P.I.P. timescales...

dialysis

BethcMac64 wrote: »

Snap honey, I'm in severe pain every day with degenerative disc disease, arthritis and heart problems which are still under investigation and let's not even talk of the depression, hyper vigilance, OCD, anxiety and panic attacks!! I've been in tears too all day following calls to both Atos and DWP and I'm at the end of my rope. I've been in the support group ESA since Nov 2011 and only applied for PIP Oct last year, had my assessment end of April report was done and sent to DWP 2 June then they made queries to Atos so another supplementary report done and sent to DWP 24 June then on Sat I got a letter telling me I'm to attend another assessment on 17 July but didn't say what it was in relation to, ESA OR PIP. I got in a right state and had a bit of a melt down on Sat which was the worst ever. Today rang Atos, spoke to Mr Nasty who confirmed it is for ESA. Asked if I could move the date because of everything going on at the moment health, PIP process and now facing homelessness because of a selfish joint tenant who happens to be my own brother that I took in, he was not interested whatsoever and got very loud with me so I asked where was the pre-assessment questionnaire as I haven't had one for this assessment and they are supposed to determine whether or not you need an assessment from the completed questionnaire. So he they will probably use the last one I completed which was for my PIP claim. In the end we were getting into an argument so I ended the call. The thing is if they can use a questionnaire for this next assessment then why the hell can they not use the report that was completed just recently too? This is one of the questions I have put in my complaint to DWP. I have no issue with attending the assessment allbeit my 4th assessment in less than 2 years but so be it, but all I wanted to do was move it to a later date because I'm struggling to get through the day at the moment with all the other issues going on right now. So that's why I raised a complaint with DWP via my MP who is the only one who seems to help me.

So you have my sympathy (dialysis 65910862) I know exactly how you're feeling today, you are not alone.

So sorry u are having things so tough. My MP is involved too but I am now at a loss of what to do. When I rung twice yesterday I was told that a team leader could ring through to processing and that's what they would do for me, when I didn't get the call back I rung again and was told they didn't have a muber for the processing team , I asked then why can a team leader ring through then if u done have a number she said well you rung wales last time so maybe they can ring through. I think they make it up as they go along. No chance of me getting that number tho. Just see what today brings. Thinking of you hunni xx

geordie_girl_2

dialysis wrote: »

Well I am well and truly at my lowest point now, been in severe pain all day I have severe ME and Fibromyalgia and been waiting for my five day call back for 15 days now oh and my 24 hour urgent call back that never came and my afternoon call back today which never came and now told they will ring me back sometime but there is nothing else they can do at the call centre but put another 5 day call back through. Came off phone in floods of tears after the day I have had, yet another night of bed at 6pm. Just about had enough of the whole bloody PIP thing wish I never applied now good job they haven't rung back in the last 15 minutes they would have been told to do one. Seriously so fed up and hurting

So sorry for the pain you are in.I have just had a call back{waste of time}.Again repeated what i already know,but this time said claims are taking 6-8 weeks and as i have gone over this have sent priority task to case manager who normally deals with it within 3 days.So i said i would phone back end of week and guess ,he said it might not have been dealt with by then.LOL>

geordie_girl_2

Thanks Kitty kat, and fairy-dust do contact Mp.You can email them.

Caza143

I rang atos about audit today she said I'll chase you up and call you back I will Believe that when I see it. She also commented how long I've waited but I know a few have been waiting longer so somehow don't believe it

1987cambridge

My DLA was stopped about a month ago, and with that so did my 1 to 1 support worker at University so I am currently halting my course, so at the moment I have a lot of time to sit around and feel sorry for myself! I just spoke to DWP and they received my PIP form and paperwork (I enclosed about 80 pages of hospital documents, care plans etc.) on the 25th and sent it across to the assessor today (27th june). Looking for the number I came across the report I requested back in 2011 for ESA (though, not sure why I had this as my son was 6 weeks old at that point). I was refused benefit and the report stated \"She was not rocking. Claimed she finds it hard to motivate but was dressed and hair was brushed. Made eye contact. Was well spoken. No sign of anxiety (no sweating, shaking)\" it was the biggest joke ever as I have been under mental health care from the age of 14 when I was diagnosed with PTSD and had been repeatedly hospitalised. I believe this was ATOS in Cambridge who carried out the assessment.

