Aspergers/ASD support thread

Sarahsaver

When my DS did the tests with the psych, and he got to the drawing things, 'draw a house, then a tree and then a man' he waited and said 'hmmm how can i put all those together?' he decided they should have been better placed all in a picture together, and he told the psych. this.
you are right PN if you could say 'i have problems with X..Y..and Z..' it would be easier. People think my DS is pedantic and over inquisitive, and that I make too much fuss of him. They dont know how frustrated and upset he gets if he hasnt been told something clearly enough or if he does not know whats expected of him!

carol9uk

pasturesnew re -don't understand the concepts of help and cost.
I don't see how either could or would apply to me.
I just want to know for sure, to be diagnosed, so I have a peg to hang it on.

he needs help as he want to get back into work and they can give support what he gets into difficult situations and the cost, the NAS are going to work out how much it will cost the PCT for this support. the NAS also can give you a diagnose, i saw it on their website a while ago. even after you get the diagnose you will need support. i am sorry i didnt make myself clear.

all the best

PasturesNew

carol9uk wrote: »

the NAS also can give you a diagnose, i saw it on their website a while ago. even after you get the diagnose you will need support. i am sorry i didnt make myself clear.

No they can't. I went there last Friday.
To their office.
They just said "get a doctor referral, it's the only way, could take a LONG time!"

It might be just me, but I expected them to be better. One of the problems I have always had in life is: asking what's available, what the score is - and getting an answer. I thought with them they'd have information, especially as they're now promoting "asd in adults" awareness on their (rubbish) website. But no. I got sent packing really.

PasturesNew

carol9uk wrote: »

they can give support what he gets into difficult situations and the cost

In the past, when I come across bad times at work, I've just gone into myself and eventually just shuffled off. At least now I've got an idea why things went wrong. The basic problem is always the same: nobody is understanding my request for any kind of assistance. Whether that's an answer to what I see as a simple question or if it's for any kind of request for a change, resources, information. As I never get answers, I get frustrated, then withdrawn... and that's the end of it for me. I battle on for so long but then need to get myself out of the situation as I can't see any way to move forward.

All I need is to learn how to ask for something, receive the response ... and then to negotiate. But my information processing at the point where I receive the response is odd. I can't analyse the spoken word and come straight back. I just take the response given and that's it. Or I can repeat the request again. But to reword the request or negotiate I'd have to think over what they said and then go back the next day with my next line.

It's hard to describe. Makes me sound stupid put like that

Snaggles

PasturesNew, it sounds really difficult for you, but you certainly don't sound stupid, not in the slightest.

Arrrgggghhhh, I am having THE most frustrating and upsetting morning ever. We had a meeting with the school and the Stars team on Friday - they were absolutely brilliant and have arranged to come into school today to do their initial observations. Except Ryan is ill - really poorly, and throwing up, so no way I can Calpol him up and send him in.

I rang school as soon as the office opened at 8am, and they rang the Stars team to let them know, but Stars have said their diary is full and they can't re-arrange the visit - the next visit isn't till 4th June, which isn't really a problem (we've coped until now, so another few weeks wont make any difference), but it means that they will only do 5 visits to the school instead of 6. Not sure what impact that will have, but I just feel so frustrated that this always seems to happen to us, and that we will miss out because of an unavoidable illness.

blue_monkey_2

Hi again, Sue of course I do not mind, have had a frantic weekend trying to get on top of everything and the iorning is FINALLY finished and the board down. Thank goodness!! We have an appointment on wednesday to get the keys - until then it is just killing time. I guess that then I am going to be VERY busy trying to get everything done!! Will be back with more news as and when, this heat is a killer, the kids have been so miserable and the birds keep waking me up with their happy singing!! Much as I love then - at 4.30 am I do not!! xx

Sarahsaver

eugh! my ds thought 4.30 was a good idea too this weekend when we stayed at mums.
the antidote to miserable kids has to be icepoles or lolllies in the freezer! 9thank goodness for poundland!)
The SENCO has canceleld our meeting tomorrow
i am having a day off, including a day off of being able to type!

Aril

Hi
For some reason I've never found this thread before [tend to trundle between OS and DFW most of the time] My 9yo son has mild AS [he was diagnosed at 6 but the statementing process was pulled mid way through due to lack of funding] but he's down as Action plus. He's generally getting on very well but has always a range of changing quirky habits which usually move onto something else fairly rapidly. This time he's stopping and jumping up and down on the spot whenever he's walking somewhere. At one level we don't pay much attention to it but I'm a bit concerned as this one doesn't seem to going away and I don't want him to be bullied. I have spoken to him about it. Has anyone had any experience of this or something similar and any ideas of how possibly we might stop it?
Many thanks
Aril

AnnieH

My DD's nurse said that she quite often videos children and when they see what they do on video they can see why the certain behaviours might single them out. They often don' even realise they are doing certain things even when you speak about it.

Sarahsaver

My DS does things like that too.
i dont think he really realises, but yes I suppose it will be a concern as he gets older. he does an odd jerky walk sometimes, or makes odd noises or repetitive sounds, I have this book on my Amazon Wish list
The Incredible 5-point Scale: Assisting Children with ASDs in Understanding Social Interactions and Controlling Their Emotional Responses (Paperback)
by Kari Dunn Buron (Author), Mitzi Curtis (Author)
its all about learning what is socially acceptable.
i do let my son just get on with it because sometimes he just seems so happy to be moving in a certain way or experimenting with noises, but in school it will be different I know.