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Aspergers/ASD support thread
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Yep that is what I was told regarding Aspergers but they also said it for my younger son who is complex autistic with very complex needs.
That said, they did try to help by getting placements with child carers (for me to fund out of the DLA) but had no luck due to middle son's (aspergers) history of violence and aggression.We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
One thing I will never ever do again, is ask social services for help as they decided there was some fault and only after several (very annoyed) letters from specialists involved with my boys, did they back down and say I was doing a good job."I wasn't wrong, I just wasn't right enough.":smileyhea97800072589250
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Fairly trivial question.....how do you pronounce Aspergers?
With a hard g, as in goose? Or a soft g as in general?
We say it with a hard g, because I think the guy who discovered it was Austrian, so I thought that was the most likely pronunciation. And one of the people from camhs says it that way too, but the other person from camhs pronounces it with a soft g, as do a lot of other people.
Does anyone know for sure?"I wasn't wrong, I just wasn't right enough.":smileyhea97800072589250 -
Personally I go for an in between sort of g ...Signature removed for peace of mind0
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A lovely young lass who was confiding in me about her Aspergers when we were at College for IT courses prounounced it with the 'g'eneral sound.Sealed Pot Challenge 001 My Totals = 08 = £163.95 09 = £315.78 10 = £518.80 11 = £481.87 12 = £694.53 13 = £1200.20! 14 = £881 15 = £839.21 16 = £870.48 17 = £871.52 18 = £800.00 19 = £851.022021=£820.26[/SizeGrand Totals of all members (2008 uncounted) 2009 = £32.154.32! 2010 = £37.581.47! 2011 = £42.474.34! 2012 = £49.759.46! 2013 = £50.642.78! 2014 = £61.367.88!! 2015 = £52.852.06! 2016 = £52, 002.40!! 2017 = £50,456.23!! 2018 = £47, 815.88! 2019 = £38.538.37!!!! :j0
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not sure if ds would go to respite but it would be nice to be offered, i just completely ignore comments about my parenting skills or ask people if they can do better take ds for a day they soon shut up. I notice its not just professionals who have opinions on how to deal with situation but certain members of our family. i have grown a very thick skina and learnt quickly how to be blunt in my replies.proud mum of son with aspergers0
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not sure if ds would go to respite but it would be nice to be offered, i just completely ignore comments about my parenting skills or ask people if they can do better take ds for a day they soon shut up. I notice its not just professionals who have opinions on how to deal with situation but certain members of our family. i have grown a very thick skina and learnt quickly how to be blunt in my replies.You have the right to remain silent.Anything you do say will be misquoted and then used against you
Knowledge will give you power, but character respect.
Bruce Lee0 -
Ok here goes,
I'm a noob to posting on this thread but have been lurking for a little while (ok, a long while), but now feel I have to jump in because I'm struggling
About me: I'm a married 28 year old mum of 3 boys - 6, 4, 2. Eldest is extrovert Aspie. I'm a volunteer support mentor for sure start, a debt and benefit advisor working for communities first and professional facepainter.
We seem to "manage" the AS quite well, I now recognise some of the triggers and sometimes am able to stave off a meltdown by distraction or social stories.
The thing that's prompted me to come here this morning is right now, DS1 is upstairs building lego as he's just come through a bad meltdown where he self harmed and attacked me.
I'm sat here crying as I'm just feeling so totally lost right now. It's one hour post meltdown and apart from the marks on his face and arms where he hurt himself he's totally oblivious to what happened.
Coincidentally we're seeing the paed consultant this morning at 1130 (just a routine appt).
DS1 was in no fit state to go to school this morning, I had to get my father to come and sit with him (my father has undiagnosed "social difficulties") while I tooke DS2 to school and begged the teachers to take him in 15 minutes early so I could get back to DS1.
Being utterly honest here, the guilt I'm feeling for my other sons is what's hurting me the most. How can I keep putting my 4 and 2 year old boys through this. I feel like I abandoned him this morning
It's not that I'm disregarding DS1's feelings but I spend to most time with him and doing for him I feel like I'm pushing the other 2 aside.
Upstairs at home, we've had to board up the bedroom windows because DS1 throws himself at the glass
sorry for the moanI'm just feeling a bit alone right now. Not many people see this side of me, I'm always the strong one
Lou xxx___________________________________________*leans against wall*
*sips a capri sun*
..hey______________________________0 -
not sure if ds would go to respite but it would be nice to be offered, i just completely ignore comments about my parenting skills or ask people if they can do better take ds for a day they soon shut up. I notice its not just professionals who have opinions on how to deal with situation but certain members of our family. i have grown a very thick skina and learnt quickly how to be blunt in my replies.
Lmao snap!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0
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