can we ask for a gluten free prescription for

Goose_Girl

Soolin, did you have the blood test before the biopsy? I'm just wondering if the blood test I had was because I was having other bloods anyway, but the doctor did specify they were testing for coeliac and a few other things. He said I'd go and see a gut specialist if the test came back positive. He never mentioned a biopsy.
Anyway, the test result for that was normal and they are thinking it's IBS with acid reflux so that's the path we are taking.

I don't think you were being harsh; there are a lot of misconceptions. I was only repeating what I'd heard from my doctor/the NHS, which is now a little worrying!

What would you say to describe it as? If not an allergy or intolerance? Maybe a reaction or sensitivity? I don't want to use the wrong wording.

dawnydee73

Goose_Girl wrote: »

What would you say to describe it as? If not an allergy or intolerance? Maybe a reaction or sensitivity? I don't want to use the wrong wording.

Its an autoimmune disease, which means your body is attacking itself (I think). In Coeliac disease it the gluten that triggers an immune reaction which can damage the lining of the intestines

This is from the NHS that explains it better:

Coeliac disease is what is known as an autoimmune condition. This is where the immune system – the body’s defence against infection – mistakenly attacks healthy tissue.
Coeliac disease isn't an allergy or an intolerance to gluten.
In cases of coeliac disease, the immune system mistakes substances found inside gluten as a threat to the body and attacks them.
This damages the surface of the small bowel (intestines), disrupting the body’s ability to absorb nutrients from food.

Autoimmune diseases can run in families but not necessary the same disease

Goose_Girl

dawnydee73 wrote: »

Its an autoimmune disease, which means your body is attacking itself (I think). In Coeliac disease it the gluten that triggers an immune reaction which can damage the lining of the intestines

Gotcha :money: Gosh it's horrible what our bodies can do to theirselves isn't it. I think people get hung up on the gluten/wheat side of it because that's the 'treatment' of it.

soolin

Goose_Girl wrote: »

Soolin, did you have the blood test before the biopsy? I'm just wondering if the blood test I had was because I was having other bloods anyway, but the doctor did specify they were testing for coeliac and a few other things. He said I'd go and see a gut specialist if the test came back positive. He never mentioned a biopsy.
Anyway, the test result for that was normal and they are thinking it's IBS with acid reflux so that's the path we are taking.

I don't think you were being harsh; there are a lot of misconceptions. I was only repeating what I'd heard from my doctor/the NHS, which is now a little worrying!

What would you say to describe it as? If not an allergy or intolerance? Maybe a reaction or sensitivity? I don't want to use the wrong wording.

I had a blood test but it was inconclusive due to other issues I have with my blood. They originally thought it was gallstones or liver issues and my liver did prove to be damaged and I am not a drinker.

They then decided to biopsy, almost as a last resort and found no villi present in the biopsy.

My youngest son was poorly as a young child so they tested him for coeliac and again the blood test was not conclusive. He was 7 when he had his biopsy but thank heavens it was negative and it meant they could look for other reasons why he was ill rather than me blindly treat him as a coeliac.

Interestingly coeliac gets a mention in the Daily mail today

http://www.dailymail.co.uk/news/article-2325603/Jamie-Olivers-Italian-restaurant-chain-hit-17-000-legal-serving-wheat-pasta-coeliac-terrible-mix-up.html

lostinrates

soolin wrote: »

.

Interestingly coeliac gets a mention in the Daily mail today

http://www.dailymail.co.uk/news/article-2325603/Jamie-Olivers-Italian-restaurant-chain-hit-17-000-legal-serving-wheat-pasta-coeliac-terrible-mix-up.html

Wow. That's awful. To balance it, I ate at a Jamie restaurant last year (before Christmas) and I have a fairly extensive list of things I should not have on my medication. The drinks were the hardest to get suitable! The staff couldn't have been more kind as I asked for a dish with alterations.

KxMx

soolin wrote: »

I think it depends on the person- and i would never suggest someone has anything they are not comfortable with and all the hospitals I have been tested at have spent time going through the options with me, nothing was forced on me and the decision about sedation etc was entirely mine. As in all cases talk to the medics as they are there to help.

After leaving me in the waiting room for 90 minutes over my appointment time, I was dumped in the halfway room for a further 30. My appointment was at 10am so how they got so behind so quickly I don't know.

They offered me twilight sedation "which may not work" they said, or throat numbing spray, so I went for the latter since I couldn't have both.

After the procedure I had to get myself off the bed, walk alone to the recovery room and then sit on a hard plastic chair with no arms. I didn't expect a wheelchair or a bed to lay on afterwards but what I did get really wasn't good.

The info leaflet said my throat would be "a bit tender and sore" but would go away within a day. It was raw for three.

Overall it was not a good experience!

I have had cameras the other end (the first is so brief you don't need sedation or pain relief so the second which is more invasive I declined sedation since I knew it wouldn't be that bad and just had pain relief) in the same unit and I couldn't have had better experiences, so what I went through with the upper was a shock.

March2012

at least a positive way of looking at things!!! yes fruit and veg voucher would be better!

Tsb wrote: »

A prescription is to help save your life, not help save your wallet.

March2012

blood diet too and i think colonic though the idea is good i wonder whether it takes the good bacteria away too....

heartbreak_star wrote: »

His vitriol against Gillian McKeith is my favourite part

HBS x

March2012

and he has lower back issues.

dawnydee73 wrote: »

Lower back pain??? Pernicious anaemia is also an autoimmune disease, is this something you think you have too

March2012

Was anaemic in a fortnight.

because you need to take supplements if not!!!!! google it too or ask some vegetarians who know about supplementation or the vegetarian association....;)
people i have read too much on this i suppose ...;)

heartbreak_star wrote: »

I think I'm going to back away slowly and not make eye contact - the DT board is full of people who wouldn't know scientific evidence if it fell on their head from a great height and prefer to believe whatever snake oil the peddlers are chucking around (in this case, blood type diets). This is going the same way.

Incidentally, I tried going veggie. Was anaemic in a fortnight.

I also powerlift. Where the hell am I going to get my protein from, if not meat? And March2012, did you miss the bit where I FEEL BETTER for the diet I'm on now? *eyeroll*

My IBS was triggered by teenage bulimia. Going veggie isn't going to magically repair my gut.

Stop churning out rubbish and give me a link to a studied scientific report that shows that wheat causes migraines and one that shows that the blood type diet is the saviour of us all.

HBS x