Aspergers/ASD support thread

autismmum

my ds2 is unaware of needing to poo, again peadiatrician said.. all part of asd.
now 11.

fallen_angel_69

my dd2 still wets herself at 10 at school or home during day is on lyneril (thinks that how you spell it will look later)she takes one tab in morning is mainly dry at night but still has accidents and she has been taking these tabs for nearly 2 yrs now

Strapped

I've been lurking and reading this thread with interest. DS(6) is being seen by the Ed Psych again this week at school. I seem to be having a different experience to some of you - I haven't been pushing for him to be seen, rather the school has. I know he's a little "different" but he behaves OK for me at home - but school don't seem able to cope with him (in their words: he's uncooperative, makes funny noises, interferes with other children, etc, etc). Currently "enjoying" the "bad parent" feeling ...

Snaggles

Hi Strapped.

I think it's quite common for children with these sorts of issues to be able to cope better in some situations than others. My ds copes quite well at school at the moment, but has become very aggressive and obsessive at home. It was a different story last year - he was really struggling at school and was much better at home. I think it was down to the teacher he had last year though. She was lovely but a completely disorganised stress-head, which Ryan just can't cope with.

You are not a bad parent - please try not to make anyone feel that you are (it's really hard, I know).

I got a bit cross with Ryan's headmaster the other day because he 'helpfully' suggested I should be reminding my son that violence isn't acceptable (:doh: why didn't I think of that?? :rolleyes:). I shouldn't have raised my voice I know, but I was so fed up of people assuming I don't care if Ryan hits other children, when in actual fact it breaks my heart and we are doing everything we possibly can to manage his aggression.

The headmaster, to his credit, was very sympathetic after my little outburst though, offered me a cup of tea and said if I ever needed to talk to anyone, his door was always open! :shocked: He does seem like he means it too.

sarah1975uk

Snaggles wrote: »

Hi Strapped.

I think it's quite common for children with these sorts of issues to be able to cope better in some situations than others. My ds copes quite well at school at the moment, but has become very aggressive and obsessive at home. It was a different story last year - he was really struggling at school and was much better at home. I think it was down to the teacher he had last year though. She was lovely but a completely disorganised stress-head, which Ryan just can't cope with.

You are not a bad parent - please try not to make anyone feel that you are (it's really hard, I know).

I got a bit cross with Ryan's headmaster the other day because he 'helpfully' suggested I should be reminding my son that violence isn't acceptable (:doh: why didn't I think of that?? :rolleyes:). I shouldn't have raised my voice I know, but I was so fed up of people assuming I don't care if Ryan hits other children, when in actual fact it breaks my heart and we are doing everything we possibly can to manage his aggression.

The headmaster, to his credit, was very sympathetic after my little outburst though, offered me a cup of tea and said if I ever needed to talk to anyone, his door was always open! :shocked: He does seem like he means it too.

Awww hope your feeling a bit better today honey xx People are all to ready to be judgemental, and obviously dont actually realise that we as paretents of aspies have thought of every single what if and why and coping stratergies, rules and consequences for us and our special children. If the head seems to be helpful and sympathetic to your worries and needs too keep that door wide open, a good relationship with head and teachers seems to make all the difference and although with my george the head is an !!!!, the teachers involved before he got excluded were actually being as helpful as they could, but obviously got to a point where the balance of helping us and actually safeguarding their own job seemed to become a major issue! Just hope that now the school george will be allocated will be a better move for us all and especially george. We shall see!

I have gotten a copy of the ed psych's advice for the statement WOW 9 a4 Pages long very intense and very detailed and omg so to the point too, i am over the moon on how good the ed psych is shes a lovely lady and so !!!!!! hot on her job Social worker also came out last week said he is dealing with another child at georges old school and they are having same probs i have encountered with george and says if things go as bad as our situation he is going to formally complain about the school aswell why he cant complain about our situation now who knows! but i have the governing body meeting wednesday regarding georges permenant exclusion and social worker is comming with me so hopefully between us both we can kick some booty with the head!

