After ATOS assessment, have been taken off ESA

HOWMUCH

Debrac wrote: »

I am a member of a disabled persons exercise group which my GP referred me to. My 'bike' is a customised recumbent exercise bike with back rest, sides and seat belt so I don't fall off it. I try to keep my muscles moving whenever i feel well enough to minimise my risks of devolving a blood clot because unfortunately I do have to spend days at a time in bed.

Thank you to those that helped. Shame on those that critised my attempts to keep as healthy as possible whilst struggling with a disability as horrendous as MdDS.

Trying to do some exercise every day so yesterday I did a 30 minute brisk uphill walk and today I've done another 15km on my bike

Shame on you more!!!!!
30 minutes brisk uphill walk

fed_up_and_stressed

Debrac wrote: »

On a good day I use a walker in the house to get around and a wheelchair outside. But on a bad day (approx 50% of the time) I am so dizzy and sick that I can't even get out of bed. Just because they say I am fit for work doesn't make it true unfortunately.

Debrac wrote: »

I have had a balance disorder called MdDS for over 4 years and have completely lost all sense of balance (i.e. I can't stand unaided, walk etc)

Eh ? You state can't stand, walk and have to use a wheelchair outside but post the below

Debrac wrote: »

Trying to do some exercise every day so yesterday I did a 30 minute brisk uphill walk and today I've done another 15km on my bike

And bring found fit for work was a bolt out of the blue ?!?!? I'm sure the DWP would love you to explain how you feel you still fit the criteria high rate mobility DLA but are able to do an uphill 30min hike (unless you were in the wheelchair in which case i feel sorry for the poor sod pushing the chair uphill for 30 mins !.. And if that was the case i can't imagine it'd burn many calories for you !

Dazedandconfused

Debrac wrote: »

I am a member of a disabled persons exercise group which my GP referred me to. My 'bike' is a customised recumbent exercise bike with back rest, sides and seat belt so I don't fall off it. I try to keep my muscles moving whenever i feel well enough to minimise my risks of devolving a blood clot because unfortunately I do have to spend days at a time in bed.

Thank you to those that helped. Shame on those that critised my attempts to keep as healthy as possible whilst struggling with a disability as horrendous as MdDS.

How do you manage walking out of interest one of your previous posts mentions 3 hrs walking. I can't do anything like that due to back and neck pain but I'm working full time


Also flights how do you do stairs ? Not criticising am genuinely interested as would love to improve my mobility

Debrac wrote: »

Hi everyone! I'm back on track now and have resumed my biking big time :j

So in the last few days I have cycled 60km so if you can add this please Fredsnail to June's Silverstone Challenge. I have also another 40 flights to add to the Everest challenge too.

Debrac

As I have tried to explain, I go to a gym for disabled people. My uphill walk was on a very slow inclined treadmill with me fastened into a harness and holding onto a frame. My bike is a reclined bike low to the ground with sides, backrest and seat belt. There is nothing at all wrong with my arms or legs, but my condition is a neurological one which causes total loss of balance, dizzy spells and nausea.

I am genuinely shocked at how nasty some people can be. This not a competition about whose disability is worse.

fed_up_and_stressed

Debrac wrote: »

As I have tried to explain, I go to a gym for disabled people. My uphill walk was on a very slow inclined treadmill with me fastened into a harness and holding onto a frame. My bike is a reclined bike low to the ground with sides, backrest and seat belt. There is nothing at all wrong with my arms or legs, but my condition is a neurological one which causes total loss of balance, dizzy spells and nausea.

I am genuinely shocked at how nasty some people can be. This not a competition about whose disability is worse.

You say you get dizzy and have total loss of balance when you stand ... But can do massive amount of stair repetitions ... Isn't that dangerous to be climbing stairs when you get dizzy spells ???


You also say above it was a very slow inclined treadmill BUT

Debrac wrote: »

My exercise in the past 7 days has totalled 10.5 hours on my exercise bike, plus a two hour brisk walk at the weekend so 12.5 hours this week for me! :A Total weight loss 1/2 lb

so was it slow or brisk ??!???!?

Debrac wrote: »

Hi everyone!

Have totally lost my mojo this last couple of weeks so have not been exercising much but because I haven't been feeling well, I have still managed to lose 1lb

For the everest challenge I have done 140 flights of stairs and for the Silverstone challenge I have done 1 hour biking and 3 hours walking

Wish I could find my motivation again...:(

2 and 3 hours brisk walking and numerous threads about climbing stairs for fitness .... When the dla criteria for high rate mobility is

"Mobility component

You might get this part of DLA if, when using your normal aid, you:

can’t walk
can only walk a short distance without severe discomfort
could become very ill if you try to walk"


How can you walk briskly for 2 and 3 hours and meet the above criteria.... No one on this thread has tried to state their disability is worse....


you have been challenged about climbing stairs and brisk walking when you have stated in other threads you can't walk or stand unaided.

HOWMUCH

Debrac wrote: »

There is nothing at all wrong with my arms or legs, but my condition is a neurological one which causes total loss of balance, dizzy spells and nausea.

I am genuinely shocked at how nasty some people can be. This not a competition about whose disability is worse.

No one has mentioned anything about disabilities at all, just amazing that you state you cannot stand and spend almost all you time in bed, yet you do so much exercise!!!!!!

HOWMUCH

Mal de Debarquement Syndrome (or MdDS) is an imbalance or rocking/swaying sensation often both "felt" and "seen" by the sufferer that occurs after exposure to motion (most commonly after a sea cruise or a flight). Although other forms of travel have been known to trigger it.

After alighting or "debarking" (debarquement) the traveller continues to feel "all at sea", unable to get their land legs back. Although most travellers can identify with this feeling and do actually experience it temporarily after disembarking, unfortunately in the case of MdDS sufferers it can persist for many weeks, months, even years afterwards.

The symptoms are with you constantly, they never leave, nor can they be alleviated by any anti-motion sickness drugs (eg Stemetil, Serc etc)

cattermole

I'd never heard of it before so looked it up on Wiki.

Strangely enough it recommends exercise but not on an exercise bike or a treadmill.
http://en.wikipedia.org/wiki/Mal_de_debarquement

Seems to be very little known about it.

HOWMUCH

I had it after a bad crossing over the bay of biscay back in 2002, mine only lasted about 10days. Just felt as though I was still on the ferry all the time.

DaveTheMus

If your husband earns £25'000+ why would you be entitled to any benefits?

I don't think it's right that just because someone is disabled, even if the have a decent household income, they should be entitled to thousands of pounds every year.

Is a pint of milk more expensive for a disabled person?