Aspergers/ASD support thread

Sarahsaver

Savvy_Sue wrote: »

I would hesitate to describe anything as 'normal' in the world of autism, but if it's any comfort, my friend has got through several beds because of her child's bouncing. She found a trampoline a good investment ...

Quite!
Our children are as individual as children without ASD;)

I have completely removed one door (gave it to a baffled builder who was renovating the house next door) because it had glass panels which DS decided to punch out when he was 3. Also the kitchen door has one perspex panel (other one due to be raplaced in DIY 'man time' LOL) because of a further outburst. My windows are locked to stop ds jumping out more than to prevent burglary, i used to put towels over the doors so he could not slam them on himself or his little brother. I make sure knives, scissors, brooms etc are out of the way. He has broken a wardrobe.
You have to take precautions whatever your child is like, I have got past the point where I see it as a chore. it is just something that has to be done.

DS makes up for it by making me smile SO much when he does make me smile. he had a very good day yesterday and he drew smiley faces all over his legs. When I asked him why it was because he was 'so happy but needed more faces because he could not smile enough'

I am at the 'sitting and waiting' stage again, waiting for an eeg appointment, waiting for more results from the consultant, more results from the neuropsychologist. in the mean time I would advise anyone to at least give yourself time to think of the positive things too, It is easy to forget sometimes;)

trubster my ds went through a stage of sleeping 4 or 5 hours, and that itself was broken sleep. he may have been needing more stimulation because this is a sensory disorder of sorts, hence my ds is always singing and humming and moving. He just needs more stimulation than mr 'average' (like eating whole chillies without flinching :eek:) I have to be careful with tv with ds anyway as he sometimes doesnt separate fantasy from reality, and limit time spent watching tv and certainly no tv or computer in bedrooms ever;)

samf1971

Hello everyone, I've not been posting for ages and ages and ages and ages (you get the drift)

DS is doing ok at the moment, he has 3 things a week at the moment, speech & language, he goes to a special needs soft play and has an Autism only stay & play. We've nothing other than SALT at the moment though due to the easter hols

He's started using PECS and seems to be getting on ok, just at the stage where he's grasped that he needs to give me the card before receiving the chocolate he's doing it every time though which is really promising.

Bought him a pushchair the other week as he's far too heavy for his old one and has rocked it to it's last legs - I got a techno xlr as it should do until he's a lot heavier, but - guess what - he looks massive in it and having had it a couple of weeks I really don't think it'll do him past the summer! our social worker said that he couldn't have a major (free one) until he's 3, which is a bit of a bummer, so I might just end up having to sell this one and buy a major!

DS is a nightmare at nights at the minute, going to bed ok at 7, but then waking up nearly every hour on the hour, was up at 3.30 the other day, then up at 5 this morning, sits in his cot shouting the house down, perhaps when he's in a bed it might stop the shouting, he'll just come into our room and trampoline all over the bed! lol

Js_Other_Half

I came across this link on the nas site - it suggests way of making the environment more autism friendly.

http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=1065&a=9610

fallen_angel_69

not posted for while due to holidays the trampoline idea is great have had one for approx 3 years and dd2 still loves it doesn't seem to wear her out she just enjoys it have decided to keep it on patio this year as last year it rained that much grass just stayed muddy (sun doesn't get in back garden) make sure you get one with a net round it makes it a lot safer and you dont worry as much about them falling of .
Sleep has always been a problem for dd2 she just doesn't seem to need any i look permantley and feel n****red all the time and she is fine she takes 10mg melatonin at night but is still up at 5.30am although when i moaned at her this morning she said it wasn't 5.30 it was 5.36 as if i had to be really precise about it it makes me laugh as if i should be bothered about the extra 6mins sleep i was allowed
as for obbessions i think just let them get on with it for ages my dd2 kept telling everyone she was a princess and was going to live in a farm when she was older and on way to school she used to ask me to look after her 101 kids while she was there she even told teachers that was what i was doing then one day it just stopped now its all john barrowman (no news there) on sat were of to cadiff to do dr who musuem etc going with my parents much easier because they both autistic and want to do there own thing they get all stroppy till it's there turn so while i do dr who my mum and dad will take dd1 to do what she wants makes life so much easier( cheaper on petrol to only have to pay half ) hope everyone is not having a to stressful holiday dd2 back to school on thurs dd1 back on friday silly days to go back if you ask me

tillycondy

As my ds is getting older he is starting to "look" different with his speach mostly and his behavior. He is still only 4 but is starting to stand out and be very hard to handle. I am so scared about the future and wish I had a crystal ball to tell me he will be ok. I am sad he does not enjoy things like parties(he refuses to go)and feel guilty and selfish that I desperatly want him to fit in.As it is he is blissfully unaware that he is different. I feel gutted that what I thought would be will probably not be for us. Is it normal to feel so sad at times? He is very happy and brings me so much joy,but I cant help wishing thingd were different for us both....

shazrobo

tillycondy wrote: »

As my ds is getting older he is starting to "look" different with his speach mostly and his behavior. He is still only 4 but is starting to stand out and be very hard to handle. I am so scared about the future and wish I had a crystal ball to tell me he will be ok. I am sad he does not enjoy things like parties(he refuses to go)and feel guilty and selfish that I desperatly want him to fit in.As it is he is blissfully unaware that he is different. I feel gutted that what I thought would be will probably not be for us. Is it normal to feel so sad at times? He is very happy and brings me so much joy,but I cant help wishing thingd were different for us both....

hi tillycondy, i think it is normal to feel sad at times, my twins are nearly 13 and the feeling that they will be always different never goes away, but its the smiles, and seeing them on there good days that keeps you going.
my sons are 13 on thew 12th of this month, and they have both asked to go to the build a bear factory, and get a new bear. they are both bear mad, i know this is not normal for teenages, but whatever makes them happy.
big hugs hun, and enjoy the good times, all our kids are special
shaz xx

Snaggles

Tillycondy, have you seen the 'Holland' post? I find it quite helps me. Hang on, I'll see if I can find it and re-post it, because it's quite relevant to how you are feeling. Back in a minute.

Snaggles

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.


After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."


"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."


But there's been a change in the flight plan. They've landed in Holland and there you must stay.


The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.


So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.


It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.


But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."


And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Zara33

Great post!! Snaggles never heard the Holland story before.

Sarahsaver

Thats just how I think about my DS, he is so different to my other kids, but you could look at it that THEY are different to him. Quite often his world is a cool place to be, but the difficult bits are a huge challenge.