the bit where things would have to flow from one to the other, if that makes sense.

I can do factual things, but in books people join together the "scenes" with banter. And I can't write at that level.

I don't have time to think through what I'm going to say, I just say things. But I'm rarely around people and rarely have been. Certainly not having a partner means I've not had the opportunity to let them do the talking, while I just nod and can speak when I am ready. It's just me and that creates a lot of pressure to just speak ... and then I can't shut up and it's all drivel

Savvy_Sue

Hugs to you mandyh, will be thinking of you!

Sarah, I am sure the grief is quite normal - did you read the 'Holland' post?

It may be that the consultant seemed cagey because he isn't sure what the test results show, and wants a neurologist to interpret them. There could be lots of reasons for that, couldn't there?

softwaremad

hi all, i need some advice on the best way to go about a situation that arose the other day. my daughter is 12 yrs old and has severe autism & learning difficulties, she was in the park opposite our house playing with her barbie dolls, when a friend joined her. this new lad who moved in 2 weeks ago (aged 10) then decided to persuade my dd friend to point to parts of the naked barbies body & to get my daughter to say what she called relevant bits. i overheard them laughing an asked what was going on to be told that my dd had been saying boobies etc and i caught them just as the boy was saying point to the barbies nether regions go on!

so i told him where to go however he stayed there and persisted to pressure my dd friend to ask about the names for body parts. the kids were in hysterics at my dd responses. eventually i stared him out and he left, however i was spitting chips at this point and couldnt believe the audacity, i told my dd friends mother what had happened now she is peeved at me for singling her child out!

i called the police & reported the incident as from my opinion that boy is one step away from being a pervert! however i later discovered from the boys sister that they dont like these sorts of children (disabled) and am sickened to the core. i cant believe this attitude is blatantly prevalent in those so young, as the police told me they can not really do anything only have a word with them and hopefully scare them but it is an attitude which is normally adopted from the parents. These people are living in rented accomodation across the road they have 3 children 2 boys 1 girl in a 2 bedroom (private rented) property. the boy (10 ) & the girl (6) share a bedroom.

today this boy has gone up to another child in the street who is in a wheelchair and told him he'll never be able to kiss or get a girlfriend because he is in a wheelchair.
I am so angry with this boys parents (they did aparently send him to bed that day ) that i am not in a fit state to confront them.

does anyone have any advice - preferably within the law as burning their house down is illegal.#