Aspergers/ASD support thread

autismmum

the course is in its infancy, basically all the mental health team decided to make a course six weeks on a monday morning for parens and children and siblings, each week we the parents leant about the condition inside and out and had 2 hours with a psychologist each week solely tal;king about our kids and the problems we are hgaving, we supported aech other and the group was 6 parents, the asd kids were in a group playing games and learning about how to help others understand them and the siblings had a chance to talk about their feelings then the asd and siblings got together and played for an hour which was all about reinforcing a bond, and we learnt so much, i am so gratefull and it helped me make a real change. i am happy to photocopy the booklet and send it to anyone because the lessons i learnt have made the family so much better, i am happy to send anyone a photocopy if they send an envelope and please lets try to get every pct to do this, showe it to proffesionals and lets demand better group and psychology session for our kids, my own youngest asked to be taught how to not wind people up as he coul;dnt understand why every one gets cross made me cry when i realised he wanted to do better.

boredofbeingathome

autismmum wrote: »

the course is in its infancy, basically all the mental health team decided to make a course six weeks on a monday morning for parens and children and siblings, each week we the parents leant about the condition inside and out and had 2 hours with a psychologist each week solely tal;king about our kids and the problems we are hgaving, we supported aech other and the group was 6 parents, the asd kids were in a group playing games and learning about how to help others understand them and the siblings had a chance to talk about their feelings then the asd and siblings got together and played for an hour which was all about reinforcing a bond, and we learnt so much, i am so gratefull and it helped me make a real change. i am happy to photocopy the booklet and send it to anyone because the lessons i learnt have made the family so much better, i am happy to send anyone a photocopy if they send an envelope and please lets try to get every pct to do this, showe it to proffesionals and lets demand better group and psychology session for our kids, my own youngest asked to be taught how to not wind people up as he coul;dnt understand why every one gets cross made me cry when i realised he wanted to do better.

My goodness, it does make you want to cry- i have just posted on another thread about wanting to give up on supply teaching(mainstream) because of the behaviour of children in the classes who have no excuse other than wanting to wind up- and then i read this, the words ....if only! I think group psychology sessions are a wonderful idea and i think everyone could benefit from them. We need more people like you and others who are willing to put themselves out there and fight for the right to be understood.

LilySue

Autismmum that course sounds great...my brain is a bit foggy this morning, didn't understand if it is something that is nationally available or not?

autismmum

no, not yet but our pct thinks that others might start it too if shown a demand.

Snaggles

I just wondered if I could ask a couple of questions about things I have come across on Google (I know, I know ).

Firstly - I have read that there have been some suggestions of a link between Pitocin and autism. I was induced with Ryan and had Pitocin, so I wondered if anyone else had read anything else about this, and whether anyone else was induced using Pitocin.

Also, I have been reading about using vitamin B6 and magnesium supplements for people with autism, and wondered if anyone here was using, or has used these or any other supplements, with any level of success.

I hope it doesn't sound as though I'm coming up with all sorts of wild theories, it's just that I'm reading a lot about autism at the moment (naturally), and certain things jump out at me more than others I suppose because they sound more relevant to my/Ryan's circumstances.

Also - anyone with any experience of enuresis in autistic children, particularly night time enuresis (bedwetting)? We have been told to investigate using an enuresis alarm, to 'teach' Ryan's brain to recognise the sensation of needing the toilet. Has anyone used one?

shazrobo

hi snaggles i was induced with my twins, sorry cant remember name of drug.
my sons are 12 now and have been dry for the past year,
shaz xx

Snaggles

Thanks Shaz.

So I could have a way to go with Ryan then (he's 7) but I'm glad there's still hope. I think to be honest it could be a good while before he is dry at night, as he still struggles to recognise the signs of needing to go even when he is wide awake.

Zziggi

sarah1975uk wrote: »

How do i get them to look at the claim again to amend award of the Mobility to higher rate? as my son is the same throws himself on the floor and have to keep hold of him and the fact he runs off and has no sense of danger.

I would have thought that those reasons you have just listed are what qualifies you for the low rate of mobility. I think you would be extremely lucky to get the mobility increased if ASD is the only problem your child has. If he/she can physically walk 100m (irrespective of child running off/having a tantrum and refusing to walk etc) then you would have one hell of a job trying to convince them that HRM should be paid. I understand that having no sense of danger/running off etc are reasons for low rate mobility to be paid.

My DS gets HRM but this is because he has physical problems with his lower limbs. When he "only" had a diagnosis of ASD i tried to get HRM for very similar reasons and despite trying more than once, i never got anywhere despite having a lot of medical evidence backing me up. They said he could physically walk 100m without SEVERE pain/discomfort therefore HRM was not needed.

Zziggi

Snaggles wrote: »

Also - anyone with any experience of enuresis in autistic children, particularly night time enuresis (bedwetting)? We have been told to investigate using an enuresis alarm, to 'teach' Ryan's brain to recognise the sensation of needing the toilet. Has anyone used one?

Yes my DS is still not try at night. Never - not even one night. Even during the day he needs constantly remining to go to the loo and when he is at school I always send spare clothes everyday. I tell him every morning to go to the loo every break and lunchtime and his teacher reminds him too.

After speaking to his consultant & GP about this, they have both said this is totally normal and what they would expect of a child with ASD!

Snaggles

Ryan was really easy to potty train, although the potty always had to be close to hand, as he couldn't (and still can't) 'hold it' for even a few minutes. He was dry at night at first, oddly - for maybe a few months, although not 100% reliably. In fact various nurses have asked over and over if something triggered the bedwetting, like a major upset. But there wasn't anything at all that I can think of. I think it was just coincidence