Prepping for Brexit thread

Blue_Doggy

DryTheRain wrote: »

Many thanks Blue Doggy, I chipped a few bits off the bar last night and the thermals swooshed through a treat, no bobbling at all :beer:

I know these things are probably second nature to a lot of people, but if you didn't grow up in an environment where knowledge was passed on it can be hard to know what information to trust - so thank you again.

DryTheRain, I’m happy to have helped.

The beauty of a friendly forum like this is that we can all pool our pieces of knowledge, and we all benefit. It’s like each having a couple of pieces of the puzzle and together we make the picture.

I hope all went well with your blood test.

Jojo_the_Tightfisted

I can't get my meds. I have none left.

More worryingly, I can't order any epipens, emercades or jexts as spares/emergency ones for the kids at work - and the majority haven't been able to get replacements despite their own ones expiring. There are 35 children in the one school who I could watch under literally under my hands if an ambulance can't get to them in time or I can't keep going with CPR for long enough.

I am not the only person in that position - there are people throughout the UK who are anxiously checking the dates on their kids' autoinjectors right now (and adults, let's not forget) and phoning around pharmacies to see whether there are any available. The using past the expiry date only applied to a few specific batches and they have all gone past that new expiry date anyhow.


I'm not thinking anywhere near as much about food (the big bags of pulses in the cupboards help with that) as I am about medication right now. Because without mine, I'm screwed - and for an entire class worth of children I am directly responsible for, without theirs, they are dead.


And on that happy note, I'm off to bed to plan tomorrow's shopping trip, where I shall try to get some of the things that Himself still doesn't see need to be stored in advance of any disruptions and has therefore been using and not replacing - he's at work, I shall be prepping - I could be on sick leave by November, as I relapse almost instantly, I feel awful at least five days before the next dose as it is. And we'll still need to eat, even if I'm not earning.

unrecordings

Wish I could help - this epipen thing has been going on for a few years now hasn't it..?

(As a manufacturing /patent problem rather than specifically brexit related ?)

grunnie

I need an epipen and keep 3 at all times. They have a use by date but even if that date is passed as long as the liquid in the little see through bit in the side has not turned dark brown then they are still ok to use.

Jojo_the_Tightfisted

They're not. It's illegal to use out of date medication upon somebody - I would be open to prosecution and my employer to legal action from both family and the HSE if I did it.


And would you really want somebody in charge of your child (or yourself) thinking 'well, it'll probably work anyway' and not replacing the work ones on the day you forgot yours - or were unable to fill your prescription for replacement due to shortages/supply issues?

pollyanna_26

Jojo re your meds have you tried speaking to your pharmacy manager? If it's the sort of medication that can't be stopped suddenly or is life saving they may be able to help.


My youngest daughter has a number of diagnoses . Among her meds are an immune suppressant, zomorph and oramorph - she can't function without overwhelming pain without the last two.


She also has mental health medication, one for Fibro and usually has at least 15 items on prescription. Two months ago the chief pharmasist asked me if I wished her to be transferred to the instore care home section shortly before the proposed leave date.


We went in for 19 meds yesterday. Many were short or unavailable. Dr built in a buffer a few years ago so I'll be able to collect the missing meds in a few days time.
She is now on the Care home list , she isn't in a care home but they use the option during supply issues. Might be worth asking if there is a similar option for you.


Hope those worried about possible medication manage to sort something.


The care home option was used a few years ago when certain meds were hard to obtain. I was so worried I made a complaint at the pharmacy and they called the Care Home drugs manager who it transpired is upstairs in our regular Boots store. All was sorted and the meds dispensed.
polly

Jojo_the_Tightfisted

For mine, they come direct from the manufacturer via a private contractor employed by my NHS Trust.

Fortunately, as they didn't answer the phone today (too busy, I suspect), I do have a hospital appointment this Tuesday. I'll tell them then.

[Deleted User]

Sensible though it is to buy in stocks of things that may be necessary and having the meds to stay well and equipment that makes life more comfortable in adverse times what we all really need is the belief that we will get through what comes and make the other side as sound as possible in all areas and then make good what we find in life when the shouting is over. What we may find is that the life of ease and plenty isn't quite so readily available as it has been and people will be very discontented with a less comfortable life with less choices than we're used to. We may all of us have to readjust our expectations and accept that things will be starker and less materially comfortable for the foreseeable future.

