OS ways and Poor Health

LameWolf

Caronc all the very best for your PIP assessment; it's not the pleasantest thing on this earth, but needs must, eh? I got standard rate care and enhanced rate mobility with mine. I'll be thinking of you on Saturday.

Pollyanna I too would be completely scuppered without email, as it's my main form of communication (telephone phobic). Mr LW and I had no choice but to change our email addresses last year as O2 ceased their email service. So rather than go with the company that provides our internet, we chose an independent one - mail dot com - (put a . instead of dot of course) and found to our delight that we could have a choice of domain names (the bit that comes after @ and before dot com) so we chose apposite ones for us.

I have just used up some rather sad looking bananas to make a banana cake, so that'll be our dessert for the next few days.:o

caronc

Thanks LW and pollyanna - yes it's ATOS. I'm not concerned about the asssessment it will be what it is just a drag to go to Glasgow as I don't travel well these days. As I said they are also our occupational health provider and I've had a fair few sessions with them over the last couple of years - with the exception of one who tried rather stridently to convince me my vertigo and falling over was most likely the menopause:eek: that made my ENT specialist smile when I told him:D they have all been nice though not terribly clued up on vestibular disorders

westcoastscot

Hi guys <waving gently>, having a crap day today, have overdone it (again) but will read back aways and post again later or tomorrow :-)

pollyanna_26

Really good to see you back here WCS . Sorry you've had a bad day I hope you manage to get some sleep tonight . See you when you feel up to it and take care of yourself x
I've been an idiot as I was telling Caronc earlier on her thread , had sensible homemade proper porridge to start the day and later on while sorting through lots of online stuff which needed doing following the couple of no landline months mindlessly began hoovering my way through a large box of after eights . Never ate them all but oh do I feel sick .Need a good smack on the wrist , the sugar rush is awful and oddly I feel hungry but couldn't face a single crumb .
polly

pollyanna_26

Caronc you've gotta love the professionals who dispute medical fact . My dd was told she was too young in her 20s to have Psoratic Arthritis ditto years earlier Fibro and other conditions . In my teens I was told I had a touch of rheumatism which I'd grow out of and maybe a bit of fibrositis , mum also was told the same as myself when she was in her twenties and advised to take 2 phensic when she didn't feel well . Thank the gods for advanced knowledge and research . We have a genetic link back to my mum , I don't remember my nanna as I was very young when she died . Many still the age thing when in reality there isn't a case for doing so . Don't start me on those who decide they can diagnose something entirely different , we don't even go near them anymore and any in the past have been once only and discarded , life's too short .
polly

caronc

westcoastscot wrote: »

Hi guys <waving gently>, having a crap day today, have overdone it (again) but will read back aways and post again later or tomorrow :-)

Hi -Hope you get a rest and feel more like it soon

pollyanna_26 wrote: »

Caronc you've gotta love the professionals who dispute medical fact . My dd was told she was too young in her 20s to have Psoratic Arthritis ditto years earlier Fibro and other conditions . In my teens I was told I had a touch of rheumatism which I'd grow out of and maybe a bit of fibrositis , mum also was told the same as myself when she was in her twenties and advised to take 2 phensic when she didn't feel well . Thank the gods for advanced knowledge and research . We have a genetic link back to my mum , I don't remember my nanna as I was very young when she died . Many still the age thing when in reality there isn't a case for doing so . Don't start me on those who decide they can diagnose something entirely different , we don't even go near them anymore and any in the past have been once only and discarded , life's too short .
polly

My GP and ENT folk have been absolutely brilliant but if one more person tells me "ah but I get dizzy sometimes too have you tried XYZ" or " ah I get dizzy but I just get on with it" I will find myself in the papers and not in a good way:eek: I've also had "you can't have Meniere's" (temporary practice nurse) you've not lost your hearing":mad: - no not yet I'm very,very fortunate that despite fluctuating my hearing so far has recovered to normal ranges following attacks permanent loss of hearing doesn't always hit everyone and for most it takes years and years.
Rant over LOL :cool:

pollyanna_26

LW I've just gone back to read your post about the meds situation . DD is on 4 10mg zomorph split over 2 daily doses . Luckily she is able to swallow capsules , her only issue was the the fact that as a vegetarian she had an ethical dilemma , she had to come to terms with the capsules as the alternative did not bode well . I confess I can't work out if there are a tablet version of 10mg so would welcome clarity if that is what you mean . Would pregabalin be an effective alternative to Gabapentin for your condition ? Yet again I can't recall if you've mentioned it in the past . I wish it was possible to be given new memory cells , it drives me loopy trying to remember things correctly .
DD is very much with you on phone calls , she decided to try contacting appointments at the local hospital following our doctor giving her a form to make an appt for a full assessment on her shoulders which have been causing her great pain for months . all attempts last year by myself to get some action from the Rheumo team failed with the conclusion without seeing her that it was the fibro . Our doctor has had xrays done locally . Right shoulder had some calcification Left shoulder is extensivly damaged .
Steroid injection into the right brought some relief eventually . Injection into the other had no effect and she is unable to move or use that arm .
Anyway plan was to have the situation assessed , attempting to trigger the appt brought forth a reply which was as clear as mud to both of us . She's now back to not trying to rid herself of the phone fear . I rang myself on Friday and was asked what the letter from the hospital said and I explained we hadn't had a letter . Reply was oh you need to set up a virtual appt then . Department didn't clarify what such a thing was despite my asking so yet another phone call to make back to the surgery tomorrow . Dr should be getting all the funding as he's doing everything bar have control of the Methotrexate dosage . Her original consultant appt has so far been shifted 3 times which makes it at present 11 months from the last rather than the 6 months booked at the last one .
We're all living in La La Land minus the singing and dancing folks . Lord save the NHS .
polly

pollyanna_26

Caronc I have wondered a great deal recently just how many of us are silently seething beneath the polite and calm surface we display to some health professionals and also the random people who think only they can fix us . If the power of such simmering frustration could be usefully harnessed we could probably provide gas and electricity free to the uk .
Anyway I'm off to watch Call the Midwife , sleep well see you tomorrow x
polly

mardatha

I forgot about this thread, so many familiar faces on it too I'm floored again, back on the couch after trying 2 days of gardening - missed the whole of last year, never did a thing in my garden. First time in over 30 years in this house!! I'll go back and read the whole thread. Somebody put the kettle on..

caronc

pollyanna_26 wrote: »

Caronc I have wondered a great deal recently just how many of us are silently seething beneath the polite and calm surface we display to some health professionals and also the random people who think only they can fix us . If the power of such simmering frustration could be usefully harnessed we could probably provide gas and electricity free to the uk .
Anyway I'm off to watch Call the Midwife , sleep well see you tomorrow x
polly

Silently seething - yep I seem to spend so much time with the smile plastered on while really wanting to let rip.......

mardatha wrote: »

I forgot about this thread, so many familiar faces on it too I'm floored again, back on the couch after trying 2 days of gardening - missed the whole of last year, never did a thing in my garden. First time in over 30 years in this house!! I'll go back and read the whole thread. Somebody put the kettle on..

Hi mardatha- kettle's just boiled tea or coffee?:)