OS ways and Poor Health

candygirl

pollyanna_26 wrote: »

Let us know how you are candy , hopefully you're sleeping .
polly x

Saw a nurse practioner, who shouted at me, n refused to change my meds, even though I've researched it, n it would've been fine to do.She's given me a week of sleeping tabs, n told me to go back on Tues

pollyanna_26

That's awful Candy . Sleeping tablets may help you sleep but will do nothing for how you're feeling . What's your GP like? any use trying to get hold of them . It really makes me angry how hard it can be to get to see some doctors . When you're feeling so low the last thing you need is to have to fight to get some proper help .
Are you up to date on the injections? you don't want your levels dropping again .
Have you had any help at all with the PTSD? that's a tough one to deal with without some support and therapy . If I ruled the world things would be different .
polly x

candygirl

pollyanna_26 wrote: »

That's awful Candy . Sleeping tablets may help you sleep but will do nothing for how you're feeling . What's your GP like? any use trying to get hold of them . It really makes me angry how hard it can be to get to see some doctors . When you're feeling so low the last thing you need is to have to fight to get some proper help .
Are you up to date on the injections? you don't want your levels dropping again .
Have you had any help at all with the PTSD? that's a tough one to deal with without some support and therapy . If I ruled the world things would be different .
polly x

My usual Dr has left, but I'm seeing a new one on Thurs .I've had CBT after the attack, but thing I need more counselling now .This woman was so abrupt n brusque today :mad:

pollyanna_26

What's the role of your nurse practioner Candy? We have one in the practice who can deal with diabetes , check ups and bloods . She isn't allowed to change prescribed meds but as far as I know can't prescribe anything else either . Dd has only seen her a couple of times for bloods when her regular nurse is away . The practice only has two doctor's and they run a very tight ship .


Tink mentioned earlier she didn't know what day it is . It seems I'm the same . Friday's are usually Dr day but he's been seeing dd on Tuesday for the last few weeks due to other commitments . When I asked about trying to see your doctor in my head it was Tuesday!


I've no idea what day your dr is in surgery . Here they hold 2 emergency appts each morning . I know you're booked in Thursday but depending on the system and reception staff - it took a few years of training to sort ours out - is it worth ringing early Monday?


Are you used to the sleeping tablets? If they'll get you some sleep it's better than nothing . I hope this other Dr is good and will listen to you . I watched dd in total meltdown often enough to know you need more help than sleeping pills to find a way through the fallout of the past . Oddly enough she's having cbt but the counsellor has introduced other therapy with the Drs knowledge but under the radar and the changes are unbelievable .


I'll be thinking of you and hope you can manage some rest . Check in when you can so we know you're managing .
Gentle hugs and magic sleep dust .
polly x

Onebrokelady

Baileys_Babe wrote: »

OBL like you my BIL works for the NHS and is chronically ill. Occupational health have made adjustment to trigger dates etc, to prevent the situation you find yourself in. I can't remember when he was last off work with a flare up, his sick leave is all due to things like colds, which knock him for six and have a long recovery time.

Occy health have altered my triggers too for the Fibro,but like you say it's the odd illnesses such as colds etc that cause added problems,I appreiciate that they need people to be at work but compared to some people who I work with who don't have a chronic illness I think I'm quite good at trying to be at work

Onebrokelady

pollyanna_26 wrote: »

Hi OBL You seem to be doing everything you can to manage things as much as possible . Re veggie food Iceland used to be a bit hit and miss sometimes loads sometimes not so much . We tend to shop around rather than do online orders . Pretty exhausting but you get to spot the instore offers and yellow stickers . We mainly go to SBs or Morrisons . We've worked out our SBs have their offers on rotation so every few weeks Quorn products and other veggie foods are reduced . Same for store cupboard and other products .
Morrison's aren't in all areas but have a wide range of veggie products well priced . We always have a look in M&S when we've been to the pharmacy they've really ramped up both veggie and vegan foods and have good offers and yellow stickers with a good date .
I'm glad you like your job it's such a battle if you dread going . Dds boyfriend is one of the poor souls trying to keep the IT system going . Sadly there are a number of senior staff who are very negative although he has higher qualifications and experience . When the NHS was hit last year he was the only one who knew what to do and was running round the dept screaming get your hands away and don't touch anything . Basically he was underpaid and quite unhappy . He's watched the vacancies until he found the role he's qualified for and is now working his notice .
All workplaces carry the risk of infection but obviously hospitals are hot beds for catching something . He's developed a pretty good immune system but D&V is his nemesis as you'll know you aren't allowed to go into work with that but there is a degree of judgement if you come down with it . His dept ask you report for work so they can see you are ill with either that or flu etc and if satisfied send you home and then track your time off .
polly

Hi Polly, thanks for all your suggestions, we do have Morrison's here,it's a bus ride away but the bus does go from my road to outside the store so not too much of a struggle,I will go and investigate when I next get paid and am doing a full shop,they do do online delivery as well but like you say you miss the deals then