Mee

I note there is guidance available care of BSACI:

https://www.bsaci.org/announcements/supply-of-epipen

SEPTEMBER 2019
Availability of EpiPen® 0.3mg and 0.15mg Adrenaline Auto-Injectors


Mylan’s manufacturing partner Meridian Medical Technologies, a subsidiary of Pfizer that manufactures EpiPen®, has experienced manufacturing challenges which has resulted in interruptions in the production of EpiPen 0.3mg and EpiPen Jr 0.15mg Adrenaline Auto-Injectors (AAIs).
To help manage product availability on an ongoing basis until a steady supply resumes, Mylan assigned a prescription validation process for EpiPen 0.3mg, meaning patients can obtain up to a maximum of two EpiPen 0.3mg AAIs per prescription.
The prescription validation process has now been extended to include EpiPen Jr 0.15mg.
Patients should follow the Instructions for Patients detailed below to fulfil their prescriptions and pharmacies should follow the Instructions for Pharmacists outlined below when placing orders
.

Instructions and Information for Patients
Patients requiring EpiPen 0.3mg or EpiPen Jr 0.15mg devices should present their prescription to a pharmacy where an order will be placed for up to a maximum of two EpiPen 0.3mg or two EpiPen Jr 0.15mg AAIs per prescription.
Mylan is unable to make any specific treatment recommendation to individual patients. Patients should speak to their healthcare provider for appropriate action to be taken. However, if you have a question about your EpiPen device please contact our Medical Information team who will be able to help you:
+(0) 1707 853 000 or email: info@mylan.co.uk.

Information for Prescribers
Please note, when validating the expiry date of an adrenaline auto-injector, the product expires on the last day of the month indicated. For example, if it expires in September, it remains valid (not expired) until 30 September.

Instructions for Pharmacists
Pharmacies that are presented with a prescription for EpiPen 0.3mg or EpiPen Jr 0.15mg Adrenaline Auto-Injectors can place an order for up to a maximum of two devices per prescription. Please send anonymized prescriptions to Alliance Healthcare’s prescription validation service, either by fax (0330 332 8126) or email (scriptvalidation@alliance-healthcare.co.uk). Please include your Alliance Healthcare account number when placing your order.
Orders from schools should be sent to Alliance Healthcare’s prescription validation service on the fax number or email address above. Please note that the purchase of EpiPen 0.3mg and EpiPen Jr 0.15mg is currently limited to two devices per order.

Instructions for Schools
To support children and young adults who may be at risk of anaphylaxis whilst away from home, the Human Medicines (Amendment) Regulations 2017 allows schools, without the need for a
prescription, to purchase and hold supply of adrenaline auto-injectors. Regulations allow the purchase of a reasonable number of adrenaline auto-injectors for use on an occasional basis and as required.

Schools requiring a supply of adrenaline auto-injectors to be used in emergency situations are now able to order EpiPen 0.3mg and EpiPen Jr 0.15mg through Mylan’s distributor, Alliance Healthcare.

To place your order, please provide your local pharmacy with a letter, written on your school’s headed paper and signed by the principal or headteacher. The pharmacy will then send the request to Mylan’s distribution partner, Alliance Healthcare.

Please be reminded that the purchase of EpiPen 0.3mg and EpiPen Jr 0.15mg is currently limited to two devices per order.

Contact Information
Telephone: +44 (0)1707 853 000
Medical Information e-mail: info@mylan.co.uk

Jojo_the_Tightfisted

MrsLurcherwalker wrote: »

Sensible though it is to buy in stocks of things that may be necessary and having the meds to stay well and equipment that makes life more comfortable in adverse times what we all really need is the belief that we will get through what comes and make the other side as sound as possible in all areas and then make good what we find in life when the shouting is over. What we may find is that the life of ease and plenty isn't quite so readily available as it has been and people will be very discontented with a less comfortable life with less choices than we're used to. We may all of us have to readjust our expectations and accept that things will be starker and less materially comfortable for the foreseeable future.

If I don't get my meds, whether because of common or garden supply issues, the absence of importation, trade and licensing regulations, because they've given up on the protections that make my medication barely affordable on the NHS in exchange for some chicken deal or because the fundamental free at the point of delivery has gone in favour of a private insurance scheme that I could never get covered on, I am quite likely to be rather irretrievably deceased at the same age as my father died of complications associated with the same condition. Which gives me approximately 5 years.


I do know how to order the school ones. The trouble is when the supplier says 'we're out of stock'.