Aspergers/ASD support thread

mandy.h_2

well i think we have just about survived the dreded sats week roll on next week when dd gcse start cant wait till 12th june all over and done with

ds had me in stiches laughing for a change told me the only thing he wrote on his sats paper on shakespere was that as he has autism he cant understand the meaning of todays word so he has no chance with back in the day language and thats a direct quote. id love to be a fly on the wall when examiner reads it.

but he thinks the maths was far to easy and was bored he has science today so we will see how that goes

blue_monkey_2

Morning everyone, just running through again. We have been offered a viewing on a house this afternoon so it looks like this journey might finally be over. It'll be nice not to have the uncertainty hanging over us any longer and we can start again. I'll let you all know when I have more definate news. It has still not sunk in yet though

fallen_angel_69

hope the viewing is fine and it really goes well for you good luck

Sue-UU

All the VERY best with it blue_monkey, I do so hope you're fortunate.

Sue

Savvy_Sue

I do hope BM won't mind me posting that she posted elsewhere to say she got that house she was after. And it seems as perfect on viewing as she thought, and the neighbours seemed great too, and now she's gone to bed because she's not been sleeping well lately! And (to keep it slightly on topic!) the kids thought the garden was great too.

sarah1975uk

Savvy_Sue wrote: »

I do hope BM won't mind me posting that she posted elsewhere to say she got that house she was after. And it seems as perfect on viewing as she thought, and the neighbours seemed great too, and now she's gone to bed because she's not been sleeping well lately! And (to keep it slightly on topic!) the kids thought the garden was great too.

So pleased for BM soooo deserves this bit of good luck and the prospect of a more settled future xxxxx:T

Sue-UU

Savvy_Sue wrote: »

I do hope BM won't mind me posting that she posted elsewhere to say she got that house she was after. And it seems as perfect on viewing as she thought, and the neighbours seemed great too, and now she's gone to bed because she's not been sleeping well lately! And (to keep it slightly on topic!) the kids thought the garden was great too.

Oh that's such wonderful news to go to bed on Sue. I do hope she doesn't mind as it's wonderful to know, that it's so ideal for her and the dear kiddies. Wonderful and thanks so much.

Sue

PasturesNew

Would this DLA pay for a friend to take me down the pub and socialise?

Damn ... thought not

PasturesNew

I did a really stupid thing yesterday. I tried to reach out in the only way I know how ... checking out a website. So went to the nas.org one, and it seems to be promoting adults with asd... so I felt inspired and tried to find out more. Only the stupid website wasn't telling me anything. It's one of those stupid websites that just says "we're great... but we're not actually going to tell you anything". All annoying. So I got the local office address off the site ... and turned up. Big mistake.

I'm OK in my car. It's great. My box. But, then I got to the small office park where it is. And I had to park in the visitors' area. A shared visitors' area. This took some courage. So many signs to read and double check that I'm not breaking any rules (did the Visitors sign mean me? Was I allowed in the bit where I parked? Some spaces had business names, parked in one that didn't, but nervous I'd done the wrong thing).

But, the parking was the rear of a tall building and I had to get round the front of that and cross the road and approach where I was going. Jesus you feel so exposed in that stretch. Got to the door, got in. Phew! Only there was a door, that was locked. By this time I was in a meltdown. So into the loos, quick tissue, crouch down in the hallway deep breathing and calming myself down. Brain racing with options. Didn't want to get seen in that state. Didn't want to leave. There had to be some clues. But there were none. Nothing on the door about how to get in (obviously knocking wasn't an option for me). So I got myself together enough to leave. Walked out and stopped by the door ... and spotted an intercom. Doh... I was so fixed on having found the right building and following my planned route to get into it, I hadn't seen it. Pressed.. hurrah. Got let in.

No information. No help. Nothing. Not even a leaflet. I was just told I have to go to my GP to get diagnosed. I said I have communications problems; I am never listened to; I am always dismissed. If I can circumvent that process as I am scared that if I am dismissed I won't ever get round to it again and I know some Drs can be 4rses. She said she would try to find out if there is a Doctor close to me that I can register with that has experience of it, so I can get a referral.

But she didn't hold out much hope of me getting diagnosed. She made out it was really difficult. I asked "so, what, 2 years? more?" and her face said "more".

I need the formal diagnosis, just so I don't think I'm going nuts. Without the official bit of paper you can't say "I did that odd thing because ...." I KNOW I am Aspie. But there are times when you need to prove it, so to speak. To hang it on a peg to explain.

I thought the last 40 years were hard not knowing why I was different, why nobody was thinking like me, why I was doing certain things, why I was never getting on in any environment. Looks like the next 40 will be harder unless I can get the rubber stamp. Without the rubber stamp it's like you're having to double apologise for everything. Apologise for being odd. Apologise for not being able to prove you're not just an odd attention-seeking liar.

Snaggles

Goodness PasturesNew, I don't know what to say, other that I think you were very brave sticking at it - I would have almost certainly got back in my car and driven away.

I was just wondering, how would it be if you printed out your post above and took it to the doctors with you, along with maybe a list of the things you have difficulty with? We took a list with us, and I think the doctor took us more seriously because it was obvious we had thought about why we were there, rather than just arrive saying 'there's something different about our son'.

Is there anyone you could trust to encourage you to persevere if it takes a while? Although 2 years sounds crazily long, it might not take that long - and even it does, if it brings you some peace of mind, it might be worth it?

I really do wish you well - I can see so much of my son in you (oh dear, that sounds patronising, but it wasn't intended to be).