I feel for your DDS boyfriend,I wouldn't have wanted to be doing his job then,we also aren't allowed to work if we have D&V and have to stay away for 48 hours, I had D&V so didn't go in and they practically accused me of lying,they in so manny words insinuated that they thought I had really been off with my Fibro but didn't want them to know,next time I get D&V I am going to go to work and show them I have genuinely got it,they will not be happy,I work on a children's ward so it's a hotbed of infection,my immune system is usually overactive but this year it's been rubbish

I will also check out the pip thing,I assumed I wouldn't be entitled to anything because I'm able to work

Please don't apologise for offering me suggestions,I really appreciate your help

Onebrokelady

Wednesday2000 wrote: »

I've been doing the Gupta programme for a few days now, I started Tuesday and I do think it is working already! It feels like I can feel the odd ache or pain in my knee or neck but the pain signal has been dulled down. Like I can still feel the pain but it isn't as painful or as noticeable?

I can't really explain it properly!:D

I have been reading about it for a few weeks before I started and it makes a lot of sense. The theory is that after a period of emotional/physical/mental stress your fear response keeps being triggered afterwards which leads to a lot of fatigue and in Fibro a lot of unpleasant physical symptoms.

The brain exercises are meant to desensitise your central nervous system as it is overreacting to pain in your body.

It was developed by Ashok Gupta, who suffered from ME/CFS himself before curing himself of it, and then conducting research into the brain neurology of these illnesses. His research led him to conclude that these conditions are caused by abnormalities in the brain, especially in brain structures called the “Insula” & the “Amygdala”. The latest findings in brain neurology, specifically “Neuroplasticity”, show that the brain is inherently re-wireable. And The Gupta Programme is a way of re-wiring the brain’s responses to bring back health and vitality.

It cost me about £200 but there is a money back guarantee if it doesn't work. I don't really care about the money as I spent a lot of my thirties being very frugal and so we have the money now.



Yes, I read about it after you said on here and it does sound like a similar theory.:)

I did read that Sarno book a while back.

I am glad the programme seems to be helping,it sounds really good:)

candygirl

This one can apparently prescribe drugs

Wednesday2000

117pauline wrote: »

I have decided to follow a diet focusing on reducing "diet" versions of products so no more diet drinks and foods using artificially sweetening or additives.

I worked out that artificial sweeteners were a migraine trigger for me. I had lots of triggers. I haven't had a migraine in months now and at one point I had them every week.:(

Onebrokelady wrote: »

I am glad the programme seems to be helping,it sounds really good:)

I am in disbelief. I woke up this morning feeling almost normal, back to how I used to feel. I watched the testimonials for the programme and most people said they noticed a difference after a couple of weeks. This is only the 5th day for me and I haven't even done the brain exercises yet today. The exercise only takes about 5 minutes to do!

I was talking to my husband yesterday (I was talking non-stop to him when he got in from work as I couldn't believe how good I was feeling!) and saying that if someone had explained what was wrong with me and that the problem was in my brain (!) I would have just done this programme straight away.

Since I was diagnosed with Fibromyalgia last year I bought lots of supplements (loads!) tried to make changes to my diet and even tried EMDR therapy at £100 an hour! I bought so many books etc... and spent so much money trying things that didn't really work!:mad:

I knew that there was something that would work for this. Being an extremely impatient person has paid off.:rotfl:

Onebrokelady

Wednesday2000 wrote: »

I worked out that artificial sweeteners were a migraine trigger for me. I had lots of triggers. I haven't had a migraine in months now and at one point I had them every week.:(



I am in disbelief. I woke up this morning feeling almost normal, back to how I used to feel. I watched the testimonials for the programme and most people said they noticed a difference after a couple of weeks. This is only the 5th day for me and I haven't even done the brain exercises yet today. The exercise only takes about 5 minutes to do!

I was talking to my husband yesterday (I was talking non-stop to him when he got in from work as I couldn't believe how good I was feeling!) and saying that if someone had explained what was wrong with me and that the problem was in my brain (!) I would have just done this programme straight away.

Since I was diagnosed with Fibromyalgia last year I bought lots of supplements (loads!) tried to make changes to my diet and even tried EMDR therapy at £100 an hour! I bought so many books etc... and spent so much money trying things that didn't really work!:mad:

I knew that there was something that would work for this. Being an extremely impatient person has paid off.:rotfl:

Brilliant news:A I noticed an improvement in my symptoms after about a week and that's even before doing the proper work,they gave a few free demos on the free trial so I tried them and they seemed to help,they also have a thing about writing down your thoughts and experiences which I haven't tried yet but I can see how it would help,I've bought myself an A4 book to write in but haven't written anything yet,I have my diary on here where I'm have a regular winge about life in general and that has also helped me a lot,I tend to bottle things up and getting things out in the open makes a difference to me
I know stress doesn't help as over the last couple of weeks I've been really stressed out about money and I've noticed little symptoms creeping back in so time for some stress relief I think