Here we can all be heard for a little while. Part 3

Waves_and_Smiles

What a good doctor, Mel! WaSp's consultant is very similar, he doesn't try to make things sound better than they are like today he told me to expect things to get worse temporarily during the swap over between plasma exchanges and medication. I trust him because he is honest and doesn't try to make me feel better. He also thought of vasculitis immediately when other doctors didn't because it so rare. WaSp is in good hands with him.

calleyw

WaS,


Thank you, we are in the waiting zone now for the phone call. Yesterday AM called them as no call by 6pm. But they where just busy and there are a number ahead of him so waiting it out.


my ex had two very good consultants one for his stroke and one for his vasculitis shame that one moved on.



Sounds like its slowly moving forward on the vasculitis front. Which is great news. And great that the Dr diagnosed it so quickly. Which means treatment can start so much quicker.



Yes it is rare, the type my ex has a prevalence of between 11-13 per million population. Our own GP was like never seen blood work like it before. Because of the rarity when my ex was in hospital, Dr's would ask if they could bring students around to have look at him and his case. As it was likely they could go their whole GP career with never meeting a patient. My ex is well natured and was like yeah of course.



Hope you are coping WaS? as its hard on you as well. You have been left without your carer and no one to look after you.


Today here has been cooler. But still warm. everyone take care.


Yours


Calley x

Waves_and_Smiles

How frustrating for you and AM Calley.

The A&E doctor who saw WaSp's blood work told us the only way to describe it was deranged. She admitted she didn't have a clue what was causing it and admitted him straight away. After 2 days of tests still no one knew what was wrong so he was transferred to this teaching hospital and his consultant guessed it right away because he had seen it before. WaSp's type of vasculitis is 2 in 100,000 people.

calleyw

Waves_and_Smiles wrote: »

How frustrating for you and AM Calley.

WaS,


We are booked in for 12 tomorrow :j But anything can happen between now and then.


So fingers crossed no more delays.


Yours


Calley x

Waves_and_Smiles

Good news! Crossing everything for you both that it goes ahead!

heartbreak_star

I'm feeling so sad for those of you who are poorly or have poorly OHs! Glad everyone seems to be getting the best care they can though

Consultants can be stars. Both me and my mum are going through some hospital tests at the moment for potentially very nasty things, and everyone we've seen has been very kind and informative to us!

Please don't quote the following, as I may delete it -

I'm not doing too well mentally at the moment. I got accused of sleeping with a friend's husband but we are (and always have been) just friends. Thankfully my partner is incredibly supportive and knows I wouldn't do that to him!

I have a related question though - after trying to work through it, said fellow has split up with his wife. She keeps messaging him telling him how broken-hearted she is and that she's shattered into pieces and the like, with an occasional nasty dig at him. At what point does this tip over into harassment or abuse? He's trying to be kind and support her, especially as they have a child and he's a great dad, but it's battering his already-dented mental health a bit...

Any advice appreciated. I really feel for her and I know it hurts but there's no going back for him and she's seeing things through rose-tinted glasses...

HBS x

dandy-candy

HBS - ((hugs)) I’m glad your partner is supportive. I’m not sure what the answer is to your second question, maybe someone else can help?

Calleyw - I hope the surgery goes ahead today and is all good.

WaS - good luck with the visit today, I really hope it goes well!

[Deleted User]

Hi all,

Sorry I've not posted I've been lurking and reading.

Glad you're managing ok WaS, hugs to anyone that needs it.

OH and I had a big old talk on Friday, he said he can tell I'm not really "myself" anymore and he can tell that I'm kind of shutting myself off in regards to him and his kids and just slotting myself in around them which I am because it just tends to make life easier to go along with what everyone else wants from life.

He said he wants me to feel free and comfortable to be myself as he fell in love with someone who know who they were and had a lot of life about them. I'm completely fine with that comment, it's not meant as having doubts about loving me, more about encouraging me to come back out of my shell again. His words of "I want you to be able to be yourself" got met with a very blunt and honest "And what does that mean if I have no idea who I am?". He then suggested it would be good for me to figure that out.

Which I'd love to do. But how does one do that?! I guess you start with working out the kind of person you'd like to be? All I know is I threw away a third of my wardrobe for things that weren't right for the sort of person I would want to be, and to keep me out of my comfort zone. As for the next steps for figuring out who I am... I have no idea :cool:

dandy-candy

SSDD23 - funnily enough this is something I want to find out about myself too. I was thrown into motherhood in my teens in an unplanned way, but it was a full time commitment. My life was bringing them up and helping them through school etc. My youngest is 20 now and they are all independent. I found out with a bump recently that I really can’t mother them anymore and it’s right too, but I have no identity of my own.
I don’t know what I like or what I want from life anymore, and it actually has made my anxiety worse. I’ve never had a career and tbh I can’t be bothered to re-enter education to get one, it’s a lot of money and effort which my heart isn’t in. It isn’t even a money thing, if I won the lottery tomorrow I wouldn’t have a clue what to do with it. I’m a bit of a blank page right now and I don’t know how to find myself. If you discover a way, let me know!

Izadora

WaS - I'm pleased that WaSp is doing a bit better now and hopefully the switch to medication doesn't make things too bad.

Calley - I hope all goes ahead/goes well with AM's operation

HBS - Sorry, I have no idea what to suggest but I hope things go well with your and your mum's tests and that your friend finds a way to deal with his ex.

I can sympathise with not really knowing who you are or where you're heading. I don't know if there's ever been anything I've wanted enough to really strive for so I tend to just plod along, always taking the path of least resistance, and I have no idea what I would change even if I knew how.

Massive hugs to all xx