Aspergers/ASD support thread

peachespeaches

Thanks again for your comments on how your parents react to your own kids Asperger's. I emailed my dad an NAS factsheet and asked them both to read it. My dad has definitely softened a bit - "she can't help it ... etc" but all my mum is concerned is "where has she got that from. Not from our side of the family !!!". Fortunately I stopped listening to her a long time ago. She has always been harshly critical. Perhaps I should tell her it her fault

Snaggles

What's happened to the start of this thread? My original post and the glossary of abbreviations seems to have disappeared! Have they been eaten by the big green post-eating cyberspace monster? :rotfl:

AnnieH

I am very distressed about something that happened on friday but don't know what to do about it.

My DD plays rugby after schoo on a friday, which she loves. She's very sporty. She was mucking about (surprise.:rolleyes:) and a parent apparently called her an annoying little cow! :eek:

I can understand kids caling each other names - as upsetting as it is, kids will be kids, but i think thi is totally unacceptable from a grown-up. My Dd wasn't interferig with this adult, who was just watching the kids playing rugby. What can I d about it?

shazrobo

blue_monkey wrote: »

Sarah,

Give that childrens legal advice line a call from a few pages back - see what they have to say. Looks lik it will be free but at least they might have more weight. I would have thought that if you can get sent to prison for not sending your child to school then THEY are the ones exclusing him so THEY have the legal obligation to find him somewhere to be taught. Give them a call, you won't know unless you ask.

I have to confess that today I took Ryan to a party DD has been invited to and it was a huge mistake. I kept on asing him to behnave he was under the tables and chairs, the other mums were asking him to get out, he was running around while the other kids were watching the entertainer - so I gave him 3 warnings before I dragged him out (yes, he refused to walk with all the other mums watching as well) and took him home to hubby (who had just got in the bath, LOL!!). One of the mum who knows about Ryan said to me that I should hav not taken him home but I said there was nothing more I could really do. not many people know what he has and to everyone else he just looks like an uncontrolable brat. Today was the first time I felt so embarrassd that he would not do anything I told him and he was doing all his facial movements, noises and pointing and he bit himself really hard and hurt himself (which is a fair) I guess it is only when they are in a confined area with a lot of other children you can see how they act and Ryan is nothing like them at all and does 'odd' things. Made me feel a bit about things. I thought that today I could have done with 'the badge' or something so i did not feel I should have to explain to people about him running around but then you get to thinking 'am I using this as an excuse for not making him behave?'. And that is what i wonder sometimes, am I making excuses for him, should people have to put up with him being disruptive and disobediant. It is not like I left him to it I had to keep on getting up to get him and bringing him back to me but he refused to stay. So what would everyone else have done out of interest. I feel like I am doing everything wrong these days as far as Ryan is concerned.

hi bm, big hugs, i would have done exactly the same as you, and i have twins, tell them to behave , give them time outs etc, and if that failed, took them home, which looking back seems unfair taking both home, if only one was doing the playing up at that particular time, but as a single parent i had no choice.
you did the best you could, your not making excuses for him, he has a condition that causes him to behave that way. you are doing a fantasatic job as a mum, as we all are on this thread.
big hugs
shaz x

samf1971

Hi wonder if anyone can help , we are considering moving to Scotland next year , currently we live in Leeds where the services here are pretty good . Our son is 2 years and 4 months old and we are currently waiting for the team assessment on him to confirm he is autistic . We lived a couple of years ago in Fife ( Kirkcaldy ) and possibly might consider moving back again , depending on what services are offered . Can anyone who has an autistic child and who is currently living in Scotland give us some indications on how good services are or can recommend an area ?
Many thanks

Savvy_Sue

Snaggles wrote: »

What's happened to the start of this thread? My original post and the glossary of abbreviations seems to have disappeared! Have they been eaten by the big green post-eating cyberspace monster? :rotfl:

You're right! (Not that I really doubted you.)

Email [Removed by Forum Team] and ask them! You'll need to copy the 'address' for it into your email.

Out of interest, do you think it's just that first post which has gone or is it more than that? I can't remember.

Sarahsaver

Hi everyone, just a brief update. My DS is being referred for an EEG because his IQ results were so 'interesting' :rolleyes:

penguin83

Warning Rant ahead!

Son was dx as Autistic 4 months ago and we recently submitted a claim for DLA on the advice of our paed (didnt even know it existed!) Anyway they wrote to our GP for a report which is fine and expected. Got home from work today to a message on our ansa machine asking me to ring surgery. To cut a long story short our GP had NO IDEA that our son had been dx or that there had been any problems.

I am completely new to all this so for all I know this could be normal but I cant believe that the Health Visitor (who first recognised the signs and referred us), the consultant paed, the speech therapist, the audiologist, the physio or even the LEA have never once notified the GP of the treatment our son is receiving. I had to today photocopy 7 different reports and take copies of all the appt letters down to the surgery. Our GP couldnt believe he had been left out of the loop neither.

Anyway rant over - we are filling the Gp in on where our son is at and he apologised on everyone elses behalf. Is this normal for a gp to not be notified?

Rant over sorry its long! x x

AnnieH

That's shocking! Normally every letter you receive from your appointments is cpied to your GP - i can't believe he had no idea!

Carrera74

All the reports that have been done for my son have been addressed to our Dr. and I'm copied in along with everyone else ie. school, SALT etc.