can we ask for a gluten free prescription for

heartbreak_star

March2012 wrote: »

anyone know the movie lorenzos oil where the parents are the ones who did a lot of research to help their son survive...true story....

Medical response

The film received mixed responses from the medical community. While it seemed to accurately portray the events related to the boy's condition and his parents' efforts during the time period covered by the film, it was criticized for painting a picture of a miracle cure. Subsequent research with Lorenzo's oil has not clearly proven its effectiveness in treating ALD.The actual subject of the film, Lorenzo Odone, died in May 2008 at the age of 30, having lived two decades longer than originally predicted by doctors.

Please note the bit in purple.

HBS x

March2012

to even think about going back on a gluten diet again...at least one less cost on doctors/hospitals as i worked it out!
funny how years ago 5 doctors told me a medication i was was not making me breathless. i decided to get off it myself . and how funny i was no longer ill even though i saw 5 doctors. my gut instinct works better
oh and by teh way saw recently in one of the womens magazine such current women own or one of them that ibs is often diagnosed when it is actually wheat allergy. thought you might want to know.

Goose_Girl wrote: »

I really don't see how you could get anything prescribed without a diagnosis. Simply believing the food is better is not good enough; fruit and veg would be available on prescription.
I wish coeliac/gluten intolerace simply caused spot and growing pains. Give me that any day of the week! And my test for coeliac came back negative, meaning IBS will probably be my diagnosis when I next check in with the doctors.

General health is our own responsibility and the NHS is really there for medical conditions. Your situation really sounds like it is the former I'm afriad.

ETA:
If you believe you have Coeliac disease and have sufficient reasons that a doctor sends you for blood tests, then results can be negative because the villi aren't damaged enough in the intestines. If diet modifications have been made, you need to go back to a gluten containing regular diet for at least six weeks before the tests, but I expect YouTube covered that

March2012

is it? or should they just give peopel who are ill a bit more money like they do in other european countries. i know one person in holland was getting initially 900 euros per month. is not about time to have a debate on this issue?

Goose_Girl wrote: »

I really don't see how you could get anything prescribed without a diagnosis. Simply believing the food is better is not good enough; fruit and veg would be available on prescription.
I wish coeliac/gluten intolerace simply caused spot and growing pains. Give me that any day of the week! And my test for coeliac came back negative, meaning IBS will probably be my diagnosis when I next check in with the doctors.

General health is our own responsibility and the NHS is really there for medical conditions. Your situation really sounds like it is the former I'm afriad.

ETA:
If you believe you have Coeliac disease and have sufficient reasons that a doctor sends you for blood tests, then results can be negative because the villi aren't damaged enough in the intestines. If diet modifications have been made, you need to go back to a gluten containing regular diet for at least six weeks before the tests, but I expect YouTube covered that

March2012

overall too and often have to introduce breathing exercises (or one parent type A can influence. we follow the book eat right for your blood type.

Caz3121 wrote: »

I have a severe reaction to wheat (feels like someone twisting a wide knife in my stomach often followed by sitting on the loo!) so do not eat it.

I believe this is a wheat intolerance that agravates IBS so have excluded it and eat mostly gluten free. Was told that for a coeliac testing I would need to reintroduce it for 6 weeks which I was not prepared to put myself through (for the sake of a prescription for gluten free bread and pasta)

I buy spelt artisan bread on the odd occasion or make my own and find wheat free pasta etc easy to buy in M&S or supermarkets. Buy pizza bases etc and make my own. Buying all the "gluten-free" branded products can be expensive when they are alternatives to traditional gluten items but there are many things that can be eaten by anyone

As far as my IBS goes I bought this book which has really helped me. I went through months of being up every night feeling nauseous and diahorrea about twice a week (even with a controlled diet) and since following some simple tips, including some breathing exercises, I have been symptom free for over a month (long may it continue)
http://www.amazon.co.uk/Irritable-Bowel-Solutions-essential-treatments/dp/0091917069

March2012

are looking at for lower back pain with antibiotics. she was gratfeul. did that now surprise you

Person_one wrote: »

I bet your doctor loves you! :rotfl:

March2012

one out too . must be mroe in touch with my body and what i put in it?

there seems to be a lot of p.... off people in here... it ought to be a discussion not really a slagging off....?

suki1964 wrote: »

You do know that GP means general practitioner?

Means you doctor has a basic training in everything, but does not specialise. This is why we get referred, to see specialists. So its pretty understandable that your GP hasn't possibly read all the latest quackery found on the net, prolly too busy referring patients who do have a medical condition to specialists to get the treatment they need

Enjoy your gluten free diet. I'm sure you do feel a lot better. It's pretty common for humans to become wheat sensitive as they get older, there's not one woman I work with over 40 who complains of wind, bloating and cramps after eating bread. Not one of us are coeliacs.

sithmaster

even if you do get the prescriptions a lot of areas are restricting how much you can have because of the cost to the nhs. for the bead you buy for around £2-3 in the supermarket the nhs gets charged £10 for the same thing

March2012

to illustrate and he did live quite a bit longer than anticipated. there are several stories of people who fought against doctors opinions including cancer sufferers!

heartbreak_star wrote: »

Medical response

The film received mixed responses from the medical community. While it seemed to accurately portray the events related to the boy's condition and his parents' efforts during the time period covered by the film, it was criticized for painting a picture of a miracle cure. Subsequent research with Lorenzo's oil has not clearly proven its effectiveness in treating ALD.The actual subject of the film, Lorenzo Odone, died in May 2008 at the age of 30, having lived two decades longer than originally predicted by doctors.

Please note the bit in purple.

HBS x

March2012

and dont think i understand why the nhs would pay more for it unless again very very bad managemetn with too many fat cats?

sithmaster wrote: »

even if you do get the prescriptions a lot of areas are restricting how much you can have because of the cost to the nhs. for the bead you buy for around £2-3 in the supermarket the nhs gets charged £10 for the same thing

Goose_Girl

http://www.hartlepool.nhs.uk/includes/documents/About_Us/Prescribing_Guidelines/Guidance_on_Gluten_free__Nov_10[1].pdf

http://www.bbc.co.uk/news/health-17755552

The first link is a copy of the guidelines by the NHS of how people must qualify for the prescriptions before they are offered.

The second link is an example news story of how much this costs the NHS; the cost is all in the admin.