Aspergers/ASD support thread

PasturesNew

geocaching would sound good ... except I wouldn't want to be appearing to be behaving oddly. Which one easily is when one is alone. People seem to view single people walking along/loitering etc as a bit suspicious.

I've never seen a GPS thingy (no idea what form they take). Maybe in the future when I find out about these, feel confident enough to choose/buy one (choosing for me is a big and complex over-researched investment in time and consideration) then I'll try some.

tilly's_mum

Hi

My DD2 is autistic, has severe learning difficulties, non verbal and challenging to say the least with a list of triggers as long your arm - no phones, writing, reading (managed to use the internet providing I don't read outloud my emails!) people coming to the house and her latest to join the list is to flip when anything comes through the letterbox (she hears this through a shut door and she is quite a distance from the door and it isn't loud!) When she 'flips' it is like having a tornado in the house - everything is thrown on the floor (we now live in a clutter free ish house (everything is packed up in the garage!!))

I would love to talk to other parents of children who have severe learning difficulties and are challenging but can't find any groups, online or in real life, for this. Do you know of any? I am thinking of setting up a web-based support group with a chat forum - do you think this is a good idea?

Thanks

Cheryl

Sarahsaver

We have groups locally run by the Red Cross, give your local Red Cross a try;)

Sarahsaver

we have a thing called InfoXchange here and they just sent me a folder full of useful information, they keep a database of special needs kids in our area, and all the literature they sent me is very much tailored to our individual circumstances
And we got a free swimming voucher.

verysillyguy06

tilly's_mum wrote: »

Hi

My DD2 is autistic, has severe learning difficulties, non verbal and challenging to say the least with a list of triggers as long your arm - no phones, writing, reading (managed to use the internet providing I don't read outloud my emails!) people coming to the house and her latest to join the list is to flip when anything comes through the letterbox (she hears this through a shut door and she is quite a distance from the door and it isn't loud!) When she 'flips' it is like having a tornado in the house - everything is thrown on the floor (we now live in a clutter free ish house (everything is packed up in the garage!!))

I would love to talk to other parents of children who have severe learning difficulties and are challenging but can't find any groups, online or in real life, for this. Do you know of any? I am thinking of setting up a web-based support group with a chat forum - do you think this is a good idea?

Thanks

Cheryl

That would be great...! I am a social worker and many parents, especially mothers are feeling alone and would love to chat to parents with children who have similar needs....Especially as the nature of of their children's needs
make it very difficult to meet other parents....:T :T

Carmina_Piranha_3

Savvy_Sue wrote: »

It is possible that as time goes by - depending on HOW Aspergery she is - that she will come to accept that wearing pants is one of the 'rules'.

i've only just joined this thread and i see page 1 is 2 years old - ooops!

this week i bought some new briefs for my boy and he actually asked me to swap them for boxers. he hates boxers and finds them uncomfortable but he's decided he doesn't want to be the only kid at high school wearing briefs (he got laughed at for wearing 'girls knickers').

i was beginning to worry because tesco didn't have any briefs in the next size and one of these days (or years lol!) he's going to grow, but luckily he's decided to wear boxers 'because everyone else does' :T

tilly's_mum

Thanks Sarahsaver - Had a look at Red Cross site and they don't run any groups in my area.

verysillyguy06 wrote: »

That would be great...! I am a social worker and many parents, especially mothers are feeling alone and would love to chat to parents with children who have similar needs....Especially as the nature of of their children's needs
make it very difficult to meet other parents....:T :T

Thanks -at least it is not just me who feels like this. Just need to think of a good name now - any suggestions?

verysillyguy06

tired heros??

samf1971

I've a 2 and a half year old boy who is very similar - have you tried other forums as well as this one, I've found a few & they are quite helpful. ASD Friendly & autism awareness.

verysillyguy06

good post...have u got a link???