Sarahsaver

Hello again;)
My ds, aged 8, is wet in the night and daytime too. He just does not seem to realise that even when he is having to walk with his legs crossed because he so badly needs to go for a pee, that this is the reason he is feeling like he needs to cross his legs, iyswim?
Just recently he seems to have responded well to having a marble in a jar for every dry night, but having done this before I am sure the novelty will wear off.
I have wondered and wondered why DS is the way he is but more important is how we move forward.
He is having EEGs soon and also the consultant is seeing him on Wednesday duriong lunchtime :eek: after a rather urgent phonecall. I am a bit bewildered by that but at leasy ds is going to get a diagnosis and more help because of it.

tilly's_mum

Zziggi wrote: »

I would have thought that those reasons you have just listed are what qualifies you for the low rate of mobility. I think you would be extremely lucky to get the mobility increased if ASD is the only problem your child has. If he/she can physically walk 100m (irrespective of child running off/having a tantrum and refusing to walk etc) then you would have one hell of a job trying to convince them that HRM should be paid. I understand that having no sense of danger/running off etc are reasons for low rate mobility to be paid.

My DS gets HRM but this is because he has physical problems with his lower limbs. When he "only" had a diagnosis of ASD i tried to get HRM for very similar reasons and despite trying more than once, i never got anywhere despite having a lot of medical evidence backing me up. They said he could physically walk 100m without SEVERE pain/discomfort therefore HRM was not needed.

My daughter has had high rate mobility since she was 4 because she has ASD and severe learning difficulites.

Contact a Family have produced a good guide to claiming DLA and the eligibility critera -
Some children qualify for the higher rate of the mobility component because they have a severe mental impairment and exhibit behavioural problems. To be entitled to the higher rate mobility on this basis your child must:
Be entitled to receive the higher rate care DLA;
and
Suffer from “a state of arrested development or incomplete physical development of the brain which results in severe impairment of intelligence and social functioning” (Severe impairment of social functioning’ is generally accepted as meaning that the child has severe learning difficulties which mean that he/she cannot progress much further than acquiring basic life skills, for example, feeding, dressing, washing and using the toilet.); and,
“Exhibit disruptive behaviour” which “is extreme” (disruptive behaviour can include aggression and hyperactivity) ;
and
“Regularly require another person to intervene and physically restrain him/her to prevent him/her causing physical injury to themselves or another, or damage to property”;
and
Be so unpredictable that he/she requires another person to be present and watching over him/her whenever he/she is awake.

“Physical restraint” need not involve any force. If all that is needed to prevent your child causing injury or damage is some physical contact, such as a hand on the arm that is enough to fulfil the test

Chollita

Hi all, remember me?

Off to the shrink tomorrow for my second appointment - I don't think the meds have made a whole lot of difference, so I'm hoping he might take the possibility of Aspergers a little more seriously ... suppose I should push to see a specialist, trouble is I'm not very pushy.

Am hoping to visit the UK soon, so it will be interesting to see if my mother remembers noticing any of the traits that you see in your children ...

Sarahsaver

it is so fascinating and I suppose annoying that for every child here we have gotten a completely dirrefent approach from the 'professionals'.
The consultant did more tests with Ds yesterday, then afterwards asked me if anyone had checked his balance, does he have adhd medication and have i noticed he doesnt make eye contact?
1, yes
2, no - he looks like he doesnt pay attention but DS does listen without looking like he is! but the consultant didnt say why he asked, maybe meds would have skewed the tests???
3, oh yes definitely he doesnt like to look into anyone's eyes but he is ok with animals.

sarah1975uk

just a quickie to let you know i received the proposed statement for george today. spoke to them too and said that the they are indicating for him to go into a dsp. Not much choice here locally and now frantic as to what school is best. got a huge list of schools given as well as the proposed statement and given up to 15 days to reply to what school he is to go to.