Weekly Flylady Thread 17th September 2007

vanilla

lil_me wrote: »

They can usually get a free place from 2 years old here if they have a disability which is recognised early enough (my son wasn't diagnosed with Autism until he was nearly 6) Just shows what a postcode lottery it is.

It is a nightmare here, i have 2 disabiled here and only got offered help there 2 weeks ago, they offered that someone could come in and give me a hand making tea. that's it. When i was told that DD had cerebral palsy the doctor just said '' oh and your daughter has cerebral palsy'' and that was it someone will be in touch. I had to go home and look on the internet for information.:mad:

lil_me

:hello: See you on Monday Nicki, hope you have a good time

Oh joys looks like it's neighbours kids christening this weekend which will mean he'll be drunk, oh I wonder what fun this weekend will bring :rolleyes:

Diagnosis is pretty much the same here vanilla, hence I ended up involved with the support groups, putting something back in after they were my main source of help and info at first, all volunteer ran of course. I have several friends with children with cerebal palsy and they are the same, offered little or no support, my sons favourite little girl has CP, 'My Rebecca' he calls her, he absolutely adores her. http://www.cafamily.org.uk/nireland/index.html this website was one of the most helpful to me when my son was first diagnosed as it had info on how to contact support groups etc on there.

**Forgot to say tea is ready and 'generous' slices of carrot cake ***

vanilla

Tiamai some people are D***heads, Nicki have a good weekend.
Oh cuppa i love me tea, went to a weight thing last week with my sister and the woman was talking about tea and how some people would drink 4 cups a day and that some drink as much as 14, she called it extreme. My sister just looked at me and said '' wait till she hears how many you drink'':rotfl: .

Lil_me it is awful but i must admit the school is great all the children look after her. Help her in the playground and they all know to tap her on the shoulder to get her attention because of her hearing, just hope high school is as good.

Yummy

pigpen

I once counted how many cups of tea I drank in one day.. I forgot I was counting at 49!!!!!!!!! lol

tiamai_d

vanilla, DS2 has Hemiplegic CP, and it considered 'mild'. He was diagnosed as havin 'some degree of brain damage' at 8months and we were told he may never walk. Well, he is. he is doing great. But every time we see his consultant its his 'Hemiparesis' as if they are scared of the word. I found out on my own that Hemiparesis is hemiplegia. I feel as if they are always belittling his condition. your stuck in limbo. You don't get offered the help that is out there, he is just that little different from kids the same age, yet you don't quite fit in with the 'moderately disabled'.

My main problem is him sleeping. he sleeps fine for a few weeks, then suddenly he is up and down at nights, stiff, sore, crying etc. They never have an explanation beyond, 'oh you don't do anything to encourage it do you?'. No I don't, he doesn't even like me to cuddle him as he wants to sleep.

Then you fight to get DLA, you have to give up work and you try to get CA, then you find out that there is still more out there, but they don't feel you do enough to get it.

Wonderful.

Post Code Lottery? oh yes, I have seen it with disability and plain information too. Just makes me so angry!

whew.. rant over.

lil_me

:eek: Caffeine junkies. I drink maybe 3 coffees a day max, sometimes just one on a morning, rare tea on occasions when I fancy it or have carrot cake, just doesn't go with coffee! I call my Mam and sister teapots because they're always full of tea. I don't have the time usually for that many.

tiamai_d

4 coffees max (or I start to shake and the hubby gets nervous), and a couple fruit teas at night.

Though, my coffees are black, no sugar, mugs and a good heaped teaspoon and a half... :rolleyes:

Like now *sip-sip*

tinselfairy

Just had a cuppa, only 3rd of the day so way behind pigpen! :rotfl:

All rooms done to acceptable level of tidiness this morning and list caught up with.

Also managed to
pack away some summer clothes
update finances
get out all bits bought for Christmas for various family and friends, make sure they are listed and then packed away properly
take clothing to recycling bank
put one load in WM
a quick shop for food for this evening
and 2 Christmas pressie stocking fillers bought
went to Superdrug to buy baby wipes and they have sold out, have lots of flyladies beat me to it???

The ebay challenge fell by the wayside for me this week.
I downloaded turbo lister and have found lots to list and then it stopped so will try and sort that at the weekend.
Also need to meal plan for next week.

Enjoy your me time everyone.

vanilla

Tiamai i know what you mean, my DD has !!!!!! cerebral palsy (found out through internet, not by doctor) and she see's speach and physio and used to have ot as well. She also has 2 hearing aids, astma, reflux. We put in for a disability grant a few years ago and they said '' no she's not disabled enough'' what is that all about, if she's not disabled enough why does she see all these people for. We have tried the grant again and should know next wednesday the result, for there sake it etter be yes or i'm gonna sit in there office all day every day and reapply. Oh it makes my blood boil and the whole thing is if i phoned and canelled an appointment they would go mental and talk about neglect.:mad:


Pigpen i'm the same a tea addict, if i run out of something in the house i'd leave it until the next morning but if i run out of milk, sugar or tea bags i'll even go to the 24 hour.:rotfl:

tiamai_d

Vanilla have you had a family fund grant yet?

The woman who came out to see us was so nice! She gave me a lot of tips too, like asking my HV for free nappies (supposed to be when they turn 3, but they are usually quite good at giving them early). DS2 has '!!!!!! hemiplegia cerebral palsy', I have to admit that before all this, I had no idea what it was beyond a vague idea of kids in wheelchairs. Fast learning curve.

Then you get the 'oh they will be fine by the time they are 3' then '5', then finally you get one who says 'oh no, the spasticity will get more pronounced as they age, bigger muscles, bigger problems'. You start to wonder if anything they say can be trusted. I know they don't want to be sued later on, but come on! We can handle the truth, honestly!

I have not touched the kids room and now I have no plans on doing it. Kids are watching the simpsons movie with popcorn, they are both shattered!

oh yeah, and I found this and its fun!

I am 18.7 years old and i will live till I am 81.3! Woohoo! I had lots of fun when I was 18!