Aspergers/ASD support thread

fallen_angel_69

personally i have never declared on insurance about autisim but if they are taking medication it would be wise to mention it
i have a little siutcase on wheels that you can carry on as hand luggage and put pocket travel games in colouring books a favorite toy or teddy and a reading book let your son put his toys in it (check he hasn't sneeked anything he shouldn't have in) and wheel it around airport and carry on to plane should help him feel involved and important that it's his job to make sure it goes on hope this gives a little bit of help

Sarahsaver

mspig wrote: »

we are due to go on holiday in June. We have been told that my 4 year old has autism and we are currently undergoing checks to find out just where abouts on the spectrum he is.

Anyhow, was wondering do i have to declare his autism to the holiday insurance?

Also any ideas on what to take on the flight with us to help keep him still and interested in something for the flight(ITS 4.5 hours long)

Any help would be much appreciated.

My DS spent much of a 2 hr flight wedged under the seat screaming:eek:
I think earplugs could have helped because a sensitivity to noiuse is common with ASD and plane noise isnt really that nice.
I DID feel good telling the woman who was huffing and moaning at me thart my DS has a lot of problems and I am aware of them and am seeking professional help.:D

mandy.h_2

hi
ive been reading these posts for a while, finally plicked up courage to speak. I have a 14yr old son with asperger syndrome and a 16 yr old daughter. Like others we struggled alomg for years, bad parents he was spoilt, had adhd one so called expert even bluntly told him he just needed to learn to behave. all came to a head after transition to secondary school, he could not cope and attempted suicide. O boy did they listen then. We got fed up of waiting for diagnosis, we knew he was on the spectrum somewhere so paid private, best £400 pound ive ever spent. Now has support in school things are better and now at least we have a reason for his quirky behavior,

P.s has any one ever mentioned the family fund, they give grants to families with kids like ours we just been granted a famil;y holiday, new clothes for our ds and new wardrobes any one can apply if income under £27000 year

blue_monkey_2

Ooh, just a quicky, about the plane. Both my kids have ear defenders and they wore them on the flight as it is really noisy at times. here we go: http://www.abbeygardensales.co.uk/abbey-recommends/specials/showitem-PELROR@02.aspx They really do work a treat, my DD was so afraid of fireworks she used to vomit but has not been sick once since she has had them and they go everywhere that we think there might be strange noises!!

Sarahsaver

My DS even hates the sound of flour. He loves to cook but cannot bake because he can't stand the flour.

blue_monkey_2

Have you tried the ear protectors SS, you get past them looking daft Give them a try, you'll always have them for firework nights then afterwards, we even have to take them in the car if we are out driving on firework night!!

Sarahsaver

I had a very long report today from the consultant who saw DS.
He has a 'rare' discrepancy between verbal and non verbal ability such that is found in only 0.8% of children.
His Asperger syndrome quotient (likelihood of having ASD) is 99 which means it is very likely.
His profile is also in keeping with ADHD.
I feel relieved and I felt quite pleased that at last I have this confirmed in writing. i wanted to cry but I cannot but maybe thats because i should not be crying.

DebbieMids72

eve1962 wrote: »

debbiemids special schools bring out the best in our children. Class sizes are smaller meaning far les distractions. Even better fewer kids as a wole so playtimes aren't a battlefield waiting to happen. My son made a lot of friends there- some truly wierd and wonderful! The downside is kids usually attend the school several miles away, can be exhausted from the travelling, and ofcause the fact that their old friends go to different schools. I'm afraid its one of those pay-off situations, you have to lose to gain

Thanks, that's good to know

Sarahsaver

Re. the ear defenders are there any that are not so conspicuous??? DS flinched at something when he came into the kitchen this morning. he said he would like ear protectors when I asked.

Sue-UU

Hi Sarah,

Not sure, but try somewhere like B&Q, Focus do it all or Homebase and see what there's are like for comparison. You may be able to see some on their web sites.

Good luck.

Sue