I am absolutely petrified at the moment of what is going to happen. I have Hepatitis C and am starting treatment in a few months, which requires daily tablets and injections for nearly 12 months. I have been warned due to my poor physical health I am going to need a lot of support. Its Catch 22 as I need the treatment as daily the effects are brutal- my joints swell and ache, I vomit constantly so I can't leave it. For the past couple of years I had been having fainting spells but they were never really taken seriously until on Xmas Eve I collapsed at a train station with my son (age 3 in august) walking at the time. I cut my head open and was rushed to hospital with a resting heart rate of 220bpm. I am not exaggerating when I say anything could of happened to him. They are currently investigating what could be the problem. Physical problems aside, I have suffered from severe mental illness since my early teens and have PTSD & Borderline Personality Disorder and severe anxiety. I was so ill in January & February I was hospitalised after I took an overdose of tranquillisers. I had a complete nervous breakdown and was hallucinating and was totally disconnected from the world I didn't even know what month it was let alone day. The doctors were so concerned they contacted social services and my son went to stay with my sister for 2 months. My son is now back with me and I am living at my home but my mum who is a district nurse has had to give up an extra day a week to help look after me. She rotates duties with my sister who is a mum of 3 herself. I have professionals visiting me daily, but this will go down to 3 times a week as of next week. I require round the clock support for my problems and I am due to start a 24 month Mentalisation Based Therapy programme in July at a service called \"Complex Cases\" for adults with severe problems. This is about an hour away from me and it is part of the deal with Social Services that I go. Now my DLA has been stopped I don't know how I am going to do it as the bus is £4, of which I can't take it as my anxiety means I would rather die tbh! A taxi is about £15 each way. At the moment after bills I am left with £8 a week, and as you have to send off for the reimbursement which takes about 3 weeks, public transport is not an option, especially as they only fund the bus. I never realised how expensive being this ill is. My family have to sacrifice a lot for me and I feel so guilty I can't even offer them a cup of coffee when they come round to help me out as thats a luxury, I haven't had coffee in a month! My sister had to give up her job to care for my son for those 2 months and she was on a zero hour contract, well, she still is but they haven't got any work for her at the moment apparently.

Writing the PIP form (I just answered all questions in \"additional information\" and the total of pages came to 50- anyone elses this long?) I kept thinking \"oh, they will definitely think I am 'over-egging the pudding' as on paper it looked so strange a 26 year old had such extensive problems. But I provided hospital papers, careplans & letters backing up my condition. I have so many professionals in my life but my actual GP is rather dismissive of my health problems so I worry if they choose to speak to her and her alone. But I listed the other 6 people I see on a weekly basis.
My sister keeps saying \"dont worry- you will get it\" but reading stories of people with even worse illnesses than mine dont are refused is totally soul-destroying. I was trying really hard to better myself and my sons life (I was told I had a stomach ulcer repeatedly by my GP and the hospital when infact I was 6 months pregnant so I had little time to adjust to motherhood as he was also premature) by going to uni but could only do this with a full time 1 to 1 worker who picked me up from home and stayed with my every second of every day. This has obviously stopped now as I don't get Disabled student status so I can't continue. I can't potentially waste more money by attempting to go it alone as I know I wouldn't be able to. My son will be 3 in August and come next year when I will have to go onto JSA I will still be doing my Hepatitis C treatment- I have seen many people bedbound and extremely ill during this.

I was wondering, when is too soon to write to my MP? I was thinking of writing in about 4 weeks and saying how distressed I am due to hearing about all the waiting times of up to a year and even more, and how its impacting on my life and effectively, whether I get custody of my son as if I cant get to the treatment this is me not engaging. Now it is summer it isn't too bad but I feel absolutely sick to the stomach about autumn and winter. I don't know how I will heat the house or pay for his school uniform.

BethcMac64

I watched the Commons Chambers yesterday and of course mass discussion and debate around PIP, ESA and the whole welfare system. Ian Duncan Smith is in total denial and trying to pass the buck for DWP's incompetence onto the previous Labour Government. He is also having a go at Labour regarding the Atos fiasco because they were the ones who first contracted them in. It's beggars belief and rather than denying everything he ought to get his finger out and sort the mess out. All the local MPs had various horror stories to tell regarding PIP and ESA claimants, one even mentioned how a man died waiting for his assessment and as a result, his widow's health has deteriorated and she herself is now having to claim ESA! It is shocking but it is nice to know that our local MPs are in there fighting our battles.

