Aspergers/ASD support thread

SingleSue

Aww Taffoire.....I have been there and it's not a nice place to be at all.

Don't worry about moaning, it does you good to get it off your chest and talk to people who do actually understand what you are going through and feeling rather than parents of 'normal' children who think that your parenting is at fault (which it isn't)

Feel free to private message me if you want a rant.

Sarahsaver

(HUGS)) Heck you sound just like that could have been me saying all those things. I am sure you are not alone, but it does feel like it. My DD is having problems at school and I spoke to a learning mentor aboutt he impact of having an Aspergers/ADHD brother. The learning mentor believes me but im sure other members of the staff dont.
She's seen DS try to self harm, injure little DS many times, get himself or little DS in hospital. I even broke my hand once not to do with DS but then a week after DS whacked me so hard he reset it!!!
DS has been suicidal many times, but again people didnt believe me (didnt want to???) or thought it must be my fault somehow.
It DOES make you feel guilty for your other kids I totally understand that feelin. See if theres some playscheme or clubs your other kids could go to. Or like the FWA they take my kids to play sessions/mentoring groups. 'every little helps'
Litrle DS nearly made my heart feel like breaking, DS1 and DD were at an after school club and littlun, only 6 years old, said'i like it when we have quality time together' Little things like just walking to town with one child mean so much more whan there has been a lot of turmoil.
I thought at one time I would take DS to social servives and leave him there, i feel awful saying that but i want you to know you are not alone. I even thought I would have no more kids because he was so difficult, a few years back i had to have a pregnancy terminated for medical reasons (my helath - it would have nbeen life threatening) but at the time io thought maybe it was a blessing in disguise because i could not have coped and even would have feared for the safety of a baby at the time.
Now things are better, for now. There are ups and downs, sometimes i have to lock all the windows and doors, send dd and litrle ds to school alone, but sometimes there is calm.
I also try to spend one on one time with DS because he can eb brilliant. for his 8th birthday he wanted to go to the Tate Modern to see Francis Bacon paintings. Hes the only 8 yr old I know who has HEARD of francis bacon let alone understands the paintings. Have a look at some, they are turmoil on canvas! DS also loved the big crack in the floor of the gallery, modren art that i just did not get but he could have spent all day there.
Keep telling professionals, teachers and so on. Eventually they will have to believe you.

mandy.h_2

Taffoire.....i know exactly how u feel my dd has put up with so much and then feels guilty when i say ds has to go to aunty during half term cos im still in uni and i dont want her to be alone with him, she just tried telling me he is not that bad and she wants him to stay at home with her. this in my eyes is not an option he changes moods like weather.

Have ss coming today they cancelled yesterday am going to tell them i want new dr at camhs cos ds wont engage with one we have.

My friends son who is 15 and has aspergers has been put on prozac for his anxiety and she says life is so much better, i always said i would not want to go the medication route but after the last two weeks could be persuaded . does anyone have experience of any meds that work but dont dope ds up

mandy.h_2

am so angry social worker cancelled again thats three times since friday says not finished initial assesment report, how hard can it be it was only done at christmas so just needs updating. they think dd is a risk she could be as far as they are concerned she could be deaed he not coming till tuesday now whats he writinga book. its a joke

Sarahsaver

Mandy H get him tested for wheat and dairy intolreance, there is some evidence that some asperger children are helped by dietary modifications.
you can send a wee sample off somewhere to be analysed. I have a link somewhere i will try to dig it out later, got to get ds out of the freezing cold wet outdoors!

mandy.h_2

thanks sarahsaver but it might make things worse as ds diet consits of pasta milk and cheese on a daily basis he wont change and believe me ive triedso what would i feed him o and i forgot ice cream

Savvy_Sue

That is something else they've found, that in extreme cases, children are ONLY eating things which they are reacting to, and it's almost as if they're addicted.

I don't have an answer to that ...

Sarahsaver

Its common to crave the things you are intolerant too, one of the mad mad things about the human body i'm afraid.

Sarahsaver

http://www.whale.to/a/b/shattock.html
This is the guy who did the research HTH

Js_Other_Half

I've worked with a number of autistic kids who react much better on a wheat free, lactose free diet. I would suggest getting a paediatric dietician involved with this first though - perhaps asking your GP for a referral. And yes, I've seen how difficult it can be to stop them having them!
I once worked with a young person who reacted badly to cooked tomatoes/tomato ketchup - he'd get a 'sheen' over his eyes, and he would be violent.