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Aspergers/ASD support thread

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  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    Both sons have an allowed amount of 25 hours per week but whether they actually get it is another matter.

    I can't fault my youngest sons school apart from a few little bits but he went from having a constant one to one in year 4 to just having use of a general TA in year 5 ...well until they realised they needed to do something pretty quick that is when his behaviour and learning went down the tubes once more!

    Middle son does not get any one to one despite his statement (he used to but has not received it since being at his new school) ...something I am fighting at the present time.
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • mandy.h_2
    mandy.h_2 Posts: 90 Forumite
    thanks i will try a relaxation tape see if it works.
    proud mum of son with aspergers
  • shazrobo
    shazrobo Posts: 3,313 Forumite
    in junior school, both my sons got full time one to one, and lunchtime support.
    now they are both in special schools, where there is more staff than kids, and its brought out the best in them both,
    enjoy life, we only get one chance at it:)
  • mandy.h_2
    mandy.h_2 Posts: 90 Forumite
    my son just informed me he has a special ta cos she has a son with aspergerers so she knows all about it. he thinks the school have give her a job especially to look after him.(bless) if only however this is first time hes not complained about having a new 'minder' i wonder is this progress
    proud mum of son with aspergers
  • I think I need to try to get on a site which lists Sheffield LEA`s policy for how they calculate the hours of help needed. So far all teachers at DS school and LEA and staff at the autism centre all say he is lucky to get 15 hours as it is the most they can offer any statemented child!!

    Mandy H my sons last one to one TA had an autistic daughter and to be honest it did give her a special kind of understanding
  • Savvy_Sue
    Savvy_Sue Posts: 47,337 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    Earlier in the thread there is mention of (I think) Parent Partnership which every LEA should have, to help you make sure your child is getting what your child needs.

    And I'll say again: IPSEA. They'll have stuff on their website about preparing for a review, I'm sure ...
    Signature removed for peace of mind
  • verysillyguy06
    verysillyguy06 Posts: 37,692 Forumite
    Part of the Furniture Combo Breaker
    Can I just pick peoples brains about how much one to One their child gets at school?

    DS is statemented and LEA give him 10 measly hours a week and after a fight school gave him 5 hours too.....so he has 1 to 1 from 9 to 12 each day.

    He is really struggling apparently in the after noons with no 1 to 1.

    I did say that would happen when they said 15 hours help but of course I am only his mum and know nowt!

    DS needs a lot of help (eg he gets high rate care DLA).

    i dont understand where LEA get these decisions from on how many hours they offer? If my son needs help in the morning why on earth do they think he will be ok in the afternoon?:mad: He has autism 24 hours a day, it doesnt go away!!
    Sorry to rant but it is just annoying me.

    I have Annual Review meeting next week so was just wondering what others have got/been offered

    ta
    x

    I am a social worker in a disabled team and education is not my forty...but..so far i am aware the system like all the disabled systems recently are getting worse...the school will get money for statemented children and they can decide how much to offer the lea can decide to top it up...very strange now...i am from notrh yorks might be different with u...the pupil parents are really good though phone theme...good luck
    You have the right to remain silent.Anything you do say will be misquoted and then used against you ;)

    Knowledge will give you power, but character respect.

    Bruce Lee
  • duchy
    duchy Posts: 19,511 Forumite
    Part of the Furniture 10,000 Posts Combo Breaker Xmas Saver!
    It's all about money
    I was in the weird situation of been a LSA in a school where my son was -and he had LSA support. Bless her she was really young and hadn't a clue about ASD. It made for some difficult moments. It did however give me lots of amunition for annual review-like how many of his agreed hours weren't covered as I was actually there and could see when it happened-instead of trying to drag the info out of him when he got home :)
    Keep lots of notes throughout the year of when hours are not met and the "reasons" given-also useful is comparing annual reports from lessons where there is support v lessons without. Often there is a clear pattern and it's that kind of paper evidence that gets hours increased/adhered to-especially once they realise that you are keeping tally !!
    Sorry if that sounds cynical but I've seen both sides and I'm afraid those who ask more questions and don't shut up get the most support
    I Would Rather Climb A Mountain Than Crawl Into A Hole

    MSE Florida wedding .....no problem
  • Snaggles
    Snaggles Posts: 19,503 Forumite
    Thanks Duchy, it's always good to get an 'insiders' take on things. Ryan will be assessed for funding at the start of next term I think, so if he gets any extra help I will keep an eye on that.
    "I wasn't wrong, I just wasn't right enough."
    :smileyhea
    9780007258925
  • bowz25
    bowz25 Posts: 152 Forumite
    hi all
    i normally post on dmp support.
    I was looking for some advice or help if possible. I have always felt my son was somewhere on autistic spectrum since he was about 3 years old. He is 8 now and although i did lots of research and have always done my best for him his querks are showing more in school. The School senco gave him an assessment and feel he may be dyspraxic.
    I knew nothing about dyspraxia but lots about aspergers as i felt he had more traits of this, but reading about dyspraxia it all seems to come together now.
    My son has an appointment next week to see a community doc and they have asked me to bring as much information as possible. School have given me a brief letter to take saying they have done some tests and my son is very poor with fine motor skills drawing writing etc. He is very good at mental maths and has a reading age way above his years.
    Does anyone know what a Bpvs test is for as he scored 113 which they say is a high average?
    My son has lots of other things he does he is rigid to routine and did not speak until age 3 or walk until 16 months. He has good rote memory and his mental maths is far better then mine. (no kidding) He also is compulsive and takes interest in one topic for few months then moves onto something else. He grinds his teeth and also chews his toys when playing with them although he seems not to know he is doing this. His social skills and awareness is poor. He is very loving and funny although he does not realise what a good sense of humour he has.
    anyway sorry this is a long thread but i have not felt like posting before but now he is becoming older he is struggling in class with writing and his anger because he is seeing the other children writing neatly.
    take care all
    thanks for any replies you may have.
    bye for now.
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