BethcMac64

BethcMac64 wrote: »

Snap honey, I'm in severe pain every day with degenerative disc disease, arthritis and heart problems which are still under investigation and let's not even talk of the depression, hyper vigilance, OCD, anxiety and panic attacks!! I've been in tears too all day following calls to both Atos and DWP and I'm at the end of my rope. I've been in the support group ESA since Nov 2011 and only applied for PIP Oct last year, had my assessment end of April report was done and sent to DWP 2 June then they made queries to Atos so another supplementary report done and sent to DWP 24 June then on Sat I got a letter telling me I'm to attend another assessment on 17 July but didn't say what it was in relation to, ESA OR PIP. I got in a right state and had a bit of a melt down on Sat which was the worst ever. Today rang Atos, spoke to Mr Nasty who confirmed it is for ESA. Asked if I could move the date because of everything going on at the moment health, PIP process and now facing homelessness because of a selfish joint tenant who happens to be my own brother that I took in, he was not interested whatsoever and got very loud with me so I asked where was the pre-assessment questionnaire as I haven't had one for this assessment and they are supposed to determine whether or not you need an assessment from the completed questionnaire. So he they will probably use the last one I completed which was for my PIP claim. In the end we were getting into an argument so I ended the call. The thing is if they can use a questionnaire for this next assessment then why the hell can they not use the report that was completed just recently too? This is one of the questions I have put in my complaint to DWP. I have no issue with attending the assessment allbeit my 4th assessment in less than 2 years but so be it, but all I wanted to do was move it to a later date because I'm struggling to get through the day at the moment with all the other issues going on right now. So that's why I raised a complaint with DWP via my MP who is the only one who seems to help me.

So you have my sympathy (dialysis 65910862) I know exactly how you're feeling today, you are not alone.

OMG, just took a call from a lady in DWP, she informed me that a decision was made yesterday got Standard rate for Daily Living Component and High rate for Mobility. She said a letter will be sent to me and she agreed that another Assessment for ESA at this stage is too soon and has someone looking into that because she thinks my assessments have been a bit excessive almost 4 in less than 2 years between PIP and ESA. It hasn't sunk in yet, is this really over, oh I so hope so.:j

BethcMac64

BethcMac64 wrote: »

Snap honey, I'm in severe pain every day with degenerative disc disease, arthritis and heart problems which are still under investigation and let's not even talk of the depression, hyper vigilance, OCD, anxiety and panic attacks!! I've been in tears too all day following calls to both Atos and DWP and I'm at the end of my rope. I've been in the support group ESA since Nov 2011 and only applied for PIP Oct last year, had my assessment end of April report was done and sent to DWP 2 June then they made queries to Atos so another supplementary report done and sent to DWP 24 June then on Sat I got a letter telling me I'm to attend another assessment on 17 July but didn't say what it was in relation to, ESA OR PIP. I got in a right state and had a bit of a melt down on Sat which was the worst ever. Today rang Atos, spoke to Mr Nasty who confirmed it is for ESA. Asked if I could move the date because of everything going on at the moment health, PIP process and now facing homelessness because of a selfish joint tenant who happens to be my own brother that I took in, he was not interested whatsoever and got very loud with me so I asked where was the pre-assessment questionnaire as I haven't had one for this assessment and they are supposed to determine whether or not you need an assessment from the completed questionnaire. So he they will probably use the last one I completed which was for my PIP claim. In the end we were getting into an argument so I ended the call. The thing is if they can use a questionnaire for this next assessment then why the hell can they not use the report that was completed just recently too? This is one of the questions I have put in my complaint to DWP. I have no issue with attending the assessment allbeit my 4th assessment in less than 2 years but so be it, but all I wanted to do was move it to a later date because I'm struggling to get through the day at the moment with all the other issues going on right now. So that's why I raised a complaint with DWP via my MP who is the only one who seems to help me.

So you have my sympathy (dialysis 65910862) I know exactly how you're feeling today, you are not alone.

Did you see my news honey?:rotfl:

BethcMac64

dialysis wrote: »

So sorry u are having things so tough. My MP is involved too but I am now at a loss of what to do. When I rung twice yesterday I was told that a team leader could ring through to processing and that's what they would do for me, when I didn't get the call back I rung again and was told they didn't have a muber for the processing team , I asked then why can a team leader ring through then if u done have a number she said well you rung wales last time so maybe they can ring through. I think they make it up as they go along. No chance of me getting that number tho. Just see what today brings. Thinking of you hunni xx

Did you see my news honey?:rotfl:

Mummy2011

lauriee wrote: »

when the ten days are up call DWP to confirm that the report is on their system., Capita told me originally mine had been sent but it turned out it hadn't I had to go through the CEO of Capita in the end, not wanting to panic you or anything but check after the ten days to make sure what they have told you is correct

Thank you for your advise.
I thought I would call today to check if it had been received ,not expecting much of an answer after yesterday & the script reading.
Well I was told that it was received by the DWP on the 25th June & today they are saying a decision would take between 2-3 weeks , so my fingers are crossed very tightly.